- Messages
- 6
- Type of diabetes
- Type 1
Hello, I would love a bit of advice from any mum who has any experience with type 1 diabetes with their children. Our 3 year old just been diagnosed and any help would be much appreciated.
Hello, I would love a bit of advice from any mum who has any experience with type 1 diabetes with their children. Our 3 year old just been diagnosed and any help would be much appreciated.
Hello, yes please move it. I'm new to all of this and so shocked .... thank you very much for your help!
Hello, I would love a bit of advice from any mum who has any experience with type 1 diabetes with their children. Our 3 year old just been diagnosed and any help would be much appreciated.
Hi Carola,
I'm so sorry to hear of your little ones diagnosis. It's a massive shock, and 3 years old is so tiny too. Bless them. My little girl was diagnosed nearly 2 years ago at 4 years old. It's a huge learning curve, but it's doable and as a family you all adjust to the new 'normal'.
xx[/QUOTE
Hi CathP,
Thank you very much for your kind words and support. I have to say it is a real shock and a life changing situation and with our 11 month old daughter a big challenge too. I thought I was busy and tired before but how I was wrong!!
Could you recommend any tricks or give any advice to us for these first weeks/months?
Also we would love to meet similar families with kids of similar age. Are there any social events involving diabetic children?
xx
Hello , my 2 year old little boy was diagnosed around the end of May .
We are now nearly 5 months in and to be honest with you we are still coming to terms with it all.
Like anything you will have good days and you will have bad days,
Some days we think why does our little boy have this condition. Why is it not a murderer of a pedo ( sorry)
but then we are thankful we have him, it could be much worse, there are a lot worse conditions that he could have.
The biggest thing we said was that diabetes will have to fit around our life not the other way round .
We haven’t let his condition interrupt his life at all. we have been on 2 family holidays to Spain. which although we was dreading it turned out to be just what we needed as a family.
He has been enrolled in a little kickers football classes which he attends on weekends and he goes to kiddie gymnastics. We also try and go to a restaurant once a week.
Our thought process is that if we get him keen on sports in the years to come if he wants to be the best in his sport he needs to always keep on top of his numbers else he wont be able to play at the top of his ability .
We are around 2 months into carb counting which to be honest is a ball ache ( sorry for the language) each night after we put Jack to sleep myself and my wife plans his meals for the next day . just so its not a rush when the time comes to serve his meal, we can just do his sugars and insulin knowing we already know the carb number we have to input into his monitor . We are still trying to get this right though , I would say at least 1 out of every 2 weeks the nurses are adjusting his carb to ratio levels . we have got his morning numbers bang on now , but his dinner time readings can be quite high . its all just trial and error , and I have been told it will be like this until he is 25 due to his body continuing growing.
It probably seems the worst thing in life at the min. But as each days ends you will learn to accept the disease, as a family it’s been very hard for us. My wife still hasn’t gone back to work yet , She is due to start back at her school next week. So this is our next big hurdle in order to try and gain back a normal as can be life .
I just hope in the near future there is a cure for this. I have been reading about PEC DIRECT. This looks promising , At the beginning of the year they cured 2 people with their product , they have just started a 50 plus person clinical trial with the results to be published early 2018, so fingers crossed ,
Hi Gary,
Thank you too very much for your reply. I have to say it is a real shock and a life changing situation and with our 11 month old daughter a big challenge too. I thought I was busy and tired before but how I was wrong!!
Can I ask if you eat out how do count the carbs?
Also how I mentioned to Cath we would love to meet similar families with kids of similar age. Are there any social events involving diabetic children?
Can anyone advise on the following?
Our 3 year old is just in his second week of insulin shots and the diabetes team are daily changing our doses to suit his bs levels. The last 2 nights he's been low and dropped into hypo around 12 midnight. They have today lowered his evening novarapid from 3 to 2.5 and likewise his levamir both given at around 18.30 this evening. Now (21.30)he is at 15.7 and dropping according to his free style libre bs reading. We are postponing getting him to bed with his milk and biscuit snack (as per the diabetes team dietician schedule) and hesitant with this reading given the past 2 nights to give him a novarapid top up especially as the levamir must be kicking in too?
Also over what length of time should any novarapid top ups be given during the night if he runs high given that the levamir is present?
Any tips most welcome, thank you.
Hi. Our little boy (20 months old) was diagnosed type 1, Monday afternoon. I won't echo the usual emotions, concerns, fears.. just getting involved in this forum to learn from others experiences. I have a lot to learn quickly and I will... What i want to understand more at the moment is "hypo" and how to avoid it.