- Messages
- 73
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Hello,
I have a few questions regarding pumps/funding and criteria and know you are the experts here!
I am 26, been t1 for 19 years. Had periods of very poor control mainly due to ED-DMT1 (diabulimia) but haven't omitted insulin in 2 yrs and have been trying my hardest to control my diabetes for a year now.
I have painful neuropathy which no medication has helped, non alcoholic fatty liver disease, gastroparesis, and most recently found d out I have proliferative retinopathy in both eyes which I am waiting for treatment for.
I inject levemir twice daily and humalog up to 8 times a day in between. My latest hba1c was 8.4 but I think it will be slightly lower next time as I have been using a libre (which is amazing!)
I want an insulin pump because my poor control is affecting the quality of my life. It affects my mental and physical health. I have more time off work due to hypos hypers and gastroparesis which has led to me not being able to work full time anymore. I am constantly tired from fluctuations in bg level. 8.4 doesn't sound high but it is that % due to wide fluctuations.
I carb count religiously and when not using the libre test between 6-12 times a day. Anything over 11 I correct for hence 10+ injections a day. It is more than a full time job!!
I contacted input who recommend I get referred to Kings College hospital London (UCL). I am at a pump hospital in Surrey (probably giving away which one!) But input said I will have more luck at UCL.
I am also keen to start a family as soon as my retinopathy has settled down, but want to get better control before thinking about this. I feel like a pump is my only option and I am desperate to be honest. I don't expect pumping to be easy at all and I'm prepared for hard work, I just need to get some kind of quality of life and good control.
My questions are:
Has anyone else asked for a referral to another hospital? Do I need to ask my consultant or can my GP do this? Did you have any problems doing this?
Has anyone managed to get pump funding on the ABCD guidelines alone, with a hba1c under 8.5 and no disabling hypo's?
My dsn is completely against the idea of me getting a pump. I see my consultant this month so will prepare my argument to present to him but I am not hopeful and think I will end up following input's advice.
Thanks in advance for your replies.
Sarah x
I have a few questions regarding pumps/funding and criteria and know you are the experts here!
I am 26, been t1 for 19 years. Had periods of very poor control mainly due to ED-DMT1 (diabulimia) but haven't omitted insulin in 2 yrs and have been trying my hardest to control my diabetes for a year now.
I have painful neuropathy which no medication has helped, non alcoholic fatty liver disease, gastroparesis, and most recently found d out I have proliferative retinopathy in both eyes which I am waiting for treatment for.
I inject levemir twice daily and humalog up to 8 times a day in between. My latest hba1c was 8.4 but I think it will be slightly lower next time as I have been using a libre (which is amazing!)
I want an insulin pump because my poor control is affecting the quality of my life. It affects my mental and physical health. I have more time off work due to hypos hypers and gastroparesis which has led to me not being able to work full time anymore. I am constantly tired from fluctuations in bg level. 8.4 doesn't sound high but it is that % due to wide fluctuations.
I carb count religiously and when not using the libre test between 6-12 times a day. Anything over 11 I correct for hence 10+ injections a day. It is more than a full time job!!
I contacted input who recommend I get referred to Kings College hospital London (UCL). I am at a pump hospital in Surrey (probably giving away which one!) But input said I will have more luck at UCL.
I am also keen to start a family as soon as my retinopathy has settled down, but want to get better control before thinking about this. I feel like a pump is my only option and I am desperate to be honest. I don't expect pumping to be easy at all and I'm prepared for hard work, I just need to get some kind of quality of life and good control.
My questions are:
Has anyone else asked for a referral to another hospital? Do I need to ask my consultant or can my GP do this? Did you have any problems doing this?
Has anyone managed to get pump funding on the ABCD guidelines alone, with a hba1c under 8.5 and no disabling hypo's?
My dsn is completely against the idea of me getting a pump. I see my consultant this month so will prepare my argument to present to him but I am not hopeful and think I will end up following input's advice.
Thanks in advance for your replies.
Sarah x