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Zultophy
- Thread starter barbra
- Start Date
Taighnamona
Well-Known Member
- Messages
- 85
- Type of diabetes
- Type 2
- Treatment type
- Insulin
Hi, I’ve been on it since late December likewise on Victoza till it wasn’t available.
I started on 16 units and titrated up every three days to 22 before my glucose levels came within ‘normal’ range. However I also started to cut down on carbs and found myself needing to titrate back down to the original 16 units to avoid hypos.
I got a free sample of Libre 2 and found that invaluable in helping me manage my carb intake/ identifying which foods caused high glucose rises. Lentils was a surprise!
I’ve honestly felt ok on it. A bit of a bother to register with DVLA and commit to two finger pricks per day
I’ve now started self funding Libre2 for a couple more months until I’m feeling well established in reducing my carb intake.
My time in range is now 95% whereas prior to using Xultophy it was around 50%.
barbra
Active Member
- Messages
- 33
- Location
- essex
- Type of diabetes
- Treatment type
- Non-insulin injectable medication (incretin mimetics)
Thanks,good to hear your managing on it.
I've started on 10 & nurse said if numbers not low enough go up by 1 click until I get it right but to stick on 10 the first couple of weeks.
Was so worried about starting something new
I've started on 10 & nurse said if numbers not low enough go up by 1 click until I get it right but to stick on 10 the first couple of weeks.
Was so worried about starting something new
Taighnamona
Well-Known Member
- Messages
- 85
- Type of diabetes
- Type 2
- Treatment type
- Insulin
Interesting the different advice from the specialists. Of course follow your own nurse’s instructions.
I was advised to look at my glucose numbers and go up by two clicks after three days till I got them right. But maybe my numbers were higher than yours to start with. On it now for 6 weeks and tolerating it well. I had a mild headache for a couple of days at the beginning but that disappeared quickly. Let me know how you’re doing on it as there don’t seem to be many people on this particular drug. Good luck.
barbra
Active Member
- Messages
- 33
- Location
- essex
- Type of diabetes
- Treatment type
- Non-insulin injectable medication (incretin mimetics)
Well couple months into xultophy started on 10 and now on 26 units. Levels are so much better between 4.5 and 6,being very sensible with my eating & loving doing low carbs makes such a difference
Taighnamona
Well-Known Member
- Messages
- 85
- Type of diabetes
- Type 2
- Treatment type
- Insulin
Glad to hear how well you’re doing on it. I can report similar success with my levels.
My dosage is still fluctuating between 16 and 22, possibly down to my insulin resistance/sensitivity. Also low carbing and going for an A1c next week. Hoping for a good result from that and will post again when I have it.
Taighnamona
Well-Known Member
- Messages
- 85
- Type of diabetes
- Type 2
- Treatment type
- Insulin
Xultophy update: A1c is now 41 which is down from 67 in September. Started the insulin in late December after my glucose had shot up because I wasn’t on any medication… lack of availability of Victoza.
Not sure how much is due to the low dose of basal insulin (18units) and how much is due to low carbing. Think on balance it’s down to the lower carbs. My plan is to continue on the insulin for another three months and hopefully get another A1c and if it remains low then I will discuss with the nurse about coming off insulin and staying with lower carbs for control.
Also a plus is my cholesterol is down from 4.2 to 3.6. That’s in spite of the loads extra cheeses and butter I’ve been consuming on my lower carb life style. (I do take 10mg of Atorvastatin)
Plus I’ve lost a few kilos.
Not sure how much is due to the low dose of basal insulin (18units) and how much is due to low carbing. Think on balance it’s down to the lower carbs. My plan is to continue on the insulin for another three months and hopefully get another A1c and if it remains low then I will discuss with the nurse about coming off insulin and staying with lower carbs for control.
Also a plus is my cholesterol is down from 4.2 to 3.6. That’s in spite of the loads extra cheeses and butter I’ve been consuming on my lower carb life style. (I do take 10mg of Atorvastatin)
Plus I’ve lost a few kilos.
Taighnamona
Well-Known Member
- Messages
- 85
- Type of diabetes
- Type 2
- Treatment type
- Insulin
Xultophy Update May 2026.
Still low carbing around 75/80 daily. Have maintained the 12kilo weight loss.
Last 4 A1c’s have maintained at 38 or 39.
Saw an endocrinologist in December…two plus years after starting the Xultophy. I’ve been self funding the Dexcom1+ and maintained my time in range above 95% over the last two years… he says I can’t do much better than that which was nice of him. But he didn’t offer to supply it through the NHS!
I’ve tried to come off the insulin several times but with a corresponding increase in my glucose levels despite diet /eating pattern unchanged. He arranged for a C peptide test which shows I’m making some insulin (so not type 1) but insufficient for my needs but happily no longer insulin resistant.
I take around 16 units a day which seems to keep me ticking over. I don’t suffer hypos although I can drop to 4-4.5 and feel hungry, mostly before dinner time.
I feel good! I’ve come off the statin, omeprazole, paracetamol, metformin and amlopidine. I take one medication for tachycardia and a handful of vitamins. I use castor oil rubs to help with arthritis in my knees and fingers but that also improved with the low carbing.
I no longer suffer from excema and itchiness. I’ve reduced the use of my inhalers too.
I’m 77, active …walking my dog and using an exercise bike plus gardening when weather permits.
Still low carbing around 75/80 daily. Have maintained the 12kilo weight loss.
Last 4 A1c’s have maintained at 38 or 39.
Saw an endocrinologist in December…two plus years after starting the Xultophy. I’ve been self funding the Dexcom1+ and maintained my time in range above 95% over the last two years… he says I can’t do much better than that which was nice of him. But he didn’t offer to supply it through the NHS!
I’ve tried to come off the insulin several times but with a corresponding increase in my glucose levels despite diet /eating pattern unchanged. He arranged for a C peptide test which shows I’m making some insulin (so not type 1) but insufficient for my needs but happily no longer insulin resistant.
I take around 16 units a day which seems to keep me ticking over. I don’t suffer hypos although I can drop to 4-4.5 and feel hungry, mostly before dinner time.
I feel good! I’ve come off the statin, omeprazole, paracetamol, metformin and amlopidine. I take one medication for tachycardia and a handful of vitamins. I use castor oil rubs to help with arthritis in my knees and fingers but that also improved with the low carbing.
I no longer suffer from excema and itchiness. I’ve reduced the use of my inhalers too.
I’m 77, active …walking my dog and using an exercise bike plus gardening when weather permits.
