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Wrongly diagnosed

Wayne18000

Wayne18000

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When I ended up in hospital with high bg readings I was told I was type 1. A month later I saw the consultant and was told I was probably type 2. A few weeks later I saw dietician nurse and she thought I was type 1! Few weeks later saw another diabetic nurse who said I was type 2! Has anyone else had this uncertainty about being type 1 or type 2?

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Hi @Wayne18000 . No . I went to my GP , did a urine test that evening and the next morning i injected insulin for the first time.
Have been injecting ever since. I suspect that the protocol has changed over the years.
 
If being diagnosed with a UTI and not given a blood test is a wrong diagnosis, yes.

But if we are talking about which type of diabetes, I think they got that right (because the UTI symptoms were not clearing up) by chance: "despite your age, it must be type 1 because of your size." No test to prove it and not very scientific.
 
Oh yes. High blood glucose and ketones at diagnosis - you're type 1.
A month later, no insulin, but tablets not working - you're type 2.
Six months later, needing insulin - no, type 1 again.
Referral to decent diabetes clinic - lets do some tests - antibodies present, so immune response, but slow onset.
Definite diagnosis - type LADA.

Earlier this year asked consultant for official classification. I am ...
Type 1 because immune reaction has now stopped all pancreatic insulin production
Type 2 because I have severe insulin resistance and
Type LADA because of slow onset.

Confuses the hospital every time I get admitted.
 
I was initially told I was type 1 and would be "injecting insulin for the rest of your life " when I then asked the doctor why some of the nurseson the ward were saying I might be ok on tablets / diet? She replied " dont be stupid, that would never work youre only in your 20's!" When I pointed out that I was actually 39, she had the cheek to ask me if I was sure, before finally acknowledging that she was wrong- she prescribed Gliclizide and said shed see me again in 7 days to review how it was working. I never saw her again and that was the moment I became oficially defined as type 2 - 20 years on they're not sure any more
 
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Well I had from one doctor and the practice nurse you are not diabetic for over about two years, then from new doctor yes you are diabetic T2 and have been for some while, then from consultant at diabetes clinic no you are not T2 you have drug induced diabetes.
 
Hi. Mis-diagnosis is very common as many GPs, the NHS and even DUK (not this site) don't really understand the types and the tests for them (sadly, yes). I was mis-diagnosed as T2 when a LADA. First if you are slim and a low-carb diet doesn't really control your blood sugar even with some or all of the tablets then you are almost certainly late onset T1. If you have excess weight with blood sugar that a low-carb diet starts to control fairly easily then you are more likely to be T2. The main test to distinguish the two types is the c-peptide as it measures your own insulin. If high you are T2 and if low you are T1. The GAD antibody test if positive proves you are T1 but if negative it proves little as there are other causes of T1. My points are not conclusive but a good general guide.
 
Gosh, reading all this makes me feel very grateful to have become diabetic at a young age and a very straightforward diagnosis!

I certainly wouldn't be able to handle an uncertain diagnosis.

Hugs all round, folks.

:)
 
Wayne18000 said:
When I ended up in hospital with high bg readings I was told I was type 1. A month later I saw the consultant and was told I was probably type 2. A few weeks later I saw dietician nurse and she thought I was type 1! Few weeks later saw another diabetic nurse who said I was type 2! Has anyone else had this uncertainty about being type 1 or type 2?

Sent from my SM-G935F using Diabetes.co.uk Forum mobile app
Click to expand...

I am wondering if this was just a lag in people updating your computer records?

The hospital will have entered T1
A month later the consultant said T2
The dietician may well have just looked at the screen and seen T1 because at that stage the consultant's diagnosis had not been entered.
Then the records were updated.
Your nurse looked at the screen and saw the updated record of T2.

I think that may explain matters. I can't see any other reason, and I would believe the consultant over and above anyone else.
 
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