I sat in on an endocrinology seminar once (i.e. aimed at clinicians) where a well-respected diabetes consultant opened with a statement along the lines of, diabetes is worse than cancer; at least with cancer, there is hope of recovery in many cases, whereas there is no hope of a cure for diabetes, more likely a steady decline in health. At least Type 1, anyway. A bit grim, but he had a point, I think.
Just received after 8 months my care plan from care agency. Long running story, my carer is excellent but the office and manager couldn't organise anything. Have written twice to complain, met their "quality officer" a very untidy, scruffy young woman with very long painted fingernails and tattoos who informed me that when my carer was off she would come and do my care, whereupon I told her that she wouldn't as I wouldn't have her fingernails anywhere near me and if my normal carer couldn't come I would go without and my partner would get me washed and dressed before he went to work at 6.30 am. This was in February she had come to write the care plan. She told me she'd never met anyone with as many illnesses and asked some very unnecessary questions and could only explain that as it was on her form she had to ask and at no time did she ask for my consent. This week had yet another idiot from the office telephone me to ask some questions when I've told them never to ring me and to email. I'm deaf and can't hear very well on the telephone. He didn't even get my name right. So I wrote to their managing director, recorded delivery. He said he was ashamed of his organisation and is coming to see my husband and I next week, bringing the local manager who has ignored my letters with him.
Anyhow my carer arrived today with this huge folder and said its your care plan. We went through it and huge mistakes, bad spelling appalling grammar and lies everywhere. In the back was their care plan for my diabetes including the phrase
"Type 2 is caused by bad lifestyle and can easily be reversed by losing weight and eating a high carbohydrate diet" and referencing NICE guidelines. Neither of us could decide whether to laugh or cry and that was before we read the bit about my dog and said that he had to keep himself clean, be bathed regularly and not have bad habits! Had my carer not been so good I would have stopped the care even though I don't want to have to get up at 5.30 every morning so that my partner can get me ready before he goes to work.
Apologies for the long winded rant but is it true that not all type 2 can be reversed or go into remission? Does anyone else suffer from so called care agencies that don't care?
What hope is there if clinicians are comparing Diabetes with Cancer. Its just not on.I sat in on an endocrinology seminar once (i.e. aimed at clinicians) where a well-respected diabetes consultant opened with a statement along the lines of, diabetes is worse than cancer; at least with cancer, there is hope of recovery in many cases, whereas there is no hope of a cure for diabetes, more likely a steady decline in health. At least Type 1, anyway. A bit grim, but he had a point, I think.
Doh!"It's good your daughters not fat she's 18 now it means she won't get it". Heard this from my in law asked her what she meant. "It was on a poster at work" she told me I asked what exactly the poster said turns out it was talking about type 2 diabetes not the type 1 I have had since before I met them.
I've heard it all, and after 28 years, I'm (mostly) deaf to the ignorance. I do find that whenever I meet someone new, and they ask about my diabetes, I have to explain the difference between Type 1 and Type 2 (I know there are others, but let's not overwhelm the poor darlings), often in painstakingly simple terms. It's just par for the course, and I just accept it as one of those things we have to live with, like blood tests, hypos, rainy days, dropping your breakfast on the floor, stubbing your toes on the furniture...
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