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YES!!!

Yet another sh!tty plan. Honestly, if I were with you, I would be stamping my feet and letting all and sundry know that unless you got the care you have every right to, I will hold them responsible for your eventual poor health and will sue the pants off them! I'm so bloody angry for you.

Please don't wait to be told what to do. Insist on what you want. You did have a reaction to that insulin and that is important. Is there anyone at all other than your husband that could help?
 
Oh BF,

How Awful, something has definately had a reaction. I hope you find an insulin to help bring your BGs down and not make you poorly.
I have never had any problems like that with either Levemir (long acting) or Novorapid (short acting)

Sending hugs,

Lucy. xxx
 
+1 wiflib

Was just about to write more or less the very same, these people need to pull their finger out, and fast!!
This just isnt good enough, I would be scared stiff if I was in your shoes, not only will your bg levels rocket if you are left without insulin for such a long time, but seeing you had such a bad experience when you last used insulin you will now be doubly nervous of using insulin again esp if there is nobody around to watch over you.
Go and play up just a little bit, give them a call, dont wait for them to call you.
I really feel for you, these people want sueing out of extinction!!!!!!
Good luck.
 
Thanks guys - you've no idea how much I appreciate your support.

I've only got hubby to help me. His mom moved to Spain a few years ago so we don't see her a lot and sadly a lot of people I thought were friends have vanished; funnily enough that happened when my health declined.

I don't want to be without something that I NEED to be taking for long; at the same time I am worried that I'll end up back in A&E again but the guy from BDEC told me there's no way I can be allergic to insulin and I won't ever be allergic to insulin and the doctor in A&E that saw me was clearly a junior and didn't know what he was talking about.

I have two hours before BDEC close; if they haven't called by 3:30 I'm phoning them again. If I get no joy I'm calling my surgery and hassling them. If I still don't get any help then I have no clue what to do - that's my options exhausted.

I'm tired, I feel like I'm getting the flu and I am really losing any fight I had.
 
Oh my god, I feel so sorry for you. I agree with Wiflib, you need to start stamping your feet and demand something is done, do let us know how you get on. All the best.
 
Thank you dawnmc :)

I'm gently stamping my foot - I've had to chase BDEC three times this afternoon.
They said they had faxed the new prescription to my doctors surgery and the surgery haven't had anything.
I still don't know whether I'm meant to take the Lantus exactly as I did the Humulin and I still don't know if I'm meant to carry on taking the three oral medications as well.

So I've phoned them AGAIN and the lady I spoke to said she will personally fax the letter to the surgery and get a nurse to call me about my other queries.
Considering BDEC close in 30 minutes I am not holding out much hope.

If I don't hear back I'm sorely tempted to start getting myself ready to self-admit myself to the hospital until I'm treated. I'm terrified of hospitals but if it means I get help then I'll have to deal with the phobia.
 
This is one of the most dire situations I have ever read about. My heart really does go out to you. I'm with Libby, kick up the biggest fuss you can and demand answers and treatment appropriate for you. A&E may well end up your best chance, even with your phobia, but I suggest you may have to refuse to move from there until they do diagnose and treat you properly. What has our NHS come too?

Good luck BF my thoughts are with you.

Joanna.
 
Bless you, Defren, thank you.

I'm just shocked about all of this, surely they NHS recognizes that any form of diabetes needs to be treated seriously and with respect?

I've chased BDEC again just now who have guaranteed me that the fax will be sent and that someone will call me to help with the questions I have. They close in 8 minutes.
I felt really low on Sunday and I'm starting to feel much the same today. I just don't understand how this can be allowed to happen.

I have been keeping notes, though, which I may need as I'm wondering if I have grounds for a complaint via PALS.
 
BF - I have hardly been able to concentrate at work this afternoon, thinking of you in that horrid situation. I wish I could help somehow, I think we all do.
Have you no friends nearby that could take you to the surgery or A&E, you are so isolated, you need support, this is silly.

You are in my thoughts, please stay strong, I know you are exhausted, but you need to kick up a storm, if nobody calls, please go to A&E.

Big hug x x
 
BF - don't let them tell you that people can't have an allergic reaction to insulin. It's rare, but it DEFINITELY happens (just try googling it). You need to be dealing with different people fast, and A&E may be the best option of getting this. But you HAVE to be insistent (DON'T lose your rag, though -- be reasoned in tone but be really emphatic -- say that you're not happy with how you are being treated, keep putting people in your position ('what would YOU do...'; 'how would YOU deal with it if....'). My sister worked in A&E for many years -- for best results she advises insistent and naggingly determined rather than kicking up a storm (which makes them switch off).
Sorry you're having such a dreadful time. DO keep us posted.
 
Another update:

BDEC called me and sort of answered my concerns.
The nurse I spoke to said that I take the Lantus exactly as I took Humulin - so 24u at night rising by 2u every third night.

Apparently the nurse that gave me the Humulin (who was also the nurse that took me off of the Metformin and Sitagliptin because they weren't lowering my BS enough) had marked me down as "intolerant" to Metformin. I'm not, it just didn't help my BS; so the nurse I spoke to just now was confused and trying to fob me off by telling me she'd talk to the other nurse and get him to call me tomorrow.
I said no, so she told me to stop the Sitagliptin but carry on the Metformin, 500mg x 4 daily.

My GP have finally got the fax but now I have to wait for a doctor to call me to okay it?!?
Surely if it's come from the flipping hospital all they need to do is sign it and give it to my husband when he goes in on his way home?
I asked what happens if the doctor doesn't call me and was told that I'd just have to not have insulin tonight...

Anyone else feel like banging their head against a wall?
 
I have been reading what has been happening to you with dismay. I don't know about banging your head against a wall BlindFaith, personally I would like to bang your so called Health Team against a wall repeatedly.

One thing I do know is that you will come out of this a far stronger person who won't stand being messed about. Keep fighting for the proper treatment, I have already seen you taking more control and you know it will be worth it. :thumbup:
 
desidiabulum said:
BF - don't let them tell you that people can't have an allergic reaction to insulin. It's rare, but it DEFINITELY happens (just try googling it). You need to be dealing with different people fast, and A&E may be the best option of getting this. But you HAVE to be insistent (DON'T lose your rag, though -- be reasoned in tone but be really emphatic -- say that you're not happy with how you are being treated, keep putting people in your position ('what would YOU do...'; 'how would YOU deal with it if....'). My sister worked in A&E for many years -- for best results she advises insistent and naggingly determined rather than kicking up a storm (which makes them switch off).
Sorry you're having such a dreadful time. DO keep us posted.
Click to expand...


I agree completely, but when I said to kick up a storm I didnt think that Blind Faith would be doing so in an offen ive way.
 
Hello BF, this is just awful for you and your husband who is obviously very concerned about your health. Your whole situationis just shocking, but the advice from the others is sound, insistance is the key, and try to keep calm. hopefully there will be an answer from your surgery soon, and remember although they are closed to patients the staff will still be working.

keeping you in my thoughts, good luck Kate x
 
WhitbyJet said:
desidiabulum said:
BF - don't let them tell you that people can't have an allergic reaction to insulin. It's rare, but it DEFINITELY happens (just try googling it). You need to be dealing with different people fast, and A&E may be the best option of getting this. But you HAVE to be insistent (DON'T lose your rag, though -- be reasoned in tone but be really emphatic -- say that you're not happy with how you are being treated, keep putting people in your position ('what would YOU do...'; 'how would YOU deal with it if....'). My sister worked in A&E for many years -- for best results she advises insistent and naggingly determined rather than kicking up a storm (which makes them switch off).
Sorry you're having such a dreadful time. DO keep us posted.
Click to expand...


I agree completely, but when I said to kick up a storm I didnt think that Blind Faith would be doing so in an offen ive way.
Click to expand...

Sorry -- I wasn't intending to criticise at all what you said. I was just so conscious of how outrageously Blind Faith has been treated that I know *I* would have been losing my rag on her behalf!
 
Oh no, no need to say sorry, I didnt feel that you was criticising me at all, like you I am angry at how poor BF has been treated.
Please dont worry, I have read your posts, you are far too nice to upset anyone.
 
Okay...
At one minute to seven the doctor called me and had no idea why she was calling me or what I needed.
I had to explain everything all over again.

She then told me that as they were now closed (her computer actually turned off while she was trying to read my notes...) I would have to wait until tomorrow for the new prescription to go to the pharmacy.
And to that I said an emphatic "hell no" and said it could be faxed to the pharmacy so it can be collected tonight.
She heaved the biggest sigh I've ever heard and said she'd do it.

The pharmacy called me when it got in (my pharmacy are brilliant, they all know me there now lol) and told me she'd sent the prescription through but only for ONE PEN.
What the *&%$^£ ?!?!

Bless them, though, they've sorted it so I can have what I'm meant to have and the pharmacist is calling the doctor tomorrow to make her do the prescription correctly.

Hopefully this will be the end of it all and the Lantus will work without trouble.
I will keep you all update and I'm sending big hugs and non blood sugar spiking e-cookies to all of you.
Thank you xx
 
Well done with your 'hell no'! That's the way!!! Will keep fingers crossed for you -- you're doing brilliantly fighting it through like this.
 
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