• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Diagnosed Type 1 in October

Eireannn

Well-Known Member
Messages
81
Location
Southport
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Tomatoes, yuck
Hey guys, I'm new to this website so I don't know how it all works lol.
Here's a bit of info about myself.
My names Eireann and I'm 15 years old, turning 16 in March. Recently I was diagnosed Type 1 which came as a massive shock to me. My grandad sadly passed from a long fight of lung cancer which shocked myself and all my family. I didn't cry or feel terribly depressed, I was just shocked and silent. Because of this, my mum reckons this is what could've led to my diagnosis. The doctor in the hospital said it could be because of stress though I'm not entirely sure. Anyway, since May, I started losing a lot of weight. I thought this was because I was growing older and all the "puppy" fat would start going. Not only that, but my long thick hair slowly became thinner and thinner and eventually started falling out in the shower or whenever I brushed my hair. My mum still believed this was due to the stress that my grandads died. The signs became more clearer when I was drinking a lot and needing the toilet a lot during the night.
People were very shocked and confused about my sudden weight loss, etc, that my mum took me to the doctors. She told them that the family history is riddled with both type 1 and type 2 diabetes and many other illnesses. All he did was check my blood pressure and ask if I was feeling sick at all. I wasn't feeling anything, I felt perfectly normal. He booked me in for blood tests the following Friday.
A few days after, my mum, sister and I went to Oxford for a family visit and saw my Mums friend who was a type 2 diabetic. My mum explained what was happening and my mums friend gave me a finger prick test which the doctor hadn't done. My blood sugars read around 33 and I had to see my mums friends GP who tested my ketones which were 5.5. I wasn't feeling sick at all which confused all the doctors. I wasn't referred to the hospital where they kept me over night and by then, my ketones had reached 6.5. They were all surprised I hadn't gone into DKA. I stayed for 2 days and was finally let out. I went back home and the doctors there gave me my prescriptions of medicines and my previous appointment there was deleted to prevent them from getting in trouble. My mum has the paper from when I was at the doctors so we're still figuring out on what to do about that.
I know this is a long post but I just wanted to tell my story. Life is so difficult, I haven't lived my life properly. Most of us should be out drinking with friends and family, eating whatever we want without worrying about what our blood sugars are doing. That's the reason I'm here as the thought of other diabetics brings me some comfort.
Thanks for reading :)
 
Welcome @Eireannn :)

That sounds like a stressful and difficult time for,you.

There are lots of friendly, helpful people here who understand how wearing diabetes can be. Feel free to ask any questions you want or just to chat :)

I've had Type 1 for mor than 20 years and have had an insulin pump for 12+ years :)
 
Welcome @Eireannn :)

That sounds like a stressful and difficult time for,you.

There are lots of friendly, helpful people here who understand how wearing diabetes can be. Feel free to ask any questions you want or just to chat :)

I've had Type 1 for mor than 20 years and have had an insulin pump for 12+ years :)

Thank you! :)
Diabetic nurse said I should be getting the insulin pump after Christmas which should be around this month and I'm on the freestyle libre trial at the moment :)
 
Well, that sound excellent! I love my pump and as soon as I got it I felt more normal and more like me again.

The Libre must be helping too :)
 
Welcome to the club @Eireannn .

It's certainly anecdotally the case that a period of high stress, like a bereavement, can be the trigger that makes a person genetically predisposed to autoimmune type 1 diabetes starting to actually have the condition.

Sounds like you had a bit of a wait for diagnosis and it's a shame your GP didn't do a finger prick test when you presented with those symptoms. If you are considering what to do about that you might want to request a copy of your GP records to check that they haven't deleted the records to avoid getting in trouble as retrospectively altering medical records without signing and dating the alteration is something that probably should be raised in a complaint to the practice and possibly raised to the GMC.

Luckily you were diagnosed quite soon after your GP appointment and were still well at the point of diagnosis so you haven't lost anything from the lack of a finger prick test by your GP.

There's no reason you can't "live your life properly" as a type 1 diabetic. That would include drinking with friends and family and eating whatever you want. It takes a little more planning to do those things when you have type 1, but it will soon become second nature.

Get youself a copy of "think like a pancreas" a great book that covers the basics of managing type 1 that should show you that you will be able to manage it so you can live your life as you want. It takes a little practice and planning, but it's early days for you and you'll get there.
 
Hi @Erieannn :)

Wow, you've had a time of it recently!

I'm pretty new to this forum, in the past two days the support, advice and knowledge I've gained from the other users has been amazing.

I've been diabetic 10 years, diagnosed at 17...I totally understand what you're feeling, I've gone through phases of denial about being diabetic but I have to say that accepting the illness and taking my medication made my life 100x better.

It's scary and overwhelming but you can still have an amazing quality of life while managing your diabetes. Subtle little changes make all the difference to your control of your blood sugar levels. That horrendous thirst and constant exhaustion you experience before diagnosis disappear when you have control.

You can do this, we're all here to help and offer a friendly ear :)
 
Welcome to the club @Eireannn .

It's certainly anecdotally the case that a period of high stress, like a bereavement, can be the trigger that makes a person genetically predisposed to autoimmune type 1 diabetes starting to actually have the condition.

Sounds like you had a bit of a wait for diagnosis and it's a shame your GP didn't do a finger prick test when you presented with those symptoms. If you are considering what to do about that you might want to request a copy of your GP records to check that they haven't deleted the records to avoid getting in trouble as retrospectively altering medical records without signing and dating the alteration is something that probably should be raised in a complaint to the practice and possibly raised to the GMC.

Luckily you were diagnosed quite soon after your GP appointment and were still well at the point of diagnosis so you haven't lost anything from the lack of a finger prick test by your GP.

There's no reason you can't "live your life properly" as a type 1 diabetic. That would include drinking with friends and family and eating whatever you want. It takes a little more planning to do those things when you have type 1, but it will soon become second nature.

Get youself a copy of "think like a pancreas" a great book that covers the basics of managing type 1 that should show you that you will be able to manage it so you can live your life as you want. It takes a little practice and planning, but it's early days for you and you'll get there.

I will try and find that book, thank you very much! :)
I'm just a little concerned as when I was getting my prescriptions, the woman said that my last appointment was when I fell down the stairs... but my last appointment was actually going in to get blood tests done. :(
 
Well, that sound excellent! I love my pump and as soon as I got it I felt more normal and more like me again.

The Libre must be helping too :)

It certainly does, can't wait for the pump :)
 
Hi @Erieannn :)

Wow, you've had a time of it recently!

I'm pretty new to this forum, in the past two days the support, advice and knowledge I've gained from the other users has been amazing.

I've been diabetic 10 years, diagnosed at 17...I totally understand what you're feeling, I've gone through phases of denial about being diabetic but I have to say that accepting the illness and taking my medication made my life 100x better.

It's scary and overwhelming but you can still have an amazing quality of life while managing your diabetes. Subtle little changes make all the difference to your control of your blood sugar levels. That horrendous thirst and constant exhaustion you experience before diagnosis disappear when you have control.

You can do this, we're all here to help and offer a friendly ear :)
It certainly does, can't wait for the pump :)


Thank you :)
Since October, I had cried everyday, wondering why I developed it and no one else did. Sadly in my family every generation has the diabetic. I was unfortunate enough to be the unlucky one
 
Thank you :)
Since October, I had cried everyday, wondering why I developed it and no one else did. Sadly in my family every generation has the diabetic. I was unfortunate enough to be the unlucky one
That's awful :(

I'm the opposite, not a single person in my family is diabetic...Maybe having other people within your family with diabetes will give you a bit of support and someone who understands what you're going through?

I know it's easier said than done as you're still processing all of these changes that have happened in your life recently but please remember that although you have diabetes, diabetes doesn't define you or what you can do/achieve in life
 
That's awful :(

I'm the opposite, not a single person in my family is diabetic...Maybe having other people within your family with diabetes will give you a bit of support and someone who understands what you're going through?

I know it's easier said than done as you're still processing all of these changes that have happened in your life recently but please remember that although you have diabetes, diabetes doesn't define you or what you can do/achieve in life

It really hasn't stopped me from going out to eat at all, I guess the only thing right now that worries me is the injecting in public :)
 
@Eireannn welcome to the forum.. you had a rough ride so far but you sound like you are coping well and have lots of support from family. You're in a good place here to find more should you need it.
 
@Eireannn welcome to the forum.. you had a rough ride so far but you sound like you are coping well and have lots of support from family. You're in a good place here to find more should you need it.

It's normal for me now, thank you :P
 
Hi @Eireannn , welcome to the forum, it's great that you find some comfort from knowing that there are other diabetics out there, and everybody here is really supportive.

That's really interesting about stress potentially being a cause - my Grandad died when I was 15, about 6 months before my diagnosis, and I too took it quite badly - I think it was over a year before I cried about it.

Keep fighting, and good luck with the pump!
 
Hi @Eireannn , welcome to the forum, it's great that you find some comfort from knowing that there are other diabetics out there, and everybody here is really supportive.

That's really interesting about stress potentially being a cause - my Grandad died when I was 15, about 6 months before my diagnosis, and I too took it quite badly - I think it was over a year before I cried about it.

Keep fighting, and good luck with the pump!

Thank you so much :)
 
My blood sugars read around 33 and [...] my ketones which were 5.5. I wasn't feeling sick at all which confused all the doctors. I wasn't referred to the hospital where they kept me over night and by then, my ketones had reached 6.5.
Hi @Eireannn, whilst those numbers seem really high and it seems unlikely you weren't in DKA, that reflects my diagnosis (some 28 years ago) very similarly. I had very similar symptoms to you, but at the age of 12-13. When I was checked, it was with a urine test and it went black, which meant very, very high. The GP was massively surprised that I wasn't in a coma. Just goes to show that DKA doesn't necessarily occur and that the human body is a remarkably resilient thing. Fast forward 28 years and I'm still here and still going, without any real issues.

Welcome to the forum and the club! You might not have wanted to join, but it's not as bad as it may at first seem...
 
Hi @Eireannn, whilst those numbers seem really high and it seems unlikely you weren't in DKA, that reflects my diagnosis (some 28 years ago) very similarly. I had very similar symptoms to you, but at the age of 12-13. When I was checked, it was with a urine test and it went black, which meant very, very high. The GP was massively surprised that I wasn't in a coma. Just goes to show that DKA doesn't necessarily occur and that the human body is a remarkably resilient thing. Fast forward 28 years and I'm still here and still going, without any real issues.

Welcome to the forum and the club! You might not have wanted to join, but it's not as bad as it may at first seem...

Thank you, it's all becoming second nature to me now :)
 
I was 24 years and 10 months old when I got type 1..... healthy people are blessed yet they take it for granted....my heart goes out to you Erieann
 
I was 24 years and 10 months old when I got type 1..... healthy people are blessed yet they take it for granted....my heart goes out to you Erieann

Thank you jonniey, same to you too <3
 
Hi, I was diagnosed on Friday. Think I'm still coming to terms with it but I'm feeling okay. Looking forward to feeling well again actually, after months of feeling rubbish.

Hope you get on okay. I found this forum virtually straight away and I'm feeling more reassured having read some of the posts on here. It's good to know that there are other people going through the same thing!
 
Back
Top