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Type 3c Diabetes

Discussion in 'Type 3c (Pancreatic) Diabetes' started by leather_ferret, May 24, 2010.

  1. Kirktown

    Kirktown Type 3c · Active Member

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    I hadn't heard about Glucagon levels before ( But this is all fairly new to me ). My insulin levels are coming down but they're not ideal and I have had quite a few hypos at home. I now have a fear of going out in the car and taking a hypo so I admit I don't take as much insulin in the morning as I would rather be a bit above the ideal than below. I must mention this to the specialist when I see them again on the 21st Nov. I am assuming that any specialist will be familiar with type 3c - are they?
     
  2. Kirktown

    Kirktown Type 3c · Active Member

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    I discovered a telling piece of info at my last hospital visit. I asked the consultant why when I was insulin dependant Type 3C was I classified as Type 2 on some hospital paperwork. I was beginning to think I must have misunderstood my original diagnosis. She explained that the hospital computer has only two choices to enter - Either Type 1 or Type 2. They have no category for any other type of diabetes so they lump us into Type 2. Is it any wonder that there is so little information if the hospital statistics don't even allow for the condition as a seperate illness. I don't know if this is Nationwide, perhaps other do?
     
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  3. JRW

    JRW Type 1 · Well-Known Member

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    Although it's much akin to T1.

    When in hospital I found the knowledge levels of the staff to be poor, I only got a straight answer from a consultant. Although a somewhat cryptic one.
     
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  4. Frankiewoof

    Frankiewoof Type 2 · Newbie

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    Is there a reason why the discussion about type 3c ended well over a year ago? (I’ve been recently diagnosed.)
     
  5. Antje77

    Antje77 LADA · Well-Known Member

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    There is a sub forum about 3C. It's not very busy but at least it's more than just this thread: https://www.diabetes.co.uk/forum/category/type-3c-pancreatic-diabetes.73/
    Many issues are comparable with different types of diabetes, so for many questions you can use the 'Ask a question' or other forums.
    I see this is your first post, so welcome to the forum! Read around on different threads and sub-forums as much as you like and need to, but pay especially close attention to @daisy1 's very useful info sheet. She'll post in on this thread when she's online.
    I see you're still listed as type2, you might want to change that.
    Good luck!
     
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  6. daisy1

    daisy1 Type 2 · Legend
    Staff Member Retired Moderator

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    @Frankiewoof
    Hello Frankiewoof and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask questions when you need to and someone will help.

    BASIC INFORMATION FOR NEW MEMBERS

    Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

    A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

    On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

    The role of carbohydrate

    Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

    If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

    The bad news

    Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

    The good news

    People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

    Controlling your carbs

    The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

    There are two approaches to controlling your carbs:
    • Reduce your carbohydrate intake
    • Choose ‘better’ carbohydrates
    Reduce your carbohydrates

    A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

    The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

    Choosing better carbohydrates

    The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

    Read more on carbohydrates and diabetes.

    Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

    Eating what works for you

    Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

    To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

    The blood sugar ranges recommended by NICE are as follows:

    Blood glucose ranges for type 2 diabetes
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 8.5 mmol/l
    Blood glucose ranges for type 1 diabetes (adults)
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 9 mmol/l
    Blood glucose ranges for type 1 diabetes (children)
    • Before meals: 4 to 8 mmol/l
    • 2 hours after meals: under 10 mmol/l
    However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

    Access to blood glucose test strips

    The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
    • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
    • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

    Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

    You may also be interested to read questions to ask at a diabetic clinic.

    Note: This post has been edited from Sue/Ken's post to include up to date information.
    Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

    • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

    • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
     
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  7. lollyann1

    lollyann1 Type 1 · Well-Known Member

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  8. ballabob

    ballabob Type 3c · Member

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    Went to see the new GP a couple of weeks as my Bs have been hitting mid teens for the last month mentioned T3C he never heard of it then told me to stop testing my blood ?? I am taking 1 x Pioglitazone 30 mg - 2 x Gllclazide 40 mg - 2 x Metformin x 1000 mg don't understand what's happening. so decided to start taking NovaRapd not sure what's going to happen now.....
     
  9. Antje77

    Antje77 LADA · Well-Known Member

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    Who prescribed it? I don't understand. Are you seeing an endocrinologist? And over a year ago you mentioned that you had been taking novorapid for at least a year https://www.diabetes.co.uk/forum/bl...ow-many-units-do-you-take-before-a-meal.1758/
    Are you saying your GP says no testing even though you take novorapid?
     
  10. ballabob

    ballabob Type 3c · Member

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    Hi, I was taken off Novorapid in March 18, and put on the tablets, over the past 2 months my Bs have been rising towards mid teens, last Friday my GP put me back on to Novorapid and told me to also continue with the tablets....not sure about this tho.
     
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  11. ballabob

    ballabob Type 3c · Member

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    Forgot to mention, he said that I may becoming T1
     
  12. Antje77

    Antje77 LADA · Well-Known Member

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    I'd try to be seen by an endo. If your GP doesn't know what 3C is he's clearly not ready to treat you, and being 'on your way to T1' is b******s, unless he has tested you for antibodies.
     
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  13. SimonCrox

    SimonCrox · Well-Known Member

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    I would agree with the statment above about if the GP doesn't know about Type 3c, then maybe not that helpful.
    But on the other hand, as 3c progresses, the pancreas gets more and more damaged so that there are not enough beta cells to make insulin ie one resembles someone who has had autoimmune destruction of the beta cells.
    I would be interested in reviewing the history to look for a history of pancreatitis, and a urinary C-peptide level to see if useful insulin production from beta cells.
    I found T 3c difficult to treat at times with wildly fluctuating glucose levels; so one needs to consider exocrine pancreatic insufficiency ie needing pancreatic enzyme supplements eg creon to help digest the food. Also, the alpha cells in pancreas make glucagon which counterbalances insulin - but I just wonder if this is also lacking, making insulin better at droppng glucose levels - just my idea and nothing that one can do about it.
    As for the other tablets, those that make the beta cells produce more insulin are probably a waste of time cos there are not enough beta cells to make useful insulin. The other agents might do some good if there is insulin resistance to overcome
    So, specalist review might be helpful
    best wishes
     
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