Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Type 1 Diabetes
Type 1'stars R Us
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="RobertJ" data-source="post: 2636834" data-attributes="member: 351599"><p>I see that you were diagnosed well into adulthood, whereas I've had Type 1 since the age of 12 so it's quite different. I know a 29-year-old who's had it for about a year and he's already figured it out, with an HbA1c of 45.</p><p></p><p>So I get the impression that people who get Type 1 as adults start on a good track, whereas the ones who get it as children start off on a chaotic track. You have to make the difficult transition from diabetes being an irritation you wish would go away to something you have to take seriously and manage yourself. For me it was a messy process. Starting in childhood also means you're used to the very low standards the NHS sets for children with diabetes. It took me far, far too long to realise I needed to operate as a higher standard as an adult. </p><p></p><p>Even after going onto the FreeStyle Libre, my control was basically awful. My HbA1c was 60 as recently as 2021 because I just couldn't maintain consistent good control. I had two weeks or so of good control, then a few weeks of terrible control, then a few weeks back to good again. </p><p></p><p>It was only last summer I permanently got things on a better track. The last three HbA1cs were 50, 51 and 48, but that's after literally twenty years of mostly bad control. So I worry that the damage has already been done, and at 33 (if it wasn't for diabetes) I'd be expecting to live another fifty or sixty years. </p><p></p><p>Can my body really sustain decades more of elevated blood sugar, especially when the first twenty years were so elevated? I eat lots of fruit and vegetables and keep fit, but it just doesn't seem realistic that I won't at least have some nasty complications. </p><p></p><p>I have had therapy a bit and spent some time talking about diabetes but that wasn't the main reason I had it. I think permanent better control would help me the most. I'm possibly signing up for Eoin Costello's Type 1% program so if I do that, it should help.</p></blockquote><p></p>
[QUOTE="RobertJ, post: 2636834, member: 351599"] I see that you were diagnosed well into adulthood, whereas I've had Type 1 since the age of 12 so it's quite different. I know a 29-year-old who's had it for about a year and he's already figured it out, with an HbA1c of 45. So I get the impression that people who get Type 1 as adults start on a good track, whereas the ones who get it as children start off on a chaotic track. You have to make the difficult transition from diabetes being an irritation you wish would go away to something you have to take seriously and manage yourself. For me it was a messy process. Starting in childhood also means you're used to the very low standards the NHS sets for children with diabetes. It took me far, far too long to realise I needed to operate as a higher standard as an adult. Even after going onto the FreeStyle Libre, my control was basically awful. My HbA1c was 60 as recently as 2021 because I just couldn't maintain consistent good control. I had two weeks or so of good control, then a few weeks of terrible control, then a few weeks back to good again. It was only last summer I permanently got things on a better track. The last three HbA1cs were 50, 51 and 48, but that's after literally twenty years of mostly bad control. So I worry that the damage has already been done, and at 33 (if it wasn't for diabetes) I'd be expecting to live another fifty or sixty years. Can my body really sustain decades more of elevated blood sugar, especially when the first twenty years were so elevated? I eat lots of fruit and vegetables and keep fit, but it just doesn't seem realistic that I won't at least have some nasty complications. I have had therapy a bit and spent some time talking about diabetes but that wasn't the main reason I had it. I think permanent better control would help me the most. I'm possibly signing up for Eoin Costello's Type 1% program so if I do that, it should help. [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Type 1 Diabetes
Type 1'stars R Us
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…