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Pump funding

S

shellyk

Member
Morning all had been a long time since I last posted but could do with some advice. My daughter was diagnosed T1 at the age of 14 and started with MDI initially she coped well but started to experience major issues with anxiety and depression culminating in her having panic attacks at school and becoming unable to eat a meal outside the home as she was so concerned about the content if the food and avoiding highs and lows. At this time she was painfully thin at 45 kg she would simply avoid eating to avoid injections and worrying about her BM.

Fortunately we were lucky enough to have a forward think pead team and she started pumping 2 and a half years ago and I delighted to say that after a period on antidepressants and meds for panic attacks and some counseling she is much better and just finished her first year at uni.

Her diabetes care had now been transfered to adult services near her university and she had her first appointment and the question of funding came up it turns out that she strictly speaking didn't meet the nice guidance and now we have to wait and see if the CCG will continue finding

I wonder if anyone else has been in this position and what the eventual outcome was. I am quite frankly terrified at the thought of the pump being taken away from her and the resulting impact on her mental health. I can't wrap my head around the funding issue surely the money that is being invested in her now will result in spending far less later in managing complications!!

Thanks in advance for spending time to give me your thoughts
 
Gosh, @shellyk - I don't have experience of this, but I would certainly hope that when presented with your daughter's history and her experience of pumping making such a difference to her life they will find a way to interpret the guidelines intelligently and in favour of funding to continue.

Best of luck - but I can't see how they can ethically take her pump away from her, surely?

:)
 
Agree with @Snapsy, given the turn around in your daughters health I can't see how they could even consider withdrawing funding, as a suggestion ask her paediatric diabetes team to write to the hospital to support your daughters continued usage of a insulin pump, you could also contact INPUT for their help & support:

http://www.inputdiabetes.org.uk/

Good luck and keep us updated.
 
shellyk said:
Her diabetes care had now been transfered to adult services near her university and she had her first appointment and the question of funding came up it turns out that she strictly speaking didn't meet the nice guidance and now we have to wait and see if the CCG will continue finding
Click to expand...

If she was granted funding to help with her control and well being then the funding continues, they can not remove the funding just because your daughter controls her diabetes well using the tools provided.
Contact INPUT who will advise you fully on this.
 
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