Hi, has anyone else gone to tribunal over the DLA? They have dropped my 14 year old daughters level to medium rate because they think that she is now old enough to check herself in the night? I'm outraged that we have to go to tribunal to prove that we as parents need to check her, this is a life threatening illness not to be messed with! Everyone I speak to even the professionals cannot understand why, I know they have got to cut back but they are doing it to the wrong people! So upset and angry!
Hi
Hi, has anyone else gone to tribunal over the DLA? They have dropped my 14 year old daughters level to medium rate because they think that she is now old enough to check herself in the night? I'm outraged that we have to go to tribunal to prove that we as parents need to check her, this is a life threatening illness not to be messed with! Everyone I speak to even the professionals cannot understand why, I know they have got to cut back but they are doing it to the wrong people! So upset and angry!
Hi Sjigp
Just read this post and wondered how you are getting on?
I hope you can ignore the ' your a parent just get on with it replies'.
We know loads of other children with type 1 and each one is different with different challenges so no one can know struggles you and your family face. Dla is there to support families with extra difficulties and looking after a child with Type 1 is certainly that. I don't care what anyone says, it can impact every area of your family life and most friends without type 1 in their family will not understand.
If your child is fairly stable or you have a strong support network that's great however it does other families that are struggling a disservice by putting them down and telling them to ' just get on with it'. I feel it contributes to the vast misconceptions people have about Type 1 and the lack of support in schools for our children who are expected to ' just get on with it' with minimal support or understanding.
I do check my son at night, always have and when he is a young teenager I will continue to do so if required aswell as teaching him to take responsibility. Seriously, what parent doesn't want to keep their child in the best health possible?
I wish you well Sjpgp and I hope you managed to get the outcome you were after. X