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Anyone else with mody

ps Here in Canada (I'm not sure if this is the case in each province or territory) if a member of your family has a confirmed MODY diagnosis, then genetic testing for immediate family members is automatically covered by public health care (even though the genetic testing takes place in Chicago!)
 
That is wonderful that you could make the switch to tabs after so many years of injections! I have wondered if my aunt could do the same, but according to her endocrinologist, she doesn't have any insulin producing capacity remaining. Given that he had not communicated to my aunt the importance of having her diabetic sibling (my dad) screened for MODY (and in the process alerting myself and my siblings to be screened), I wonder if she is getting the best treatment. I'm perhaps too curious, but I would be very interested to hear how your diabetes was first discovered and what kinds of blood sugar levels you had when you were in your late teens/early 20s? For myself, I'm sure I've had post-prandial peeks for decades but only became aware of it last year. Apart from drowsiness after meals, I didn't have any major symptoms and only sought to be screened once I learned that there was MODY in the family.

Hi there
I was working as a nurse and just very thirsty and tired - seemed to need a lot of 'pee' breaks when I had a routine blood test which identified I had a sky rocketing BSL. I then had fasting BSLs after drinking copious sugar coated drinks - next think I know I was on Insulin! The only twig to MODY was just over 2 years ago I had to change specialists and he took the family history which was, by now, full of Type 1 and Type 2 and pre-diabetics, so we did the DNA tests and sure enough I am so happy to now be - MODY 3
cheers
M-L
 
Hi there
I was working as a nurse and just very thirsty and tired - seemed to need a lot of 'pee' breaks when I had a routine blood test which identified I had a sky rocketing BSL. I then had fasting BSLs after drinking copious sugar coated drinks - next think I know I was on Insulin! The only twig to MODY was just over 2 years ago I had to change specialists and he took the family history which was, by now, full of Type 1 and Type 2 and pre-diabetics, so we did the DNA tests and sure enough I am so happy to now be - MODY 3
cheers
M-L

What a story! So have all of the family members gone ahead to be tested for MODY3? Has their treatment also changed? As I'm sure you know well, any of your siblings have a 50-50 chance of having inherited the same mutation (since one of your parents was a carrier) and the same for any children you may have or your siblings (with the HNF1A-MODY3 mutation) have had... Also, I'm curious if you've noticed certain foods that tend to produce a stronger insulin response than others? Or perhaps once on tabs this is not so relevant for you? Thanks for sharing!
 
See my post re MODY 2 days ago Rodney from Canada. I am looking to see GP for referall to Test and endocrinologist after my hols later this month. Quite by the by - I am visiting family in Canada. Have citizenship through father and I used to live there. It is my Canadian family genes that have disbetes.
 
See my post re MODY 2 days ago Rodney from Canada. I am looking to see GP for referall to Test and endocrinologist after my hols later this month. Quite by the by - I am visiting family in Canada. Have citizenship through father and I used to live there. It is my Canadian family genes that have disbetes.
Happy Travels! And all the best with the upcoming tests. I'm curious to hear why a suspicion of MODY came up? Happy to hear how things go moving forward.
Warmly,
R
 
Just seen GP re possible MODY she seemed to think it could be a possibility as I am so slim, it is prevalent in my Canadian side. But I am not early onset. DX in my 50s - but who knows how long I may have had it as symptoms are so easily ignored and difficult to recognise.
 
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