Very high levels

[mortigger1968]

Hi havent been in here im type on insulin ...lots of insulin for a while as trying to sort blood sugars they never single figures can get to 17 , i eat the right things and exercise but nothing seems to make much diffrenece
I minimise carbs i exercise and dont eat rubbish but i dont know what else to do im ar a loss my diabetic nurse thinks its hormonal and possibly stress and not linked to food so not sure what else i can do to be honest ..any advice appreciated

 

[JoKalsbeek]

Hi havent been in here im type on insulin ...lots of insulin for a while as trying to sort blood sugars they never single figures can get to 17 , i eat the right things and exercise but nothing seems to make much diffrenece
I minimise carbs i exercise and dont eat rubbish but i dont know what else to do im ar a loss my diabetic nurse thinks its hormonal and possibly stress and not linked to food so not sure what else i can do to be honest ..any advice appreciated

Process of elimination:
Can you be more specific about the foods you eat, what you drink? There might be something in there that's carbier than you think.
Are you on any medications that can raise blood sugars? Steroids, statins?
Stress and hormonal changes can be an issue, so far as that goes maybe some long walks, mindfulness, medication, more sleep might help, but even so... 17 is rather high.

....So, if all of the above comes up with nothing, personally I'd request a referral for an endo and GAD and C-peptide testing. You might've been misdiagnosed. (Basically anyone with adult diabetes is assumed a T2 unless there is cause to look further. I'd say 17+ is a cause.).

Don't let this go, I kind of feel like your nurse is being a bit too casual.
Hugs,
Jo

 

[Antje77]

Hi @mortigger1968 , it's very frustrating when you do all the right things and it doesn't really work, I'm sorry.

Like @joksaid, can you give us some more information?
What insulin(s) are you on, and how do you decide on doses?
Do you test your blood glucose often enough to find patterns around meals?
What do you consider to be 'lots of insulin'?
Some people only need a couple of units, others need hundreds, the right dose is the dose that keeps you healthy.

I'm tagging @Annb for you. She was more or less in the same boat a few years back but she's gotten very good at adjusting her insulin to her needs by now.

 

[mortigger1968]

Process of elimination:
Can you be more specific about the foods you eat, what you drink? There might be something in there that's carbier than you think.
Are you on any medications that can raise blood sugars? Steroids, statins?
Stress and hormonal changes can be an issue, so far as that goes maybe some long walks, mindfulness, medication, more sleep might help, but even so... 17 is rather high.

....So, if all of the above comes up with nothing, personally I'd request a referral for an endo and GAD and C-peptide testing. You might've been misdiagnosed. (Basically anyone with adult diabetes is assumed a T2 unless there is cause to look further. I'd say 17+ is a cause.).

Don't let this go, I kind of feel like your nurse is being a bit too casual.
Hugs,
Jo

Hi i have yoghurt and berries or nuts for breakfast

Omlette or meat and salad for lunch

Amd evening meal is meat and vegetables and small amount of carbs for the insulin to work properly so im told

I am on 54 units of fast acting 3 times a day and 140 of tresiba in the evening

I do swimmjng and aqua fit beaely everyday as cant do lots of walking as i have hallix rigidus

I am on provera for womens problem and i am convinced its tthat but my gyna wants me to stay in it for the hyperplasia i have
She wants me to have a hysterectomy christis jn manchester prepared to do it as they are professionals

I am convinved it's the provera but they wont let me come off it im.so fed up with it all feel im not going to be here much longer

 

[JoKalsbeek]

Hi i have yoghurt and berries or nuts for breakfast

Omlette or meat and salad for lunch

Amd evening meal is meat and vegetables and small amount of carbs for the insulin to work properly so im told

I am on 54 units of fast acting 3 times a day and 140 of tresiba in the evening

I do swimmjng and aqua fit beaely everyday as cant do lots of walking as i have hallix rigidus

I am on provera for womens problem and i am convinced its tthat but my gyna wants me to stay in it for the hyperplasia i have
She wants me to have a hysterectomy christis jn manchester prepared to do it as they are professionals

I am convinved it's the provera but they wont let me come off it im.so fed up with it all feel im not going to be here much longer

Not too sure it's the provera, to be honest... I'm on depo provera shots once every 10 weeks, (same thing, different dosage most likely) and they don't cause so much as a blip. A sore bum, a now massive ovarian cyst and a headache, yeah, but that's it. It's not a known side effect either, wonky blood sugars... And your meals sound perfectly fine, carbwise.

If I were you, I'd get the C-peptide and GAD tests sorted. You might not be a T2, but rather a T1 variant (Mody, Lada, 1.5, whatever) , and then your insulin regime would likely need adjusting and your treatment a decent overhaul. The onset can be very slow, some are treated as a T2 for years before issues arise. But with everything else you've got going on, I don't think you want to walk around with high-ish blood sugars for overlong, considering that does damage in its own right. You've got enough to deal with already.

Don't let it go, please. You've got a right to feel better.
Hugs,
Jo

 

[mortigger1968]

Not too sure it's the provera, to be honest... I'm on depo provera shots once every 10 weeks, (same thing, different dosage most likely) and they don't cause so much as a blip. A sore bum, a now massive ovarian cyst and a headache, yeah, but that's it. It's not a known side effect either, wonky blood sugars... And your meals sound perfectly fine, carbwise.

If I were you, I'd get the C-peptide and GAD tests sorted. You might not be a T2, but rather a T1 variant (Mody, Lada, 1.5, whatever) , and then your insulin regime would likely need adjusting and your treatment a decent overhaul. The onset can be very slow, some are treated as a T2 for years before issues arise. But with everything else you've got going on, I don't think you want to walk around with high-ish blood sugars for overlong, considering that does damage in its own right. You've got enough to deal with already.

Don't let it go, please. You've got a right to feel better.
Hugs,
Jo

Hi i have all those tests done several times even tested for cushings syndrome im hopjng to see diabetes consult in november so will bring it up again , my nurses reqson im very insulin resistant ,i think maybe a change of insulin wid help she isnt convinced wants to pit me on rybelsus im just at a loss to honest dont know what to do anymore

 

[JoKalsbeek]

Hi i have all those tests done several times even tested for cushings syndrome im hopjng to see diabetes consult in november so will bring it up again , my nurses reqson im very insulin resistant ,i think maybe a change of insulin wid help she isnt convinced wants to pit me on rybelsus im just at a loss to honest dont know what to do anymore

Don't try to sort this out on your own. I think it'd be best if you saw someone a little sooner if possible, maybe get you a different type of insulin, maybe teach you how to not do a fixed dose, but adjust for your glucose levels/carb intake... You need more help than you're getting so far, I think. What do you have against rybelsus? Anything in particular? It might help, and might be worth a shot. Also, I tend to find when you're willing to try things they throw at you, they're often also more willing to listen to your input for some reason when you come up with an idea of your own. (Like a referral to an endo. I try a lot and usually fail due to side effects, but I'm willing to give a lot a go, which seems to breed good will... I'm a stubborn patient with a will of her own, but with some people it's better if they don't actually KNOW that. ).

 

[Antje77]

Hi i have yoghurt and berries or nuts for breakfast

Omlette or meat and salad for lunch

Amd evening meal is meat and vegetables and small amount of carbs for the insulin to work properly so im told

I am on 54 units of fast acting 3 times a day and 140 of tresiba in the evening

Ideally, the Tresiba should keep you level when not eating, and the fast acting should only be needed to deal with food.
On a low carb diet like you have, I'd expect you'd need more basal insulin than bolus, not the other way around.
Can it be that your mealtime insulin is partly covering your basal need (what you need when not eating)?
How does your blood glucose behave when you skip a meal and thus skip the mealtime dose?

If the basal dose is off, it's very hard to get things right with your bolus insulin.