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Type 2 re-diagnosed as Type 1

Cumberland

Master
Messages
14,687
Location
Cumbria
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Foodwise Nuts & Mushrooms (Vomit)
Re-diagnosed by the consultant at diabetic clinic last week

Diagnosed type 2 in my 20's

Re-diagnosed type 1 now I'm 52

Been on insulin from my 20's too

Hello to you all

Cumbs
 
Same sh17, different type, dude..!

Hope yer good otherwise..?
 
I was type 2 for years but not on insulin. Just diet and exercise but now type 1 at 50. Insulin now
 
It's surprising the number of adults misdiagnosed as Type 2 when they're actually Type 1.

There are also a number of ladies who were automatically diagnosed with Gestational Diabetes in pregnancy but who turned out to have Type 1.

Sometimes, of course, the diagnosis is complicated, but often it seems to be an assumption doctor's make when they see an adult with diabetes - must be Type 2.
 
Hello and thank you

@cataillar @azure @Jaylee @noblehead @Bluetit1802 @Kristen251

Well I have been misdiagnosed in consultants opinion

I was born with pancreas divisum but it was not discovered until I was in hospital with pancreatitis

Told I was type 2 after blood test showed me 40+ and been on insulin since

Consultant looked back at my record asked me questions about diabetes in my family, I told her my late grandfather was type 1 that one of my sisters is type 1 and that several of my nephews and nieces are type 1 too

She concluded that I was type 1 too and probably should have been type 1 all along

As you can see by my profile pic I'm not obese never have been and I'm in my ideal weight range

To be honest my attitude to new diagnosis is the same as when first told I was diabetic and that is ....could have been worse could have been cancer

I know that sounds a bit blunt but being diabetic does not freak me out but being told I have cancer certainly would

Nice to meet you all

Cumbs
 

Fair play!

.. & it's not like the diagnosis is a "shocker" which has go you in a "flat spin"..
 
Twoplayer said:
Sounds similar to me. Diagnosed T2 mid thirties. Grandma was T1, aunt is T1 and daughter is T1. I'm in the ideal weight range. Oral medications haven't made any difference for 6-7 years and now take a long acting insulin. Sound like a misdiagnosis?
Click to expand...
Yes. ask for a GAD and ICA test. They'll prove T1 or T2 relatively quickly.
 
tim2000s said:
Yes. ask for a GAD and ICA test. They'll prove T1 or T2 relatively quickly.
Click to expand...

@tim2000

Can you tell me what GAD & ICA means please? Thanks in advance

I've not heard of them before

Commenced using Toujeo insulin and find the pen really easy to inject with very smooth with loud clicks no snagging or sticking

Sometimes the Humilin I pen stuck a little bit
 
Twoplayer said:
Sounds similar to me. Diagnosed T2 mid thirties. Grandma was T1, aunt is T1 and daughter is T1. I'm in the ideal weight range. Oral medications haven't made any difference for 6-7 years and now take a long acting insulin. Sound like a misdiagnosis?
Click to expand...

Might be worthwhile asking your team to look into your original diagnosis and ask for a test that @tim2000 suggests

Good luck
 
Cumberland said:
@tim2000

Can you tell me what GAD & ICA means please? Thanks in advance
Click to expand...

Type 1 is an autoimmune disease, so somewhere along the line your immune system has killed off your beta cells - the things in the immune system that do the killing are antibodies, I think there are 4 or 5 antibodies that are associated with type 1, the most common being GAD antibodies, then ICA.

I don't know what they stand for, and I probably couldn't spell it if I tried, I guess I don't really care what they stand for, it's just the antibodies to me! this link explains, I think - https://labtestsonline.org/understanding/analytes/diabetes-auto/tab/test/

About 75% of type 1s are GAD positive. Lots of people say that the longer after symptoms start the less accurate the antibody tests are - so if you were diagnosed diabetic 20 years ago, but only now having antibody tests they might come back negative because there's simply nothing left for the antibodies to do in your system, they've killed off all your beta cells and then faded away themselves, doesn't mean you didn't have the antibodies 20 years ago - makes sense to me. But equally, people do test GAD positive 15 years + post diagnosis.
 
On my last MOT, my consultant started to doubt whether I was really T1 as my control was so good, so he ordered a GAD test. It came back in about a week. I'm surprised they haven't done one for you. Aye, it was positive.

Glutamic Acid Decarboxylase Autoantibodies test (GAD antibodies test) apparently.
http://www.diabetes.co.uk/gad-antibody-test.html
 
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