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type 2, hba1c 79.2 blood sugar level 28.1

violet6763

Well-Known Member
Messages
79
Hello, I have felt ill for several weeks. Last week I went to the doctors and they sent my urine away to see if I had an infection and was sent for bloods. I slept for 32 hours with my husband waking me to eat. I rang the surgery for my blood results and they said they were normal. This week I have still felt ill and been really hungry and thirsty. The surgery sent me a letter to make an appointment regarding my blood test. When I rang they said that my hba1c is 79.2 and to make an appointment. Last night at work I felt even worse and my blood sugar reading was 28.1. I rang the emergency number for doctor who saw me straight away. he tested my urine as he said if there were ketones present I was being admitted to the acute medical ward. he said there were ketones but just between a trace and negative so he tripled my metformin (to 3 x 500mg a day) and told me to go the GP this morning to get blood cultures done. I went to the GP this morning who told me I was poorly controlling my diabetes and he wouldn't need bloods done I would be tired as that's what happens when it is poorly controlled and that I need to write a diary of what I eat. I eat healthily and exercise a little (walk to work and dog walks). I was diagnosed following an operation in January 2011 at 38 years old. My sister is type 1 diagnosed at 5 and my brother is type 1 diagnosed at 25. I feel like the doctor is not taking me seriously enough as I struggle to see clearly and feel sick, hungry, thirsty and tired. Any suggestions? My blood sugar is currently 20.1.
 
Hi. From what you say it is possible you have late onset Type 1 (LADA) as you have a family history of diabetes Type 1 and are quite young. Metformin will help but not affect your blood sugar by that much e.g. 1-2 mmol. You must move to a lower carb diet and with high-fibre, low-GI carbs and perhaps limit these to 150 gm/day or lower. Your GP could add further tablets such as Gliclazide which may help for a while. Do continue to measure your sugars to watch that your sugars do start to go down. Your GP could do a GAD and c-peptide test to check for LADA but the NHS tends not to do these tests very often. Hopefully your GP will do 3-monthly HBa1c blood tests to keep an eye on your sugars and take the right action if they remain high. Keep us informed.
 
I suspected type 1 myself. My sister works at a hospital and has just spoken to the diabetic consultant. He said my GP needs to go to medical school and I am classic type 1 and need insulin. He is in a different area to me and said to ring NHS direct and tell them to refer me to a diabetic clinic this afternoon. Hubby rang NHS direct who said go to GP! I am so fed up of this. I am so tired and feel full of cotton wool and really want to just curl in a ball and sleep and ignore it all.
I have eaten low carb for months. This month my intake of carbs has crept up but not hugely. I don't eat much processed food at all, we cook from scratch and have lots of veg, salads and fruit.
 
Hi. Frustrating isn't it. I'm in the process of having a GAD and c-peptide test done privately as my GP doesn't get it either. I may or may not be (very late) LADA but I'd like to at least be tested. I would ask the GP to consider a GAD test as you have a family history of T1 diabetes and it is inherited; also ask for more meds to keep your sugars down. YOU appear to be managing your diabetes properly thru a good diet but the GP isn't thru tests and medication. You may want to get some ketone strips from the Internet (Amazon) or the chemist and if your ketone levels rise you could go to A&E and they would put you on insulin; that's what happened to my 22 year old nephew. You might want to download the NICE Diabetes Pathway document from the web. It was updated in Oct and is very good. It has a flow-chart as guidance to GPs based on HBa1c level and indicates at what point different tablets and insulin should be considered (note it is based on old money blood readings)
 
Hello, I ended up in A & E. The diabetic nurse came to see me and said that I was type 1 and should of been on insulin since I came out with symptoms two years ago. She said that my body had tried to keep working and had now reached crisis point. I went from the waiting room to being in 'majors' with canulas in within ten minutes. I now have insulin, humalog three times a day and Lantus at night. I cried with relief. I knew I was ill, and not because of poor diet. My GPS had pigeon holed me because of my age not my family history, and I wish I had battled more, but was too tired. Diabell make sure you insist on the proper tests x
 
Hi. I'm really pleased that things came to a head and A&E did the right thing. Sad that GPs often don't listen to patients about family history of illness etc. I had my results back yesterday. The GAD was negative which shows I don't have the most common antibody but the c-peptide was very low showing my pancreas is knackered as I thought and I'm not an insulin resistant T2. I guess I have some other problem causing islet cell death. I expect to be on insulin within a year but at least it's not as urgent as yours was.
 
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