Well that explains it!

Hi KayeStevenson, welcome to the forum.

Your symptoms sounds very much like my own over the last 15 years or so. Throughout that time I was diagnosed with ME and Inner ear problems amongst other things. Early this year I noticed symptoms after eating carbs which seemed to fit with diabetes. I changed my diet to the NHS low GI advise which helped a bit but then during the summer, started with RH symptoms. Waking with racing heart and shaking, very shaky a couple of hours after eating etc. My weight was dropping however, which is slightly odd. I lost over a stone (from 8.5st to 7.5st in 4 months).

My Doctor also put all of this down to anxiety and prescribed me medication. I'm now weaning myself of it as I now know the anxiety symptoms are a result of RH.

My endocrinologist eventually did a prolonged OGTT and that confirmed RH.

@Brunneria and @nosher8355 have loads of knowledge and experience and I'm sure will help as much as they can. I have found being part of this forum makes me feel so much more supported and much less alone. When GPs don't understand your condition it's quite a frustrating, worrying and lonely place to be. I hope you start to feel better very soon.

Thanks to both of you!

It is astonishing what a difference it makes to know there is a reason for you feeling so awful, and that there are tools (diet) that can put you back in control.

Good to have you.

KayeStevenson said:

Thanks both. I feel this forum will be a great help. It is difficult when no one understands how you feel and you don't understand why you are feeling that way. My mum just says "she is having a dizzy day" . At least I can now tell my colleagues why I often feel unwell and I can hopefully be able to take the right action if I do get a hypo. Jeez, I've been doing it all wrong for years!

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Bloody frustrating ain't it!
You know it's not what the doctors say it is!
The symptoms don't match what you say they are.

I think the next step is to get yourself an endocrinologist! With a bit of luck, you will get one that recognises the symptoms. Ask your GP to refer you to one that knows about RH.

The people on this forum, myself included will hope to help you with anything to make your life better.
Do you keep a food diary?
If not start one and I take it you have a glucose monitor, then you can start testing and recording what happens to you after eating certain foods and drinks.
This will get you knowledge if you can't eat certain foods or have a limit on the amount you eat. I can't eat dairy, but I can do small pieces of fruit. Others are the reverse. Only you can find out which you can. One thing is certain that starchy carbs like spuds, carrots, turnips are not good, and most grains especially wheat and oats are real baddies.
For everything you have at low GI, there is a low carb alternative. The low carb forum is great for ideas, recipes.

Again, welcome to our unique club, we are very special!