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Very newly diagnosed T1 with many questions!

hollyh97

Member
Messages
5
Type of diabetes
Type 1
Treatment type
Insulin
Hi all, I'm 18 and I've only very recently been diagnosed with T1 (as in last week) and I'm eager to get my head around things. I know it's going to take a while but the forums look really useful to get advice from experienced T1 people!

My main query is that my nurse said I can still eat what I want and I should try and be balanced etc. But if I do go out and have a high carb meal and dessert for example and up my insulin dose beforehand because of this, is there a problem with doing this too regularly?

I know obviously too much insulin will cause a hypo and I'm checking regularly and feel quite on top at the moment ( I realise it's only the beginning) but is there any long term side effects- beside hypos- of taking extra insulin with meals so that I can still eat high carb/sugar when I want?

Thanks for any responses, like I said very new and very inquisitive!


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I find the higher your carbs/meal the more difficult it is to work it out correctly. Difficult to work out exactly say how much carbs there is in a piece of chocolate cake. Even if it is weighed unless the ingredients are known. I alway find i am better when i can weigh the food at home, rather than out. our blood sugars are higher than a normal person so there will be more strains on our organs. But we have to live and when I was young I was not as well controlled as youngsters now(there were no bg meters then) I am 63 and still going. It is a question of balance in life and our sugar control.
 
Yes, you can eat what you want within reason You may find that larger carb meals need the insulin split into more than one injection. As you're newly diagnosed, I'd proceed cautiously and test lots. I would not mess about with your doses too much yet - learn how your body reacts and then you'll be moving forward from a solid base of knowledge.

When I eat out, I tend to choose meals that are easy to carb count (less chance of getting the insulin dose wrong). I also often leave food if I feel there's too many carbs to make a safe guess eg with pasta, I just eat what I'd have at home rather than the massive plates they tend to give you.

I eat cake on occasion, and things like apple crumble (but low sugar), croissants, etc

There's nothing inherently 'bad' about taking more insulin, but I think many of us have a 'max dose' in our heads. For me, and probably for others too, that's to avoid a big carb intake in one go, a big insulin dose and the risk of hypos (or highs if the insulin can't adequately match the food as its being absorbed).

So - akways be careful and maybe don't have too many carbs in one go. Test lots and be cautious.

And - welcome to the forum
 
Hi Holly and welcome to the forum
This was the first place I discovered whilst still in my hospital bed with DKA
You will find out so much info here, though do check out #gbdoc on twitter and Facebook, another great place to chat with other PWD
Any questions just ask away, no question is a silly question

Sent from my SM-G930F using Diabetes.co.uk Forum mobile app
 
Hi. Yes, you can eat 'anything' but too many carbs will cause weight gain and larger blood sugar swings. I still maintain a fairly low-carb diet and increase the Bolus as usual when eating a carby meal out.
 
I was diagnosed last year at 27 years old. My opinion is similar to many others who have posted, but I'll phrase it a little differently. Ultimately, NO you can't eat whatever you want, but that's true of every person even those who don't have diabetes. Having diabetes just makes it that much more important.

With perfect insulin management you could (likely) eat the same as you did before you were diagnosed, but that's much easier said than done.

Having gone through what you did, my advice is this: don't make things harder on yourself than you have to. Try to avoid eating a ton of carbs all in one sitting. That's not easy to manage and it's even harder when you're first diagnosed. Eventually, you'll get a better grasp on things and you can enjoy the rare indulgence. For me, it was easier to avoid those situations rather than frustrate myself with constant highs/lows just so I could enjoy things I probably shouldn't eat anyway.

9 months after diagnosis and I just got back from a Cancun trip. I enjoyed drinking alcohol (but avoided the sugary drinks). I had plenty of desserts, but spread them out over the 7 day trip. I even had things like pizza (which is notoriously hard to manage with insulin), but limited myself to a few slices at a time.

Long story short: for me it's all about finding a balance for what I can manage while still being able to enjoy my life.
 
Hi @hollyh97
welcome to the forum
I think my first bit of advice is to remember to take things 1 day at a time because you can only gain experience in real time.
Diabetes is not always easy to control so don't be too hard on yourself with things that don't happen the way you always think they should.
I love my food and try to eat unprocessed food -- lots of veg , and fish , chicken , eggs , cheese , fruit etc
but I love a meal out at wagamama too

I normally avoid desserts but that is just my personal choice.
 
You shouldn't have to feel like you NEED to make sacrifices, as previously mentioned it's all about balance. You can still have sweets, crisps, junk food, etc. But limiting them will make your life a lot easier and help manage those levels.

Grant
 
Also, there is a person on this forum who gives out generic advice to newly diagnosed/new members.

@daisy1

Grant
 
@hollyh97

Hello Holly and welcome to the forum To add to all the advice you have received from other members, here is the information we give to new members and I hope you will find it useful. Ask as many questions as you need to and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

LOW CARB PROGRAM:
http://www.diabetes.co.uk/low carb program


Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi Holly
When I was first diagnosed I found all the abbreviations and terms people use online confusing, took me a while to learn them all
I have wrote a load of them down and Their meanings
Check out my website

https://type1bri.com/help-newly-diagnosed-jargon

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Last edited by a moderator:
Hi Holly! Welcome!

One thing to note - or at least what I found when I really started paying attention to what I eat, is if you eat big carby meals often, it can be a bit hit and miss (as mentioned above), but if you focus on trying to figure out your insulin to carb ration (how many units you need to give per grams of carbs) you may find you need less insulin than previously thought. One thing that has really helped me is sticking to carbs which are slow acting (oats, rye, wholegrain and wholemeal stuff) in general, and then the special occasions are exactly that, special occasions when I focus more on my insulin intake!
It's always nice to be able to reduce levels of insulin
 
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