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<blockquote data-quote="DCUKMod" data-source="post: 1776681" data-attributes="member: 345386"><p>Tina_marie - You my find that your husband manages himself a bit better once the diagnosis have set in and he settles into it.</p><p></p><p>I've only known one person, personally, who had an ME diagnosis, over 10 years ago. At that point, it was referred to a "Yuppy Flu". She had a similar battle to you guys in terms of arriving at a diagnosis - She used to have to go from Warwickshire to London to see her Consultant, as he was about the only one who accepted the condition existed!</p><p></p><p>She spent a long time, trying to be as normal as possible, and constantly just exhausting herself and getting upset. Once her condition had settled a little, she was more able, mentally, to allow herself to manage it with resting and so on. She no longer felt she had to fight it with every breath, but to accept that she needed to save her energy for the things she wanted to do, and not fritter it away.</p><p></p><p>She definitely used to live and manage herself, using The Spoons Theory: <a href="https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/" target="_blank">https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/</a></p><p></p><p>Funnily enough, I ran into her in Sainsbury's a few months ago, and she has healed quite a bit. She never has got back to work (she was a nursing Sister, but worked for, and loved working for The Blood Transfusion Service), but she is now far more active and has a relatively normal life, provided she managres her "quota of spoons" (see the link),</p><p></p><p>Hopefully some of the energy you and he have heavily invested in getting a diagnosis can be diverted into some form of relaxation or enjoyment.</p><p></p><p></p><p>Edited to correct some shockingly bad typos!</p></blockquote><p></p>
[QUOTE="DCUKMod, post: 1776681, member: 345386"] Tina_marie - You my find that your husband manages himself a bit better once the diagnosis have set in and he settles into it. I've only known one person, personally, who had an ME diagnosis, over 10 years ago. At that point, it was referred to a "Yuppy Flu". She had a similar battle to you guys in terms of arriving at a diagnosis - She used to have to go from Warwickshire to London to see her Consultant, as he was about the only one who accepted the condition existed! She spent a long time, trying to be as normal as possible, and constantly just exhausting herself and getting upset. Once her condition had settled a little, she was more able, mentally, to allow herself to manage it with resting and so on. She no longer felt she had to fight it with every breath, but to accept that she needed to save her energy for the things she wanted to do, and not fritter it away. She definitely used to live and manage herself, using The Spoons Theory: [URL]https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/[/URL] Funnily enough, I ran into her in Sainsbury's a few months ago, and she has healed quite a bit. She never has got back to work (she was a nursing Sister, but worked for, and loved working for The Blood Transfusion Service), but she is now far more active and has a relatively normal life, provided she managres her "quota of spoons" (see the link), Hopefully some of the energy you and he have heavily invested in getting a diagnosis can be diverted into some form of relaxation or enjoyment. Edited to correct some shockingly bad typos! [/QUOTE]
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