Inchindown
Well-Known Member
5.2 at 0700 this morning. After a 5.5 at bedtime last night.
5.7 this morning…and the heat wave continues and warnings are back in effect. Joy….
Actually it’s not awful as it cools still at night.
Good workout this morning, half an hour walk, 20 min on the bike, shoulders, chest and biceps. Just finished a dog walk.
Apparently eating as I do, very low carb, is creating issues with our upcoming Japan trip….the restaurants that are on our itinerary are worried. I’m fairly fed up and basically said if they can’t give me a meat skewer and some veg I’ll just not the eat find some food elsewhere. They rely so heavily on rice and noodles. Sigh…I really don’t mean to cause any issues and I feel rather embarrassed to be causing confusion…I really don’t like earring from a set menu, luckily there are only five dinners that are “set”
Waiting on a call back from our tv and internet provider to renegotiate our contract. It’s something I do every two years and I hate it! Dealing with the devil…
hope your appt goes well. the results have likely hit someone's desk. when they get around to reading it ... will likely be either 1) a quick read of notes/tests prior to appt times 2) directlybefore your appt with a quick scim read or 3) during your actual appt. nhs can be bad at times equally it can be exceptionally good really depends on how busy the consultants schedule is ... if its libre sensor check the clinican notes you may have something mentioned in thatSix point four when still in bed eight point one currently
Today I visit the nhs endo
Several weeks ago I had a pancreas scan and multitude blood tests. I followed these up with a letter asking for the results so today’s meeting would be more meaningful. Nothing in reply. This seems to be standard NHS
I’m hoping it’s simply a silo of silence and my results have actually hit someone’s desk .
I’m taking down print outs of my daily graphs which clearly show I’m stable at night at around six then rise to eight or nine when active .
Chat gpt advises I take all this info to today’s meeting. It also reckons I should talk about the possibility of a morning shot of long lasting insulin to go with my nighttime one.
I love the technology and await what any human endo reckons …..
Probably they do wait until the last minute to respond to FOIs, time is needed to assess if the FOI can be answered. Some requests can be "massive" with many hours of work involve so very time consuming particularly if not all the information is in one place. So some requests can be refused with reasoning. Often requests will be from marketing agencies and survey companies. These were generally refused because the information was considered commercially sensitive. I was around when FOIs were in their infancy so things may have changed and as they are much more popular, I think most companies nowadays probably have a dedicated member of staff to deal with requests. All genuine requests need to be answered so yours must have been assessed as genuine and it is good that they responded. Of course, the information is only as good as the source data and human recording of data as not always accurate, as I know from my own NHS record.5.7 bit higher than recently no idea why loads of exercise yesterday went to bed at 4.8. so confused.
on another note i got a reply for my FOI request. Do the NHS always wait until the VERY LAST DAY before they bother their shirts to reply?
"Request:
Which hospitals can do hba1c alongside lipid profile tests via finger prick rather than
having to go get done via vein access."
the reply: "There is limited availability of finger prick HbA1c analysis. It is available in some Diabetic
clinics: a, b, c, d" 3 out of the 4 clinics state children only. Wonder what the DSN at the clinic I attend is going to say... I emailed her the response. She is at 2 diabetic clinics that offer that service and swore blind that she has never ever heard of hba1c getting done by a fingerprick :O
For the lipid profile fingerprick part of the reply "We can tell you there is no general availability of finger prick Lipid analysis in NHSxxxx other than for screening patients in clinical research."
Wondering how to go about signing up for some 'research' going to ask that would save days of nightmares, panic attacks, hyperventalating, passing out unable to look at draw site for several weeks afterwards.
No further forward with appt for help with the phobiaconsultant wont look at the privately done lab results got done recently via fingerprick method.
Fingers crossed for some rain for you hopefully emergency services will be able to get the fire under control shortly5.7 this morning. A very Smokey morning there, sadly there’s a huge fire burning south of us and the smoke is engulfing the entire province. The sunrise was red, the skies are dark and , at this time, it’s getting worse as the smell is increasing. The main highway is closed between us and the lower mainland as the fire has jumped the road. It sucks!
sorry to hear your appt didn't go as you hoped. not particularly surprised didn't look at cgm data. couldnt get endo to look at private fingerprick hba1c & lipid results. imo definately should of at least looked at the data you had afterall nhs does support and use cgm data for type1's and indeed type2's when multiple insulin injections per day. might be worth asking for a second opinion? saying that some dr's will just try cover each others back.. especially if colleagues in the same hospistal so may not be useful as hope.Currently nine point seven
Saw endo yesterday. Was told he disagrees with my private endo and that he can’t see any reason for me to have insulin
He wouldn’t look at the daily graphs I’d printed and told me, like I didn’t know, I was always in range ( between four and ten)
He told me I should eat more carbs like carrots
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