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What's the point?!

Discussion in 'Children & Teens' started by why-me?, Mar 13, 2013.

  1. why-me?

    why-me? · Member

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    I've had diabetes since the 26th may 2010, at first the doctors had basically managed to scared me into controlling my diabetes. I was really committed at first and I taught my friends and family what I had to do and they all accepted it. It was only a couple of months down the line that I started to realise how much of a big impact diabetes has on my life and I feel like it controls me! I can't be who I want to be or be like everyone else because of it. Even though all my friends accept it I don't! I've just turned 17 and i like drinking with my friends and having a good time but I'm fed up of people worrying about me! My parents and friends constantly reminding me to do my injections. I'm always upset and cry all the time because of my diabetes but I feel as if I have no one to speak to, my friends try and help but it's so hard for them to understand how it feels! I'm so embarrassed of my diabetes that I hide it from everyone. My parents got off my back about my diabetes about after a year because they thought it was under control but in fact it's the opposite. I haven't tested my blood in about a year and I often miss injections because I'm too embarrassed or don't have the time. I hide the letters from the hospital because I get angry and annoyed when I have a doctor who has no idea what it's like to live with diabetes tell me how to live. All my diabetes has ever done is make my life difficult and make me miss out on things! It's the worst thing that's ever happened to me and I always wonder why it was me?! I can't control it and I don't think I ever will be able to. I'm fed up of crying and being upset and hiding everything from everyone. Sometimes I even forget I'm diabetic and that's the best feeling ever. I have no one to talk to and feel like no one will take me serious because of my age.

    I wish everything could be different, I wish I could be like everyone else, I wish my diabetes would just go away, I wish people would understand, I wish it wasn't me!
    But looks like none of that will ever happen! Because it is me and I have diabetes and I just have to accept the fact that it's always going to have control over my life!
    If anyone feels the same or wants to chat I'm more than willing! Would be nice to speak to someone my age!
     
  2. Bodybuilder type1

    Bodybuilder type1 · Well-Known Member

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    Wats the story man
    Diabetes can be a son of a *****
    When I was your age I was convinced I was going to die from diabetes that I would go asleep and never wake up I even had a letter wrote out and left in my dresser just in case .life was rough I was a skinny fecker and got picked on all the time it was rough I contemplated killing my self because I was so fed up of life ,so I decided that I would give it one more try give it my all and if it did not work I would give up .so to stop the bulling I knew I had to get big but there is no way in hell you can get big if your diabetes is out of line so I studied diabetes I learned everything I could about it and exercised like a mad man I went from 8stone when I was 16 to 11 stone when I was 17 to now 13,1stone with 6,0 percent bodyfat .diabetes actually saved my life when I realised it I had to become interested in diabetes and it would actually benefit me and now I love having diabetes it made me into a strong confident person . You must use your weaknesses to your advantage and you must accept that you have to take a lot of blood tests I take at least 12 blood tests a day every day no matter what try not think of it as a bad thing try think of it as a good thing play the game man don't let it play you

    Also diabetes has never stopped me from doing anything when I got it under control I'm a drummer and have played at festivals iv travelled with a back pack all over the world I have a house and a baby on the way in 5 weeks life can be great if you put in the effort
    NOTHING WORTH HAVING EVER CAME EASE TO ANYONE ESPECIALLY DIABETICS
    :)


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  3. lottiep

    lottiep · Member

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    Hi there, you're not alone!! Not only do I have type 1 diabetes diagnosed 2 years ago whilst trying for a baby (which i had to give up hope of conceiving) but I have had uncontrolled epilepsy since I was 15 years old so I know exactly where you're coming from!!
    There are people you can talk too and I implore you to seek help. I've hurt the people who care about me most by doing some very stupid things in my time and I would give anything to be able to take back the pain I've caused. Start by talking to your GP, the diabetes specialist nurses, let them know how you're feeling, if they don't know they can't help you!
    It is ****, it does feel bloody unfair and the question why??? continues to get asked and not answered. I struggle every day to accept my situation but not taking your insulin and medication is only going to make things worse. Please please talk to your GP, there are people out there who will listen, will understand and who will help you.
    You've got a fantastic life ahead of you don't write it off just yet!! :)
    Keep smiling xxx


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  4. why-me?

    why-me? · Member

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    It's lovely to hear that diabetes hasn't always been bad for both of you and I'm hoping that soon I can see some kind of up side to it! Thank you for your replies really nice to hear from others experiences. I'm too scared to speak to the gp as I don't know how to even start to tell them and I'm scared of what they'll say, I've been thinking about going for a long time just can't bring my self to do it but realising how much it upsets me makes me realise I need to do something!
    Thank you for your lovely replies xx


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  5. Just Laura

    Just Laura · Well-Known Member

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    I don't have diabetes (my 5 year old does) but I'm a foster mum who has worked with many many young people of all ages with lots of different things to cope with.

    Pretty much all of them have found it difficult to sit down and offload face-to-face... I know I certainly would and I'm (supposedly!) all grown up. It may not be your thing at all, but why don't you take the post you first wrote to the GP and just let them read it? You expressed how you're feeling really well and it would save having to go over it all again - I imagine it took a lot of balls to put that post up in the first place.

    Just a suggestion....

    Plus there seems to be some really cool people your age on this forum and I'm sure they'd be more than happy to chat - they probably feel the same themselves or have at some point.

    x


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  6. why-me?

    why-me? · Member

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    Thank you for your reply Laura:) this is the first time I've ever really wrote down in words or even told anyone how I feel. Thank you for the suggestion it seems like it may be the best way for me to even try and move forward and ask for help. I've read a lot of the post from others my age and it actually surprised me how many feel like their in the same position as me.
    You must have a very brave 5 year old couldn't imagine what it would be like at such a young age!
    xx


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  7. Just Laura

    Just Laura · Well-Known Member

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    I actually think it must be harder the later you're diagnosed... Can't imagine how you all feel and how you find the strength to keep on keeping on.

    But you must look after yourself (yawn!); you're the only one of you this world has.

    Let us know how you get on. Don't often have anything marvellous to say but here if you ever want to blab. As is everyone else on here.

    x


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  8. why-me?

    why-me? · Member

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  9. Sheppie84

    Sheppie84 · Well-Known Member

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    Ok so I'm not 17 and I don't have friends/family that are really aware if what diabetes is but I feel exactly the same as you. I hate diabetes, I wanted to book a holiday for me, my husband and my daughter but I just don't know how to manage my diabetes in that situation. Family meals are a drama too.
    I hate that I can't just do things and that everything needs to be planned and I have to be strict with my diet, my weight, my exercise, etc.
    I have recently been advised to go a gluten free too.
    Sometimes I just take a weekend off diabetes and GF diet - stop testing, eat what I want, etc. but I end up paying for it by feeling awful for days afterwards!
    I do agree with previous posters though, maybe we need to learn more and take control of the diabetes instead of it controlling us.
    Right now taking control of diabetes seems harder and scarier than just trying to ignore it.
    I don't think these feelings are unusual in newly diagnosed people; I think it's a huge thing to deal with and you (and I) will deal with it. I know I need to just face this head on, right now I'm just looking for the courage I need to tackle diabetes and show it who's boss.

    Xx


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  10. why-me?

    why-me? · Member

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    I've also been told to go gluten free and I can tell you that will never happen! I hate the gf food and glutens in everything! I find it really difficult remembering to test my blood as I'm always eating on the go or out with friends and it's the last thing on my mind. I've been on holiday a couple of times with my diabetes I've been skiing and to Egypt both two totally different extremes of weather and I did find it difficult to manage it but I'm so glad I never missed out on those experience because of it. You should definitely book that holiday you want because you'll end up hating diabetes even more for the fact it stopped you doing that! You just have to be organised and confident in yourself that you can cope with it abroad. The insurance is ridiculous though so may want to shop around for that! x


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  11. Sheppie84

    Sheppie84 · Well-Known Member

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    I didn't even think about the insurance. Where did you get yours from?
    Xx


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  12. MCMLXXIII

    MCMLXXIII Type 2 · Well-Known Member

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    Most bank accounts now come with extra services such as mobile phone insurance and travel insurance, free foreign currency exchange etc.
    Mines called first directory with first direct (HSBC).
    Its paid for itself twice over with my car breaking down and was towed to the garage.
    I told the bank also i was type 2 and queried travel insurance cover particulars and they said i was no different to anyone else in terms of medical cover.
    I would guess its a different story for type 1 sadly (premiums)
    Worth a check though maybe.
    Nice avatar by the way, :)
     
  13. why-me?

    why-me? · Member

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    I went with top dog insurance and they gave me a price of £68 for two weeks in Egypt for my diabetes! However, we did shop around a bit before, we found comparison sites helpful :) xx


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  14. Picci

    Picci Type 1 · Well-Known Member

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    London Victoria provide good cover without overloading.


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  15. Jakelanning

    Jakelanning · Member

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    I've felt exactly the same. It's good in a way to know that I'm not the only one. I've seen psychologists and councillors loads of times. It's had a massive affect on my life and I never used to test my blood. All I can say is that it gets easier. Testing your blood is important and yes it is inconvenient all the time. I turned 20 in January and have had it about 3 years. I have up days and down days and have been in hospital multiple times because of poor control. It does get easier and I'm always up for a chat with someone my own age :)


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  16. Jakelanning

    Jakelanning · Member

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    Surely everything and anything can kill you? It's about making your quality of life better. Before being diagnosed I felt awful and couldn't live normally. In the 3 years since being diagnosed I have felt better health wise. Obviously I have up and down days but its all about trying to control your diabetes and not letting it control you!


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  17. Very lost 101212

    Very lost 101212 · Active Member

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    Thank you visitorf1 for your wise words. Im sure none of us have ever thought this deeply, and needed this revelation of common sense. Must be great to spread the love and joy. Really needed this tonight. Especially when I saw my little boy who's type 1 read
    what you shared. A job well done. NOT.
     
  18. GraceK

    GraceK · Well-Known Member

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    I don't think it's diabetes that saves anyones life ... course not ... but being diagnosed can save or improve lives. Undiagnosed diabetes that goes on for years doing it's damage beneath the radar - is ****.
     
  19. Very lost 101212

    Very lost 101212 · Active Member

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    I agree certain posts are unsuitable. I guess thats what we as adults need to appreciate. I really hope you find that control can improve your long term future. Wishing you all the best.
     
  20. Very lost 101212

    Very lost 101212 · Active Member

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    This forum can be very useful. Perhaps I reacted too harshly as I myself am on an emotional roller coster. I truly believe knowledge is key to a better understanding of this condition. Don't isolate yourself, people here do help, as you,ll always get an honest opinion. Take care.
     
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