I'm firmly of the belief that whilst you can't let diabetes run your life you do have to hold it's hand constantly and take it with you. There is so much more to life but I'd like to stick around long enough to see it and to enjoy it. The odds are firmly stacked against us in all sorts of directions so control what you can as best you can!
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What is an acceptable HbA1c ?
- Thread starter Juicyj
- Start Date
I'm firmly of the belief that whilst you can't let diabetes run your life you do have to hold it's hand constantly and take it with you. There is so much more to life but I'd like to stick around long enough to see it and to enjoy it. The odds are firmly stacked against us in all sorts of directions so control what you can as best you can!
staffsmatt
Well-Known Member
Completely agree, you can't ignore it. It's finding the right balance for yourself that's the tricky part!
Diamattic
Well-Known Member
I would say that the only way to avoid complications is to always have your sugars in the 'non-diabetic' range. Including after meals.
HbA1c's are a handy tool, but keeping them low does not exempt you from complications later in life. Post meal, and short duration glucose spikes will damage cells while leaving your HbA1c relatively unchanged.
Being a ~3 month 'average', the HbA1c wont be effected by 1 or 2 hours of high sugars every day, but your cells will. So having that number as low as possible is always best, it is no guarantee.
My HbA1cs have all been around 5.6% since diagnosis, and i can you I still peak above 8mmol/l for roughly 1-2 hours after any meal with greater then 30g of carbs regardless of when i inject my pre-meal bolus. because of this i have just recently (maybe 3 weeks ago) given up eating more then 30g of carbs in meal, and only now have i be able to keep my readings below 7.8mmol/L around the clock.
HbA1c's are a handy tool, but keeping them low does not exempt you from complications later in life. Post meal, and short duration glucose spikes will damage cells while leaving your HbA1c relatively unchanged.
Being a ~3 month 'average', the HbA1c wont be effected by 1 or 2 hours of high sugars every day, but your cells will. So having that number as low as possible is always best, it is no guarantee.
My HbA1cs have all been around 5.6% since diagnosis, and i can you I still peak above 8mmol/l for roughly 1-2 hours after any meal with greater then 30g of carbs regardless of when i inject my pre-meal bolus. because of this i have just recently (maybe 3 weeks ago) given up eating more then 30g of carbs in meal, and only now have i be able to keep my readings below 7.8mmol/L around the clock.
saraD1
Member
I'm hypo unaware and I did the DAPHNE course and they recommend 6.5 mine at the moment is 4.8% and that's only because I'm not eating as I should.c
There's no average or "average" in HbA1C. It's a measure of glycation and when cells become glycated they stay glycated.
Hiya Sking - I was on Levemir earlier this year but it wasn't working so well for me so my consultant switched me over to Tresiba which has been alot better - to be honest I went to the dentist last week with an abscess and since the treatment my BG has come right down, so think it's been this rumbling away for the past few months.
I agree - i never have thought spikes a good thing - but the thing is how to do it safely long term - you are new diagnosed, possibly may have residual insulin and therefore the other hormones that come with that, and will have ok hypo symptoms . I see you are on the pump, and maybe a vibe is a CGM?
without these tools , and also after many years of type one controlled using very basic and inadequate tools mostly, it may not be possible to keep control like this. And as yet only a tiny proportion of Type ones in the UK even have a pump. I wanted one years ago, it was frustrating knowing i could feel a lot better, but without being able to. Here in the uk in the past you would have had to have a private doctor to refer you to a private consultant all on top of very high pump costs.
Also, for everyone, this sort of control long term - over many years - entails a great deal of effort , and enormous self control. I am fine until i walk into a supermarket - i have to avoid them completely.
i imagine more responsive systems will be in soon, hopefully, allowing the sort of control you describ, but their cost will be a problem at the beginning.
P.S. re carbs, again, i agree, the 30 CHO meal , max 40 CHO, was the advice given to me years ago! when i was diagnosed the advice was to keep meals about this, 3 meals of 30, or 2 of 30 max and one of 40 and at least 3 or 4 snacks of fruit or plain biscuit of 10 carbs to reach a total around 140 carbs, i strayed when the new advice came in, then came back to this, now a bit less.
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staffsmatt
Well-Known Member
The 30th year is the kicker isn't it!
Yes! And the 35th is not much better. Problem not helped by the supermarkets - they seem to compete to offer even more enticing high carb food. Or maybe i am just carb starved.....having a bit of sweet tooth does not help...
staffsmatt
Well-Known Member
****** I was hoping it would get miraculously easy next year . Super markets don't bother me so much, now chip shops on the other hand...!
Diamattic
Well-Known Member
@ann34+ - Yes I am newly diagnosed (15months ago), and yes, my doctor put me on a pump. But sadly an 'acceptable HbA1c' has nothing to do with 'effort' or difficulty, or time spent living with diabetes. Our body only sees damage or no damage, it doesn't get that someone is trying their best and its really hard, so it won't give that person complications.
I understand that in the long term I (or others) may not be able to maintain my current level of control, but that doesn't change what is acceptable, it just means that my HbA1c is no longer acceptable, at that point it will suck seeing that on paper, but it will either mean i need a large change in my life, or learn to live with a 'non-acceptable' HbA1c and what that means health wise.
Regardless of what we deem as acceptable everyone's bodies reacts differently, and its still very possible to have a 6.5% and get complications, or early death. So someone saying "X.X% is acceptable" doesn't really make it so. We just have to shoot for as close to normal as possible, and the farther you are away from that, the higher the risk.
I understand that in the long term I (or others) may not be able to maintain my current level of control, but that doesn't change what is acceptable, it just means that my HbA1c is no longer acceptable, at that point it will suck seeing that on paper, but it will either mean i need a large change in my life, or learn to live with a 'non-acceptable' HbA1c and what that means health wise.
Regardless of what we deem as acceptable everyone's bodies reacts differently, and its still very possible to have a 6.5% and get complications, or early death. So someone saying "X.X% is acceptable" doesn't really make it so. We just have to shoot for as close to normal as possible, and the farther you are away from that, the higher the risk.
one can only try ones best - that was me when i was younger - it was much more than a week every month, daily insulin needs going from 17 to 43! i did graphs to show the docs but no one was interested., they were well aware of the issues, there was just nothing they could do other than put women on the pill. - more strips would have helped as we did not get many then, but not sure the pump could have helped me much other than even things a bit. and reducing some of the hypos/ making adjustments easier....a closed loop system is needed...... it may not be what you want to hear, but if you continue having teeth infections having a lot out may be the way to go - i had easier control when i had all my molars out, i wish i had done so years earlier
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Hi, Diamattic, i agreed with your original post - i imagine you were answering the question rationally, and using the word 'acceptable' in a particular way, i agree we dont know what the level of HbA1c is which will prevent or at least reduce complications in any one individual, and that, anyway, HbA1c does not measure temporary spikes, which may harm some, and that the only way is to keep blood glucose under 8.0 at all times in an ideal world.
But its not an ideal world - speak to any diabetic organisation careline, or meter careline - a large number, i think still a majority, of type ones in the uk at least, do not reach the target. I think you are in Canada - i dont know the situation there?
I was using the word acceptable more in the everyday sense as 'acceptable to the particular individual' and i cant split that off from the effort thats willing to be made /difficulties that are able to be put up with, etc or what is acceptable in order that the person prevent hypos, etc, . i personally treat the HbA1c as a workable number to aim for, as long trials have shown the figure will greatly lessen complications in a large proportion of people, but i factor my individual issues in to my decisions.
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ButtterflyLady
Well-Known Member
That's the way I view HbA1c too. It's an indicator, a target, but people can only do their best. Compared to T1, people with the common or garden variety of T2 like what I have, have it easy. I can work at getting my HbA1c down and I have a good chance at achieving that. But from what I have read online and seen in my T1 friends and family, it's complex. There are many things that make it hard to lower HbA1c in T1. To all of you who are doing your best... well done.
I think there’s a degree of pedantry clouding the OP. Saying 6.5% is an acceptable HbA1c level is, in my opinion, perfectly ok. You will be diagnosed as diabetic if you are over 6.5% thus, if you are not over, then your level is acceptable.
Now, technically, 6.0 – 6.5% will get you a pre-diabetic diagnosis so you could argue that the acceptable level would then be 6.0%.
Further, a “normal” persons HbA1c should be <5.5% so you could further argue that this is the acceptable level.
I would rule out that last one as diabetics are not “normal” in pancreatic circles. I would say anything 6.5% or under is acceptable. For individual cases a Doctor may agree that higher figures are acceptable and these can only be judged on an individual basis. The risks run by someone having a target of 7.0% may be far outweighed by other conditions they suffer from. You just don’t know.
Aiming for normal levels is the obvious goal for any diabetic but no diabetic can do that safely without a CGM to tell them they are not suffering regular episodes of hypo’s. Without that evidence, then I would argue that sustained HbA1c levels of 5.4-5.7% would only be achieved through numerous hypo’s. Near normal readings suggest that BG levels are almost never raised for prolonged periods of time leading to glycosylation which simply flies in the face of what diabetes is and does.
In the first two years after diagnosis I was never above 6.3% and I know I suffered regular hypo's.
A lot of people with sub 6 A1Cs are doing it via low carbing, you don't get the highs and the lows, if you have a cgm or Libre on you can see how little eating a meal affects your levels. My A1C is 6.1 and should be in the 5s when tested next week if my software is correct. Very few hypos, probably under 10 in 15 months of taking insulin and most of those were late 3s. I don't have a CGM and have only had a Libre on for 28 days just to see what's what. No pump either, MDI 5 or 6 times a day on average.
Not everybody wants to or can low carb, each to their own, but I am aiming to keep mine in the 5s.
Ali
Not everybody wants to or can low carb, each to their own, but I am aiming to keep mine in the 5s.
Ali
My other concern would be that without a CGM how do you know your hypo awareness hasn't diminished? I could go see my Doc and say, yay no hypo's for ages now but in reality could be having several without noticing.
CGM's for all.
It's been interesting for me. Libre plus switch of insulin from Lantus to Levemir has resulted in improved Hypo awareness , in that I generally feel them now at around 4, where previously I was at around 3 and better Hba1C. I put this down to two things:
1. Catching drops earlier and treating them before they are low.
2. Having a much more even absorption profile with Levemir than I ever achieved with Lantus.
1. Catching drops earlier and treating them before they are low.
2. Having a much more even absorption profile with Levemir than I ever achieved with Lantus.
Agreed, i remember a study where children first had some form of overnight glucose monitoring overnight for several nights in a research study - i think the children were in hospital for the tests - and a large proportion of them were dipping too low over some of the nights, sometimes several times and sometimes for quite long periods, most had no knowledge that they had. I dont remember the name of the study but it confirmed my experience - when, some years into diabetes, i stopped waking in the night with good hypo symptoms, I tested more overnight for a short while, and i realised I also was dipping too low a lot - i found it very hard to wake when i was around 3.0. or lower. I just had to raise my numbers as i felt my brain was at risk - without any CGM and an alarm, or even a pump to lower base rates at specific times , I was literally at sea with no protection and no compass.
