Ojustaboo
Well-Known Member
Apologies for not posting for ages, had a terrible year.
2021, my mmol was between 5.2 and 9, sometimes 5,2 both morning and night sometimes as high as 9 but not usually higher (few times just over 10)
Then Feb 22 my stomach swelled up, started loosing weight without trying and at the same time my diabetes went crazy.
You name it, hospital did it, checked for bowel cancer, did a nuclear emptying study, mri scan, ct scan, ultrasound etc etc.
6th June 22 I weighed 118.2kg , 3rd October 110.4 kg. Weights settled at 107kg.
Tastes also change, can’t stomach red meat as in joints of lamb/beef/pork. Still like burgers, bacon and sausages.
During this time my diabetes was rising steadily and they increased my metformin from 2x500mg once a day to twice a day. still kept rising until it was getting to be 22 - 27mmol every day.
GP added 25mg Empagliflozin tablets in November, this bought my levels down each month until by March it was 9.4mmol
Then the hospital did a Gastroscopy and found a couple of odd looking bits, took biopsies and was called in a couple of days later to say I had oesophagus cancer.
Long story short, I’m currently having chemo and 6 weeks after that finishes I lose my entire stomach
Unfortunately one of the side effects of my new Empaglifozon meds is thrush, and I got a lot of it. I have to inject myself with white platelets while on chemo due to my immune system being so low. So they decided that I can’t be on the Empaglifozon due to my thrush history and with a low immunity I’ll keep getting it, so took me off.
Yesterday I had my second chemo, was there at 9:30, first thing they did was a blood sugar test, it was 36.1 mmol / 648 mg. Apparently if it’s over 600mg it’s counted as a medical emergency.
Cant fault the hospital, saw two doctors within 15 mins, they arranged for an injection to get the levels down so I could have my chemo, said I needed to go on insulin straight away as unless my levels are down, the cancer op couldn’t go ahead (Major 8hr plus operation where one of your lungs is deflated etc). They said they would send the hospital diabetic team to see me.
level went down to 24.5 mmol / 441mg, by now it was gone 1 pm, finally got out at 5:30.
Anyway, diabetic lady appeared, very nice, knew her stuff, gave me a GluxoRX Nexus meter and strips, and said she will contact my GP to have them added to my prescription.
She said I will be on insulin permanently unless my diabetes gets reversed after the operation as I can’t eat normally after it and I will lose a lot of weight.
She explained how to inject the insulin, it’s a two part one with two different types in it that has to be mixed together.
She then said I’m no longer under my GP for diabetes, I’m currently under the hospital while they put me onto the community diabetes team which takes a while, but basically said it’s far better than relying on the GP.
She said they will phone me up 9am Monday morning to see how I’m doing, then make a further appointment then.
She wrote a lot of notes explaining how much to inject before breakfast, how much before dinner.
Then she said that she’s spoken to my chemo doctors, normally they would all advise me to avoid treats/cakes to get my sugar levels down, but due to the fact I’m about to lose my stomach and eating habits change for life, they’ve decided to do the exact opposit.
They want me to treat myself every day, they said if I want cake every day, have some. They stressed it’s much easier for them if I do it every day rather than occasionally as they can adjust my insulin to take this into account. I thought that was very nice of them.
They gave me the non Bluetooth version of the meter, I could buy the Bluetooth version, isn’t that expensive, but will probably look for an iPhone app where I can keep records every day (any recommendations?)
The good news is they THINK (pretty confident but can’t guarantee ) they’ve caught the cancer in time.
Due to where my cancer is, they are debating weather to remove my oesophagus and make it out of my stomach, or remove my stomach, I have a before and after picture of the first op but either way, stomach gone, 6 - 7 very small meals a day and if I drink before my meal, will be too full to eat.
still at least they caught it in time.
2021, my mmol was between 5.2 and 9, sometimes 5,2 both morning and night sometimes as high as 9 but not usually higher (few times just over 10)
Then Feb 22 my stomach swelled up, started loosing weight without trying and at the same time my diabetes went crazy.
You name it, hospital did it, checked for bowel cancer, did a nuclear emptying study, mri scan, ct scan, ultrasound etc etc.
6th June 22 I weighed 118.2kg , 3rd October 110.4 kg. Weights settled at 107kg.
Tastes also change, can’t stomach red meat as in joints of lamb/beef/pork. Still like burgers, bacon and sausages.
During this time my diabetes was rising steadily and they increased my metformin from 2x500mg once a day to twice a day. still kept rising until it was getting to be 22 - 27mmol every day.
GP added 25mg Empagliflozin tablets in November, this bought my levels down each month until by March it was 9.4mmol
Then the hospital did a Gastroscopy and found a couple of odd looking bits, took biopsies and was called in a couple of days later to say I had oesophagus cancer.
Long story short, I’m currently having chemo and 6 weeks after that finishes I lose my entire stomach
Unfortunately one of the side effects of my new Empaglifozon meds is thrush, and I got a lot of it. I have to inject myself with white platelets while on chemo due to my immune system being so low. So they decided that I can’t be on the Empaglifozon due to my thrush history and with a low immunity I’ll keep getting it, so took me off.
Yesterday I had my second chemo, was there at 9:30, first thing they did was a blood sugar test, it was 36.1 mmol / 648 mg. Apparently if it’s over 600mg it’s counted as a medical emergency.
Cant fault the hospital, saw two doctors within 15 mins, they arranged for an injection to get the levels down so I could have my chemo, said I needed to go on insulin straight away as unless my levels are down, the cancer op couldn’t go ahead (Major 8hr plus operation where one of your lungs is deflated etc). They said they would send the hospital diabetic team to see me.
level went down to 24.5 mmol / 441mg, by now it was gone 1 pm, finally got out at 5:30.
Anyway, diabetic lady appeared, very nice, knew her stuff, gave me a GluxoRX Nexus meter and strips, and said she will contact my GP to have them added to my prescription.
She said I will be on insulin permanently unless my diabetes gets reversed after the operation as I can’t eat normally after it and I will lose a lot of weight.
She explained how to inject the insulin, it’s a two part one with two different types in it that has to be mixed together.
She then said I’m no longer under my GP for diabetes, I’m currently under the hospital while they put me onto the community diabetes team which takes a while, but basically said it’s far better than relying on the GP.
She said they will phone me up 9am Monday morning to see how I’m doing, then make a further appointment then.
She wrote a lot of notes explaining how much to inject before breakfast, how much before dinner.
Then she said that she’s spoken to my chemo doctors, normally they would all advise me to avoid treats/cakes to get my sugar levels down, but due to the fact I’m about to lose my stomach and eating habits change for life, they’ve decided to do the exact opposit.
They want me to treat myself every day, they said if I want cake every day, have some. They stressed it’s much easier for them if I do it every day rather than occasionally as they can adjust my insulin to take this into account. I thought that was very nice of them.
They gave me the non Bluetooth version of the meter, I could buy the Bluetooth version, isn’t that expensive, but will probably look for an iPhone app where I can keep records every day (any recommendations?)
The good news is they THINK (pretty confident but can’t guarantee ) they’ve caught the cancer in time.
Due to where my cancer is, they are debating weather to remove my oesophagus and make it out of my stomach, or remove my stomach, I have a before and after picture of the first op but either way, stomach gone, 6 - 7 very small meals a day and if I drink before my meal, will be too full to eat.
still at least they caught it in time.
Attachments
Last edited:
