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What can i do to get some serious help?

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loneranger

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Hi everybody, i have made a couple of posts up here so it's not my frist time. i'm very tired so pls excuse spelling mistakes lol. I was taken to hospital last week and was pretty bad, my sugars yoyoing from 27.5 to 19.2 (i think i was in and out with the world) The paramedic team were awesome but as soon as i got to hospital things changed.

Before i was admitted i was at my mothers and had caught a virus off my disgusting excuse for a brother, dont think i'm being harsh there he deserves it, i was in immense pain with fibromyalgia/ m.e, the pain escalating over four days, bed ridden. The paramedics looked through my meds and could only give me gas and air when i got to the hospital i was given morphine.

Now i had first of all an idiot dr questioning me over everything and i couldn't speak therefore i was frustrated and for those who have never read my posts i have a bit of a temper problem going on, so i was trying my best to scream at her, dont worry no words could barely come out of my mouth, it was as if i was trapped inside, that is beginning to happen alot, anyway to the point, i was diagonsed with a virus (shock!) and a urine infection, sorry about the bluntness there, and then i got a dr who was awesome and another who was great and because of my fear in hospitals (dont ask). They told me i needed to calm down, and had to flush my systems out.

Here's what i dont understand, i had no god **** sugar food or drink, i had been in bed not crashing out at an ice-cream parlour. Before that i had been to gp and asked about CHANGING MY INSULIN FOR THE MILLIONTH TIME, BUT CONSULTANT HAS TO DO THAT YES? So i still think my meds are doing me over, sorry about the grammar in this post too lol.

Now i find out that the d.b clinic has no new app for me (no letters, no calls) i have tried ringing but no, no help. My mother who is sick of me has tried ringing but nope, no go there. My question is i am sure these meds are hurting me, by not working, i have papers to show the consultant who wont see me to actually make him think that maybe i am right, no one will treat me for the fibromyalgia/m.e until the diabetes team see me, which means i am stuck with the pain and going crazy, i am sure that the pain also drives up my levels aswell as other illnesses (thats a definite) how do i get somebody to help me, i have gone to gps, and phoned clinics, now i dont know what to do.

It is hard to get out of the house and to go out and be repeatedly told bad news and unhelped is beginning to push me to that really horrible mood i get into and dont shake for months. Nobody is listening to me. I wouldnt mind but thers a woman over the road who gets taxis everywhere free on the council (our tax money) but i know she was told to exercise, and here's me barely keeping sane with every step i take.

I know i'm really moaning but i dont know what to do. I am waiting a report to appeal for my disablemnet benefit as dr messed that up. I guess my main question is does anybody know how i can get some proper help and if i am in pain, or angry most of the time does this mean my sugars will always be monopolised by this? Thanks, Loneranger.
 
hi, sorry to hear you arent doing too well,
im not really sure what to say as my diabetes care is done at my drs surgery and if theres a prob i just ring them, i would go and see your g.p again and calmly explain that you are not coping too well,
as for the high bloods ,some of it will have been due to u having a viral infection, what kind of diet do u eat on a daily basis and what kind and amount of insulin do u take ? lets see if anyone can advise u and help,
also i know what m.e/fibro is like as i also have that and i am attending a m.e clinic which is helping, i too suffer from many other illnesses so understand how it makes u feel,
if we can help u plz let us know and sorry i cant be more helpful but hopefully someone will be along soon with better advise :D
 
Sorry to hear your feeling so **** bud. I'm in the same boat just now looking at hospital for controlled pain relief
try another quack for a second opinion good luck
 
No i havent been rude. My consultant has not seen me for me to be rude to him. In fact if anybody has been rude its that guy. He was one of the people who called a liar and a hypacondriac, cost me two jobs and alot of friends and family. Life is stressful. No money, no home and my family hate me. But yeah i get what you are saying about being rude, which is generally why i dont do it until i have been thoroughly demoralised, which is pretty much about now.

This is my second doctor g.p wise. And no he has never changed my meds but gave me meds eventually for fibromyalgia pain so i guess he could change my diabetes meds if he wanted to which brings me to the decision that infact he has had enough of me aswell. I'm pretty much beyond help now as ydy night was another set of being blamed for stuff i actually cant help, you see i used to sort evrything out before i got ill and now because these idiots cant get along with life without me, the sounding board, the fixer i've been told i'm pretty much a usless selfish person so therefore i am in that mood again.

The last time it was for months so i'm not expecting anything much, i will try to think of something. Thanks for all the help you guys, the replies were great, am not going to be on for awhile, you guys take care x
 
Hi Loneranger

I was just wondering if you have considered using a TENS machine at all? They have come a long way nowadays and someone I know who has slipped discs and was taking a huge cocktail of serious pain medication, has found fairly good pain relief from using a TENS.

Once you get some relief from your pain, you should start to feel better moodwise.
 
Yes agree with the former post that your mood would be better once you get pain relief, and I also know that with fibromyalgia that a foggy brain accompanies it so makes it difficult to sort things out, and a lack of energy. I don't take insulin so cannot comment on that. You say that the insulin you use does not help you, do you meant that it is does not lower your blood glucose enough? People who use insulin will be able to help you more if you say what you usually eat. I do know that stress and infections raise blood sugar. I know my fibromyalgia symptoms cleared up when I began being sensitive to spray that comes out of aerosols (VOCs) and other chemicals so stopped using aerosols of any kind and purchased non- scented items for personal hygiene and cleaning products. You might find that this would help you too. I was diagnosed with diabetes type 2 three and a half years ago after losing a lot of weight over a few weeks and getting yeast infections and other symptoms and getting my blood sugar brought down made a lot of difference too.
 
I have seen these tens machines, but have not been put that way at all, no g.p advise. Although i would need one for everywhere? I have been told that the fibro/me clinic is one of the best in the country but i cant put names down on here.

My food, bran flakes, wholegrain toast, for breakfast, and also porridge, it rotates. Bg levels anything from down to 1.2 believe it or not to 20 odd, erratic yo-yo readings followed by lunch cheese sandwich, maybe some times with tomato, remember they are a fruit too so not all the time. Fruit intake per day? Maybe two pieces. Satsuma mainly. Lunch diagnosis, from3's to 20's.

Dinner, tonight i hit a stupid stupid stupid point and had a mcChicken sandwich, yes i am an idiot and have already thrown it up. But my wonderful family who wish i would just 'shut up' brought me that, not their fault, i ate it. Dinner most of the time is roast, not potatoes, always boiled, dont mind as i like them (wahey jump up and down, the loneranger actually happy about something, hi-ho silver lol! :) )

Dinner is like lunch but usually ranging from a higher 3, 3.7 3.8 to again the higher teens, if i dont eat at night i have a hypo and move around alot in my sleep and then that kills me more for the morning, so thats maybe biscuits, 2 to 3, or crackers. I will admit to you that this week past i have had two hot choc drinks before bed, one result for the morning 17. something, i forget. The other morning down to 2.4. Havent been very happy with the meds for a long time and a really helpful person pointed me out to somethings about my meds, not getn any warning bells anymore, apart from a nano second when thats it i'm either completly hypoed or hypered.

My fibro and m.e just semm to make it worse, i dont recall ever feeling so unintelligent, and apart from that and being able to look after myself and evrybody including the friends i thought i had who have now ran miles including my ex who now was a complete...well u get the idea, well apart from my brain i had nothing else to me and people are making it worse by caling me a liar, saying i havent done this and i'm stupid why dont i do that, to get that from my healthcare people is one thing, to be told i'm stupid and that i am depressing my own mother by people at 'home' is another.

I dont know whether i have an issue with having trouble verbally communicating with how really bad i feel is the problem, i was kind of brought up to believe crying was a no-go. So when i say i need help bad, because i'm not admitting that really i want some proper help it looks like i'm there for some mild relief. I don't know, but i did break my word and come back, glad i did. U guys and ladies have good points, so thank you, i really mean it. Ham, I hope ur doing ok too mate, sorry about the pain, hope you find a good clinic, if you do, lol, pls pm the name. U try and take it easy ok.
Everyone , i hope that you're all ok, once again , thanks, i really really appreiciate it , Loneranger.

Lol forgot, Hba1c 14, yeah 14 lol. Thats another thing that led me to meds not working.
 
theyre arent many m.e clinics sadly,
but m.e and type 1 can cause sugar probs, if u are nr an m.e clinic i would try getting referred
 
loneranger
wildly swinging bGs can make you feel awful.
Perhaps if you focus on getting under control,which you can do, it will help .
Try reducing your intake of carbs, that is bread, potatoes,pasta, rice, breakfast cereals. Many of these you may have been told are good for you, but if your BG goes up, they AREN'T.
You can either cut your portions drastically, or have something else, such as an egg for breakfast with mushrooms and no toast. You may need to reduce your medication to match. I can't remember if you said what you are on :(
ditch the bread from sandwiches and eat just the fillings. Bead is for ducks anyway.
leave out potatoes from your main meal and have double portions of greens.
If you steady up your BG, you'll probably find other problems more manageable
Hana
 
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