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wake up NHS

billywhiz

Member
Messages
7
Type of diabetes
Treatment type
Non-insulin injectable medication (incretin mimetics)
recently diagnosed with type 2, based on hba1c of 63.

Sister was type 1, and died at 45 of heart failure
Father died @ 65 also diabetic
Brother is insulin dependent.

I am really annoyed with the lack of support offered by NHS. I personally have gone through the ringer over the past few weeks. Lethargic, breathless, BS spikes quickly on zero carbs. NO answers just it will get better with time.

Sorry I don't have much time until I lose my job through performance issues.
 
Hi Billy, welcome.

An HbA1c of 63 is not that high (similar to mine when diagnosed) but you say your BS spikes quickly on zero carbs? Can you be a bit more specific - BG levels just before eating and 2 hours later etc, together with what you ate?

Most of us find that NHS support for T2s varies from less than average to virtually negligent, and we have to find our own way. This site helps a lot.
 
hi, @billywhiz and welcome to the forum. @daisy1 should be along shortly to give you some good advice.
It is crazy that the NHS seems to be getting worse regarding diabetes type2 and considering your family ties with diabetes is just dangerous to say the least,how you have not been treated.
You will get lots of help and advice on this forum.
Whatever you do please take your time going through some recommendations to ensure that you are making the right choice to control your diabetes long term.
best of luck.:)
 
Hello @billywhiz and welcome to the forum :)

Here is the information, which @izzzi mentioned in his post, that we give to new members and I hope you will find it useful. Ask plenty of questions if you need to and members will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 100,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi. Can you let us have more information. Are you overweight or near normal? Your profile says non-insulin injectable which implies you are significantly overweight? If so, then do ensure you are following a decent low-carb diet e.g. 150gm/day or less for starters
 
thanks for responses

overweight yes, but lost 2 stone plus in short time, could benefit from losing another 2. Lost 6 inches off my waist.

FBS typically 6 to 7 then PP 7 to 11.5.

the weird readings include an 18.8 after a 5.9, meal was bacon and egg.

tiredness levels are extreme at times. ECG is fine and BP today is 137 over 80. Tiredness today is not so bad and BG is 5.2 to 6.9.

Just so frustrated. I also have regular pins and needles, mainly in hands ams my eyes are all over the place. Had a false. Hypo at work.
 
quick update, wholemeal bread appears to the culprit for my spikes. Just two slices!!

Sugar now 5.0 to 6.9 and energy returning.

DN told me off for not eating enough complex carbs. Agreed to disagree on that one. First time in ages that I am not dreading work tonight.

Have been put on statins and aspirin, apparently the ECG had some historical concern.

Thanks for help.
 
It's always good to identify a culprit! I hope things continue to stabilise and improve for you now.
 
Hi and welcome!

When you get a wacky reading, it may be worth washing your hands and trying again.
Sometimes it is sugars or fruit juice on hands, or sweat, or faulty test strip, or meter battery dying...
If the second test is similar, then take it seriously.

But remember, there is always a margin for error with the tests, so never expect 100% accuracy.

It's a pain, but easier if you just look at trends rather than individual readings...

Oh, and welcome! :happy:
 
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