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Continued worries with my daughter

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ExtremelyW0rried

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Type of diabetes
Type 1
hi
I've posted before that I had come concerns over my 20 month old and her blood sugar. I've caught her at a 9.2mmol after eating high sugary foods. She is not diabetic at the moment but I am type 1 and so is her grandad.
I've been monitoring her for a month on and off and have had one more high level of 8.3mmol after dinner (about 45 minutes after) but I've also not allowed her to have fruit juice or grapes which is what she'd had before that 9.2mmol so could this just be masking the problem?
The GP told me to do a fasting sugar and as long as it was below 7 she was fine - which isn't strictly true is it - but her fasting sugars have been between 4.3 and 4.9mmol. However I am aware they are the last thing to go.
I've just checked her at random times in the day, I have got her in the 7s after eating but mainly she has been around 5-5.3mmol.

However being a toddler she seems to live on nothing half the time!

I've read and read about things online and some websites now seem to suggest that truly non-diabetic people are in the 4s all the time apart from a brief rise to 6 possibly after eating. 7.8mmol no longer seems to be acceptable - it seems to be if your sugar goes over 6.9mmol you have a potential issue.

I have stopped checking her sugars now but I don't know if I should still do them occasionally or if I should go back to the GP for antibody testing?
 
@ExtremelyW0rried Non-diabetics spike up to 10 sometimes. I've tested non-diabetic friends and found Bs higher than 7 a number of times. The point is their BS comes back down into range.

No, you shouldn't test your daughter's blood sugar, in my opinion. It's unnecessary.

Were you able to speak to the doctor about your anxiety?
 
Yes I have some shiny new drugs.

I'm still struggling to put it out my head but I'm trying for my daughter's sake.
 
@ExtremelyW0rried . I genuinely feel that you must seek medical advice.
You are using the web to make judgements , this is so dangerous!!!!!!!!!
Your daughter in my opinion has nothing to worry about with regards to diabetes at this point in time.
Your fears and concerns could well be transferred to your daughter, who at such a young age could very easily find her whole life influenced by the actions she has no control over.
Sorry if I'm out of order.
 
Yes I know therower - I am really really trying to set it aside but sometimes it is very difficult. I know I need to for my daughter. It's just it nags in the back of my mind. Those higher than normal levels and our history. I rang diabetes uk Careline for some advice and they said toddlers don't always present as normal with type 1 and can go into dka very quickly which worried me even more! So although I've stopped testing her it still sits there in the back of my mind all the time.
 
Yes, they can, but you know the signs of Type 1 so I highly doubt you'd miss it IF your daughter got it.

Moreover, your daughter's levels are normal. You've just convinced yourself they're not.

You say you used to test your son's BS too but now he won't let you. Did your son develop Type 1? No, he didn't :)

Just because you have Type 1, it doesn't mean your children are destined to develop it.

I have a toddler. I have tested his blood sugar precisely ZERO times. When he's ill, yes Type 1 is n my mind but I know the signs and so don't need to test his BS as he's not developing any of the symptoms of Type 1. For all I know, his blood sugar could be 8 after eating grapes, but it wouldn't worry me in the slightest.

I hope you're able to get continuing support from your doctor, so that you can free yourself from this anxiety.
 
Being the Mum to a small child is hard at the best of times. I've had three children, all different and one born with a hole in the heart. I know exactly how you feel, you tend to look for signs when all you are seeing is a normal healthy child. Don't make the same mistake that I made of missing out on the joy of having that child. You are aware of the chances that your little one has of developing T1DM and that is good but ddon't let it be all that she is. Best wishes, lass.
 
@ExtremelyW0rried . I understand your concerns but as @azure has alluded to, your daughter will develop noticeable symptoms, symptoms you as a diabetic will recognise.
Enjoy your daughters childhood and let her enjoy it as well. Easy for me to say but it's the best advice I can offer.
Good luck and try to focus on things you can control in life.
 
ExtremelyW0rried said:
Yes I know therower - I am really really trying to set it aside but sometimes it is very difficult. I know I need to for my daughter. It's just it nags in the back of my mind. Those higher than normal levels and our history. I rang diabetes uk Careline for some advice and they said toddlers don't always present as normal with type 1 and can go into dka very quickly which worried me even more! So although I've stopped testing her it still sits there in the back of my mind all the time.
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a thought is just a thought. Accept that thought. Accept that it is recurring and obsessional. Say out loud, when you get the thought "I know my daughter is fine, this is just an obsessional thought which has got stuck in my head" Dont try to avoid the thoughts, let them come, just like a passing bus in the street. Neither give them attention or avoid them, simply accept that, for now, this thought is stuck in your mind. It will eventually go once you feel better.

I recommend a book by Dr Claire Weekes: https://www.amazon.co.uk/dp/B06Y5V8LNB/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1

it is brilliant for all sorts of anxiety, including dealing with recurring thoughts. I have had anxiety most of my life. It o longer stops me doing stuff. If I can help in any way, let me know. Happy to share my experiences.
 
I have type 1 and 3 kids at the peak age of diagnosis (9-14 years old) but whilst its in the back of my mind, from a risk point of view with a female parent they are still far more likely to get type 2 than type 1. Also other than it is an autoimmune disease as far as I am aware we do not have any idea of what causes it (some research on lactose intolerance) and therefore cannot do anything to prevent it. Focus on what you can do for her: showing her how to enjoy real food including grapes and occasional juice/cakes/sweets, friends, fresh air etc. You can give her so much more to her than a tiny genetic risk of diabetes and I truly hope you can get this worry into perspective.
 
Yes I know the risk is less from the mother's side.
It does seem though that as it runs through more than one generation your risks increase. I guess because it's more likely the gene will be past on somewhere.
Apparently it is 1 in 25. That is quite high I think.
 
ExtremelyW0rried said:
Yes I know the risk is less from the mother's side.
It does seem though that as it runs through more than one generation your risks increase. I guess because it's more likely the gene will be past on somewhere.
Apparently it is 1 in 25. That is quite high I think.
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1 in 25 is 4% - that is, 96% will NOT get Type 1.
 
Yes that is true. But 1 in 25 is still quite high I think when compared to the rest of the population. 1 in 300.
 
ExtremelyW0rried said:
Yes that is true. But 1 in 25 is still quite high I think when compared to the rest of the population. 1 in 300.
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We only have today to worry about. Today, and for the foreseeable future, your daughter is fine. Your GP is aware, and will move quickly if anything were to develop. you have done all you can to know that she is not diabetic right now. Nor is she likely to be in the near future. You know this. Keep resisting the thoughts. You can do this.

relax, breathe, focus on the here and now. On what is happening today, and enjoy your daughter. Anything can happen to any of us, anytime. Are you back home now? Do you have any support? I strongly suggest contacting your mental health team I dont know where you are, but self referral is possible, to discus how this is affecting your life and your time with your daughter.

was there a delay in your diagnosis? is that why you are worried?
 
@ExtremelyW0rried If you can't shake these thoughts and the worry, do speak to your doctor again.

Going over and over the same things isn't helping you.
 
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