Bertyboy
Well-Known Member
- Messages
- 215
- Type of diabetes
- Type 1
My colleagues are genuinely curious and helpful.Yep we are ninjas. Curiosity and admiration is what I hope and do get overtly if doing anything diabetic in public. Someone did once get up and move seats on a train once (height of the AIDs panic) which netted me a double seat on a long train ride...If I am in a work situation or with friends that do not know about diabetes, then I say I hope you aren't squeamish because I need to test etc. I would really resent having to test/inject in a public loo or wait until I got home.
Hi There
I am hoping that the fabulous community here will post replies on this thread about the subject in the title.
or possibly provide links to people's blogs on the subject , or even copy a link to an old topic that covers this area
this topic could then hopefully be something that could be shown to gather support from family members, it could be helpful to newly diagnosed families as well as families with a D peep going through issues at the present time.
thanks so much for reading and for posting if you are able.
all the best !!
that is such an amazing post -- thank you for sharing this.I’ve been a type one diabetic for 17 years (i was diagnosed at 3), and I found it hard living with type one diabetes. I never hid it from people if they wanted to know I’d tell them, I was recently in KFC and a young girl was sitting in front of me and she was acting nervous and she kept her hands under the table. I soon realised that she was diabetic and I think she was uncomfortable with what others should have thought about her, I soon reached into my bag and with full confidence checked my glucose levels and even did my injection in a full restaurant. She see that I also being a diabetic had to do the same things as her and she felt more confident to lift her injection up and inject herself it made me feel so good to show that I was once like this young girl and I’m glad she didn’t have to feel so shy and nervous about doing something that is gonna save our lives. I love helping people and also explaining to young and curious children what I have to do to “make me feel better”
Ive always had a chip on my shoulder about having diabetes,i was diagnosed at 6 years old in 1975 and was the only child in a very small primary school with t1d.My grandfather had diabetes and, at that time, sharpened and sterilized (boiled) his own syringes, relied on animal insulin and lived until 80. I never knew he was a diabetic. It never came up, almost like he was embarrassed.
I discovered the fun of diabetes in my mid-30s and for the past 30+ years have experienced the intensities of this malady. The extreme low blood sugars (shaking, sweating, rapid heartbeat, confusion, weakness, paramedic rescue) to the extreme highs (tiredness, vomiting, coma). What great fun! But I am not embarrassed. It happens that my sister died from Multiple Sclerosis which cannot be managed but can only be endured. Of the two, I am quite fortunate.
I travel weekly for my work and do make it a point to advise my colleagues of my situation. Just in case I need help. I work with a man who has a pacemaker. I am quite fortunate.
I recall my son's hockey teammate Drew who was diagnosed a T1 when 9 or 10 years old. Having to go through adolescence with such a burden would be highly problematic, dangerous, and frustrating. I did not have to do this. I am quite fortunate.
But diabetes is no friend to me. I will do my best to adapt and with vigilance should manage to see my grandchildren grow into wonderful humans. I am quite fortunate.
What a star!I’ve been a type one diabetic for 17 years (i was diagnosed at 3), and I found it hard living with type one diabetes. I never hid it from people if they wanted to know I’d tell them, I was recently in KFC and a young girl was sitting in front of me and she was acting nervous and she kept her hands under the table. I soon realised that she was diabetic and I think she was uncomfortable with what others should have thought about her, I soon reached into my bag and with full confidence checked my glucose levels and even did my injection in a full restaurant. She see that I also being a diabetic had to do the same things as her and she felt more confident to lift her injection up and inject herself it made me feel so good to show that I was once like this young girl and I’m glad she didn’t have to feel so shy and nervous about doing something that is gonna save our lives. I love helping people and also explaining to young and curious children what I have to do to “make me feel better”
Better contact Spike Milligan!There must be a rich vein of diabetes jokes?
Hi I'm type 1diabetic have been for 31 years and I still go to toilets r the car to injec when I am out. I guess it is embarrassment r I think people might think l am on drugs.What a star!
Hi @Bridie9408 I completely understand your views. I enclose the following excerpt from the book I'm holding, which shows exactly why toilets are not always foolproof and why a basic vocabulary (certainly being able to say "I am diabetic") in whatever language they speak is essential!Hi I'm type 1diabetic have been for 31 years and I still go to toilets r the car to injec when I am out. I guess it is embarrassment r I think people might think l am on drugs.
I don't think you are "over-thinking" things either.
IF your diabetic team were actually T1 themselves,then they would understand that we have to think about SO many things related to our BG levels, carb intake, activities we are about to undertake, over and over every single day. The diabetic team probably get to go home and not think about diabetes until they are back at work. We don't have that option, it's always there.
I've only been T1 for 3 years, lucky to get it over 50. Well done to you for managing it for 40 years. You deserve a medal, not cbt!
This post is so spot on,i think you have a great view and understanding of this ****** thing we live with.I have one friend with diabetes but we dont see/speak too often and i always feel like the odd one out with everyone else.I have always just got on with it. Struggled and gotten through highs and lows – quite literally and although my family have been supportive, there was something lonely about it. They didn’t know what it was like to wake up in the middle of the night, sweating and feeling the dire need for something sweet but not really being able to comprehend how I was going to do that when my body did not seem to want to move the way it should. They didn’t understand the bitter tiredness after spending the day with an undying thirst, constantly running back and forth to urinate and administering injections that did not seem to be working. But they did offer words of encouragement, ran to get Lucozade when I needed it and my dear mother who was always willing to spend the night in accident and emergency when I was too sick to stay at home any more. Despite having a friend who also has type 1 diabetes, we never really talked about the nitty gritty of being a slave to finger pricks and injections. We were both children when diagnosed and in our early 20’s by the time we met properly.
Previously, I have held issue with online forums and chat rooms. Previous experience has shown me that there are far too many judgemental people out there. However, I have recently joined some Facebook pages, one just for women with type 1 diabetes, one local page, one local specifically for those using insulin pumps and one for type 1 diabetes in general, including parents or carers of someone with type 1 and now here, despite signing up 3 years ago, I tend to dip in and out. I find myself reading posts with interest regarding all sorts of things. Some asking for advice, others offering advice, some just wanting to vent their frustration about how unfair diabetes is. I even found myself writing a post or two of my own, particularly when I was really fed up and wanted to share with someone who would just understand without me having to explain anything.
I have always been the ‘sick’ one of the family. Before my diagnosis, I suffered with many chest, kidney or ear infections which had me at the doctors more often than I cared for. And then I was diagnosed, placed under the care of the endocrinologist team. In addition, I have also been under the care of gastro, orthopaedics, ophthalmology, dermatology, cardiology and immunology. This has resulted in cumulative hours sat in hospital waiting rooms, x-rays, scans and other investigations. How related to the diabetes each of these are, I do not know. Some are ongoing. Sometimes it’s not just the diabetes, but everything it affects. Being told, ‘It’s your diabetes’, like it’s some kind of explain all. Having some patronising ophthalmologist tell me, ‘You have to keep your sugar under control’ like I wasn’t already aware of that and after I told him my HbA1c has been on a downward trend (which personally I’m pretty pleased about).
I am 34 and had more hospital admissions than some in their 70’s or 80’s. Admittedly less so in the last 8years due largely to the amazing little pump as my external pancreas. Trying to explain to someone that diabetes effects everything, that sometimes you’re just too tired to go out, that you get frustrated that you’re at more risk of things like frozen shoulder or trigger finger. But it’s not even the ignorant people who just don’t understand and think you’re being a drama queen who are the worst. The worst is the judgemental people. The ones who give you disapproving looks whilst you’re eating your lunch. The ones who make comments about losing limbs because you had a little chocolate whilst running around on your feet on a ward hotter than Spain in the height of summer for 12.5 hours.
We battle ignorance, exhaustion, frustration, judgement, despair and pain from testing and injecting. Yet we live for the triumphs of getting a good reading after bolusing for a meal, waking up with a reading that puts you in a good mood for the rest of the day, because lets face it, anything too low or too high can result in headaches, tiredness, grumpiness, and general feelings of deflation.
We didn’t ask for this. We didn’t do something that we knew would cause this. Our pancreas just stopped working properly.
This post is so spot on,i think you have a great view and understanding of this ****** thing we live with.I have one friend with diabetes but we dont see/speak too often and i always feel like the odd one out with everyone else.
I was diagnosed at age 6 in the days where technology was non existent.Im rambling now but just wanted to say i loved your post x
I was diagnosed in 1976,think dinosaurs were still aroundThank you. I was diagnosed in 1994. Insulin pumps were heard of but rare due to the expense and not being available on the wonderful NHS.
@Oblomov You are a magic person and are doing grand. I've been T1 for less than a year and think just being me is hard but you handling family life is truly awesome. Take a bow!!I find that no one other than other T1 diabetics understand what its like. Even some of those dont. Maybe because their diabetes is easier to manage? Mine certainly is not, it is very brittle and im quite an emotional diabetic.
I like other posters have been told to ease up, that I'm overthinking things.
I'm a mother of two, I've been diabetic for over 40 years since, since birth and I hold down a part-time job and I spend half my life like other mothers balancing two boys - playing football part-time job, mufti days, parents evening etc.
as soon as I wake up in the morning my first thoughts before I even open my eyes are: Am I low; did I go hypo in the night;has my husband already gone to work - am I in charge of the boys; am I walking my youngest to school or driving - ie do I need less carbs or more carbs- etc.
and I make those kind of decisions many many times per day.
Risk analysis.
I'm told by my Diabetic Team that I'm over-thinking things - That I need cbt. I find that offensive. Surely many diabetics go through these thought processes.
I can see others have posted that they do.
Would appreciate responses / replies to that specifically.