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Need some support!

Discussion in 'Type 1 Diabetes' started by NorthernPrincess, Sep 21, 2016.

  1. NorthernPrincess

    NorthernPrincess Type 1 · Member

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    Hi everyone. I've had T1D since I was 10; when I was 13 I started restricting and eliminating my insulin. This lasted 5 years before I began to recover, and although 3 years later I'm able to take most injections, my control is still considerably less than perfect. Today I was diagnosed with CRVO - central retinal vein occlusion. I am now permanently partially sighted in one eye. I can't stop blaming myself, as I feel that if I hadn't been so stupid in the first place this wouldn't have happened - even though logically I know it's not my fault. I'd love to talk to some of you about it to put my mind at ease!
     
  2. Contralto

    Contralto Other · Well-Known Member

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    You were a kid when you started doing without your insulin and it is never clear what is causal for retinal disorders. For example, I have a rare disorder that will cause me to eventually have to have a transplant of parts of my corneal layers in the eye and nothing I have done so far would have even caused that

    So, don't beat yourself up

    See what you can do now. Today and tomorrow are what you can do something about with the best advice and even then you have to be ready for surprises.

    You can definitely live with almost no vision in one eye. I know because for seven years, I did exactly that.
     
  3. pleinster

    pleinster Type 2 · Well-Known Member

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    Hi. I would like to irritate you by placing emphasis on your own words "logically I know it's not my fault"...emm...just saying. Sorry to hear about your CRVO, and I hope it's only permanent in the sense of "currently permanent given current medical progress". You could blame yourself (even though you know it's illogical...although i do get what you are saying...we all do it for different things in life I guess), or you could remind yourself that a] you are human and b] what counts in now...what happens next...and that's all that really needs your focus. Bottom line, I don't believe we all choose out own cards in life....so we have to play the hand we have to the best of our ability. I am also sure, however, that even the game we are playing changes and we get new cards from time to time...and we need to be there to get those new cards. Sorry for the dreadful analogy! I don't even play cards! Anyway...take care of yourself and focus on the now.
     
  4. Freema

    Freema Type 2 · Well-Known Member

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    Forget the past and focus on now and your future and promise yourself to do your Best from now on
     
  5. Jaylee

    Jaylee Type 1 · Moderator
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    We all do silly stuff in our youth..

    It's all about what you learn from the "class". ;)
     
  6. azure

    azure Type 1 · Moderator
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    Hi @NorthernPrincess :)

    What you describe is surprisingly common. You're not alone. Let me tag @jacqfromdwed for you as she has some good advice.
    The important thing to focus on is that you're now taking your injections :)

    Please don't blame yourself xx
     
  7. himtoo

    himtoo Type 1 · Moderator
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    Hi @NorthernPrincess
    Living with Diabetes certainly puts extra pressure , both physically and mentally on daily life.
    Dealing with a chronic life long condition is not easy.
    so please don't blame yourself -- you are among friends that understand
     
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  8. lexxfromdwed

    lexxfromdwed Type 1 · DWED Support

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    Get in touch with DWED as an online intervention is happening, i think tomorrow is the last day you can sign up to it. Its really important to talk, you've come to the right place xx
     
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  9. lexxfromdwed

    lexxfromdwed Type 1 · DWED Support

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    You can sign up here http://dwed.org.uk/online-recovery-programme x
     
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