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Libre sensors at Superdrug

Latest email from Superdrug:

Subject
Superdrug Customer Services enquiry

Response By E-mail (04/05/2018 05.00 PM)
Hi Alexandra

Thanks for your reply.

I've double checked this for you, and the form that needs to be completed at the pharmacy is a VAT Exemption form. All Superdrug pharmacies should have been made aware of this now, as a memo was sent from our head office.

I've passed your feedback and last email to our Head of Pharmacy, and if I can be of any further help please get back in touch by phone on 03456 710 709 or by email.

Kind Regards

Janet

staremail2.jpg

The Superdrug Customer Team
 
The Employment Appeal Judge, who, it turns out was T2, decided a diet controlled T2 wasn't covered by the Equality Act 2010, as:

"statutory guidance made clear that a condition controlled by a minor alteration of a diet was not a long term condition restricting the ability of the Claimant to carry out ordinary day-to-day tasks."
Low carb is not a MINOR alteration!
 
@Alexandra100 you are being a bit optimistic I think. You don't even have pre-diabetes, officially at least. You are simply trying to avoid it, and that may apply to many other people who are close to it.
 
@Alexandra100 you are being a bit optimistic I think. You don't even have pre-diabetes, officially at least. You are simply trying to avoid it, and that may apply to many other people who are close to it.
Actually the diet only stipulation doesn't apply to me, since I am currently prescribed Metformin. Several contributors to this thread have mentioned possible savings / expenses to the NHS. It seems to me that if people obliged to self-fund can save themselves VAT on expensive monitors and strips by being prescribed Metformin, which is currently recommended by NICE for pre-diabetics to help them avoid progressing to diabetes, they might be tempted to ask their GPs for it and then if their hearts are set on being med free, throw away the pills!!! Anyway @Bluetit1802, whose side are you on? Here I am beavering away firing off emails to Superdrug in the hopes of saving us all a lot of money, and you want to insist that I should pay VAT?
 
Thanks again, @Alexandra100, you've given me an idea. My HbA1C is up and down like a yo-yo and I have great difficulty trying to figure out why that is happening - which is one of the reasons why I would love to be able to afford the Libre, even if only intermittently. Am due to see my GP next week, so I think I'll take the opportunity to raise the question of metformin. I have read from comments on here that it has several beneficial properties once you get over the initial tummy-troubles. The other option, of course, is to let my BS 'drift' upto the magic 48, and take it from there! :meh:
 
Thanks again, @Alexandra100, you've given me an idea. My HbA1C is up and down like a yo-yo and I have great difficulty trying to figure out why that is happening - which is one of the reasons why I would love to be able to afford the Libre, even if only intermittently. Am due to see my GP next week, so I think I'll take the opportunity to raise the question of metformin. I have read from comments on here that it has several beneficial properties once you get over the initial tummy-troubles. The other option, of course, is to let my BS 'drift' upto the magic 48, and take it from there! :meh:
I am currently very enthusiastic about Metformin, but with the caveat that if it is a choice between low carb diet and Metformin, the low carb diet would win. But why should it be either or? The respected writers on diabetes, Dr Bernstein and Jenny Ruhl, both speak highly of Metformin. I have been very discouraged by the fact that even eating <20g carbs daily I could not get my bg anywhere near the level I am aiming for. I am convinced that even with A1cs of 37 to 41 I have developed several important diabetic complications. Ideally I would like to get my A1c down to 31, which is the level considered truly normal. Dr Bernstein insists that if one can maintain normal bgs over a long period one can reverse many diabetic complications, even severe ones. I have been very discouraged because even eating <20g carbs daily I would see my bg rise every day in the afternoon and evening.

With difficulty, I convinced my GP to prescribe Metformin. I began on just 500mg daily and have increased slowly. I very recently asked my GP to prescribe me Glucophage XR 2000mg daily. Dr Bernstein claims that Glucophage, the original form of Metformin, is much more effective than the generic forms. Since starting Glucophage at this higher dose I have seen a big change. I have less bowel loosening and better bgs. Before I was seeing 5s, going up to a few 6s most days, with the occasional 4. Now I see lots of 4s with an occasional 5. I haven't seen a 6 since I began Glucophage. This in turn is motivating me to be very careful about my LC diet. I don't mind the restrictions too much, but to make all that effort without reward was soul destroying.

I suggest printing out the NICE guidance below to give to your GP, as it is fairly recent and many health professionals have not heard of it yet:

"1.19 Metformin
See why the committee made the 2017 recommendation on metformin.

1.19.1 Use clinical judgement on whether (and when) to offer metformin[6] to support lifestyle change for people whose HbA1c or fasting plasma glucose blood test results have deteriorated if:

  • this has happened despite their participation in intensive lifestyle-change programmes or

  • they are unable to participate in an intensive lifestyle-change programme,

    particularly if they have a BMI greater than 35. [2017]
1.19.2 Discuss with the person the potential benefits and limitations of taking metformin, taking into account their risk and the amount of effort needed to change their lifestyle to reduce that risk. Explain that long-term lifestyle change can be more effective than drugs in preventing or delaying type 2 diabetes. Encourage them to adopt a healthy diet and be as active as possible. Where appropriate, stress the added health and social benefits of physical activity (for example, point out that it helps reduce the risk of heart disease, improves mental health and can be a good way of making friends). Advise them that they might need to take metformin for the rest of their lives and inform them about possible side effects. [2012]

1.19.3 Continue to offer advice on diet and physical activity along with support to achieve their lifestyle and weight-loss goals. [2012]

1.19.4 Check the person's renal function before starting treatment, and then twice yearly (more often if they are older or if deterioration is suspected). [2012]

1.19.5 Start with a low dose (for example, 500 mg once daily) and then increase gradually as tolerated, to 1500–2000 mg daily. If the person is intolerant of standard metformin consider using modified-release metformin. [2012]

1.19.6 Prescribe metformin for 6–12 months initially. Monitor the person's fasting plasma glucose or HbA1c levels at 3-month intervals and stop the drug if no effect is seen.[2012]"

https://www.nice.org.uk/guidance/PH38/chapter/Recommendations#metformin

You might also like to note carefully the beneficial side effects attributed to Metformin. I think in the end it was the beneficial effects on the heart that swung it for me with my GP, as she thinks that as regards diabetes I am making a fuss about nothing, but she knows I do have AF, sleep apnoeia, and a strong family history of heart disease and stroke.

https://www.diabetesdaily.com/blog/5-surprising-potential-benefits-of-metformin-324858/

Good luck!
 
Cheers @Alexandra100 - a goodly bit of information there for me to chew on. Have printed off the NICE guidelines and will definately take them with me next week. My gp is not normally very conducive to "discussion" (I suppose because of time constraints). I've had all the lifestyle change stuff, and diet a-la Eatwell Plate ages ago, which did me no good at all, so it's likely to be a bit of a struggle to get past that, but one can only try. My cholesterol was v. high recently, so I think the talk will be mostly about statins, which I shall have to argue about - but if the metformin can have the double benefit of BG and potential heart issues then that should help my case. Fingers crossed ....
 
Maybe this should be a sticky thread?

People seeking to buy Libre sensors may find the following email useful. I am surprised to read Superdrug's demand for an "exempt card" as I had not heard of these before. Can anyone enlighten me?

Superdrug Customer Services enquiry

Response By E-mail (03/05/2018 10.33 AM)
Hi Alexandra

Thanks for taking the time to contact me about the Freestyle Libre Sensors.

This has been raised and we've spoken to several different stores and have been given different answers each time. Head office have looked into this and sent out communication to all pharmacies to make sure the correct price is quoted. The price of this product if you're diabetic is £35.00. If you're not diabetic it's £42.00 (as non-diabetics get charged VAT) but you'll be able to show an exempt card if you are to get it for £35.00.

To order these, you can go into your local Superdrug that has a pharmacy or you can call up and ask to order these specifically as they don't always keep them in store.

I'm sorry for any issues caused by this, if there is anything else I can do to help please email me back or call us on 0345 671 0709.

Kind regards


Zac

How long do the sensors last?
 
Have you read this?

The University of Bath, in collaboration with medical scientists and academics worldwide are currently developing a needle-less, non-invasive, adhesive patch.

This is certainly revolutionary and when it has passed clinical trials, WHO and UK government approval, we will have to say goodbye to painful needles forever ...and even to FreeStyle Libre!

Watch this space...

http://www.bath.ac.uk/announcements/bloodless-revolution-in-diabetes-monitoring/
 
Actually the diet only stipulation doesn't apply to me, since I am currently prescribed Metformin. Several contributors to this thread have mentioned possible savings / expenses to the NHS. It seems to me that if people obliged to self-fund can save themselves VAT on expensive monitors and strips by being prescribed Metformin, which is currently recommended by NICE for pre-diabetics to help them avoid progressing to diabetes, they might be tempted to ask their GPs for it and then if their hearts are set on being med free, throw away the pills!!!

You do not need to be on Metformin to claim VAT exemption. All you need is to be suffering from a chronic illness such as diabetes. There is no stipulation that you need to be medicated for diabetes. The medication stipulation is only for the prescription charge exemption certificate, which you don't need anyway.

I am pleased for you that your numbers have improved so much. :)
 
In that employment law case the only change to the diet was avoiding drinks with a lot of suger in them. Hence don't assume a case would go the same way with a full very low carb diet if someone GP says they must keep to it.
 
Have you read this?

The University of Bath, in collaboration with medical scientists and academics worldwide are currently developing a needle-less, non-invasive, adhesive patch.

This is certainly revolutionary and when it has passed clinical trials, WHO and UK government approval, we will have to say goodbye to painful needles forever ...and even to FreeStyle Libre!

Watch this space...

http://www.bath.ac.uk/announcements/bloodless-revolution-in-diabetes-monitoring/
Yes, that sounds so much better because less invasive and maybe cheaper. But I don't think I can wait. I feel the need for the info. that the Libre could give me NOW!!!
 
My gp is not normally very conducive to "discussion" (I suppose because of time constraints).
Yes, IMO part of the art of getting what one wants from GPs is to be very mindful of this and present them with a clear demand and simple, easy to master evidence. I suggest highlighting the parts of the Nice document that are relevant to you so your GP can take them in at a glance. On the other hand, I think it also helps me that my GPs know that I am capable of arguing my case fluently and at length, so that behind my simple-to-grant request is the implied threat of a prolonged debate which could last far longer than the allotted 10 minutes. Grant demand and see happy, grateful patient out of the door in 2 minutes, or argue the toss with opinionated but extremely well informed patient who is still sitting there after 20. With any luck it should be a no-brainer.
 
My cholesterol was v. high recently, so I think the talk will be mostly about statins, which I shall have to argue about
My cholesterol was high in my last blood test, the only one I have had since starting low carb. Some people seem to find their cholesterol settles down after a few months. I am hoping this will be the case with me. Have you researched the latest thinking about cholesterol - the importance of the ratios rather than the overall number? Was everything bad, ? In my case LDL was up, but trigs were good and HDL spectacular, which helped my argument.
 
Grant demand and see happy, grateful patient out of the door in 2 minutes, or argue the toss with opinionated but extremely well informed patient who is still sitting there after 20. With any luck it should be a no-brainer.

LOVE IT ! You're not available, by any chance, at 10.20 next Friday ??? :D I jest of course, but hope that on the day I can match your ability in the arena, as it were.

My cholesterol was high in my last blood test, the only one I have had since starting low carb. Some people seem to find their cholesterol settles down after a few months. I am hoping this will be the case with me. Have you researched the latest thinking about cholesterol - the importance of the ratios rather than the overall number? Was everything bad, ? In my case LDL was up, but trigs were good and HDL spectacular, which helped my argument.

Yes, I have read about the ratios and the good/bad LDL particles etc. and have taken notes of what to check and how to calculate ratios. Unfortunately I can't use the same argument because a couple of years ago our local CCG stopped gps and/or labs from providing any breakdowns so we get nothing except the total figures. I have been considering getting a re-test done privately through Medichecks but that would mean either persuading the practice nurse to draw bloods for me, or paying extra to use one of their nominated clinics.
 
LOVE IT ! You're not available, by any chance, at 10.20 next Friday ??? :D I jest of course, but hope that on the day I can match your ability in the arena, as it were.



Yes, I have read about the ratios and the good/bad LDL particles etc. and have taken notes of what to check and how to calculate ratios. Unfortunately I can't use the same argument because a couple of years ago our local CCG stopped gps and/or labs from providing any breakdowns so we get nothing except the total figures. I have been considering getting a re-test done privately through Medichecks but that would mean either persuading the practice nurse to draw bloods for me, or paying extra to use one of their nominated clinics.
Doesn't that mean there's no point in having the blood test, unless other tests are also included?
 
a couple of years ago our local CCG stopped gps and/or labs from providing any breakdowns so we get nothing except the total figures.
That means your cholesterol test gives your GP has no grounds for insisting on recommending statins, since for all s/he knows most of the total may be made up of HDL.
 
LOVE IT ! You're not available, by any chance, at 10.20 next Friday ??? :D I jest of course, but hope that on the day I can match your ability in the arena, as it were.
You are very kind, but I must admit that out of the large group practice I am signed up to, there are only two GPs susceptible to my tactics.
 
That means your cholesterol test gives your GP has no grounds for insisting on recommending statins, since for all s/he knows most of the total may be made up of HDL.

I believe that NICE now recommends surgeries to do the non-HDL amount for use in the CVD risk assessment they do. Labs were instructed to do this. So even without any breakdown, we can work out our HDL and also the total of the LDL and trigs. What we can't do is separate the LDL and trigs.

https://www.nice.org.uk/guidance/cg181/chapter/2-Implementation-getting-started
 
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