Hi, I was given a Libre to try with 1 senser which worked well for me as it shown when I was going "low" without the warning signs.My hospital consultant wrote to my GP asking if I could be given the senser as a exceptional case and my GP said NO
Hi, I was given a Libre to try with 1 senser which worked well for me as it shown when I was going "low" without the warning signs.My hospital consultant wrote to my GP asking if I could be given the senser as a exceptional case and my GP said NO
Just to be clear, these are not new guidelines, this is a NICE technology briefing and of its own is unlikely to result in funding as it leaves rather a lot of unanswered questions.Make yourself aware of the new NICE guidelines, print them off and take with you...
I have funding from a benevolent fund for my CGM. CCG point blank refused funding saying there were plenty of type 1's using steroids thus I was no different than any other type 1 (they have no concept regarding Addison's disease and diabetes) As an added bonus they also had the cheek to write to me stating that as no one else in the CCG had funding for a CGM then it wasn't fair to give me the funding.
I did point out that I didn't think it was fair I had both Addison's and diabetes either but that fell on deaf ears.
You need Dexcom because it will alert your phone when you're getting low (at night). That could be lifesaving for you from what you describe about your hypo events. Forget Libre, no alerts with it. My friends' 11 year old son used it from the get go and does great. It even alerts my friend.I currently have enlite sensors funded for the Medtronic 640 pump, with low suspend. These are funded directly by the hospital and not by my CCG, so far as I understand it. I certainly haven't yet had an IFR submitted to the CCG.
I don't get along particularly well with the enlite sensors and prior to this was self funding a dexcom. Hospital have told me they will arrange for dexcom to be funded if I decide not to continue with Medtronic.
I'm only just over 6 years diagnosed. I have no hypo awareness and numerous incidents of severe hypos, particularly overnight, including an episode of hypoglycaemic hemipelgia and several ambulance call outs for hypos requiring glucagon and IV dextrose to bring me round.
It may be able to stop insulin delivery when you're getting low but I bet it can't increase them when you're getting high. That could be a liability issue if for some reason the thing says you're high and you really aren't and you're asleep and it jacks up your insulin infusion. Bad news.I was at a talk yesterday, my consultant thinks that the libre will be funded by NHS as a replacement for finger prick tests as the cost would be less but you still have to finger prick test before driving etc! There is funding for CGM but only in certain circumstances! He was hopeful that the likes of animas and medtronic will make pumps with CGM built in to be that step closer to an electronic pancreas, will stop/start insulin delivery depending on CGM readings.
I have enquired about CGM. I am a type 1 (45 years), have no hypo awareness, am no longer allowed to drive (even though I have never had a hypo induced accident) and have lost my job. My CCG will not follow NICE guidelines which clearly states CGM can/should be funded for type 1's who are asymptomatic to hypos. My diabetic team have told me that the CCG do not fund CGM. I would have thought CGM is more cost efficient than emergency service responses, potential surgery and vision loss. We all know the NHS does not have endless resources but CGM would seem to save significant costs in later life for brittle diabetics (I am one of those too) who are asymptomatic to hypos. Meanwhile I am just trying to stay alive and don't have the energy to appeal/fight.
You need Dexcom because it will alert your phone when you're getting low (at night). That could be lifesaving for you from what you describe about your hypo events. Forget Libre, no alerts with it. My friends' 11 year old son used it from the get go and does great. It even alerts my friend.
Hi. I currently live with my daughter and she deals with my hypos. I've had 2 ambulance calls for hypoglycemic collapse in public areas. I always refuse hospital admission. Even the cost of emergency service call out would be more expensive than CGM. Northampton CCG will not fund CGM. They have 'other priorities for their budget.'@clanders How many times are you admitted to hospital per year that could be saved with a CGM?
Hi Donellysdogs. I haven't asked my GP for this as I understand this would be a waste of her time. My GP is wonderful, My specialist diabetic team have told me CCG will NOT fund CGM. My GP and diabetic team will support my application for a medical assistance dog once I have completed DAPHNEHave you asked your Consultant or GP to complete an exceptional funding request?