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- 8
Hello,
I am new to this forum. I decided to start a thread because I feel kinda alone when it comes to my dissease. I think it would be great to get to know other people wherever in the world they might be.
Let's jump into it.
37 years old from Belgium and used to be a heavy weight (bout 120 kg ) when I was 27. Then around the same age I decided to start doing sports and I succeeded to lose 20 and with the help of a dietist I managed to get my weight down till 87. Soon after I achieved that I have started to get a few weird symptoms, for an example, like I don't have a left arm , troubled sight and not able to focus. Cold feeling and tingling in the face accompanied with goosebumps on one side of my body. I didn't know why I had those and for a year or so I thought it might be overwork or stress.
Till one day I was at my sister's house and she told me that I looked pale even I felt well. Bout 15 minutes later I started to feel unwell and I wasn't able to eat something, I laid down in her sofa legs up and she called a doctor. The doctor came and decided to measure my glucose and told me that I was 54 mmoll. Not very sure what that meant he told me it was suffering a hypo and that I needed to eat.
I ate and 2 hours later I felt had again , then I felt into a viscious circle of eating and feeling bad after my meals . Laying in bed after a meal one day I decided to take an appointment with my doctor.
The same day I went the doc measured my glucose after my story and told me I have 70 mmoll. I had to go to a specialist who got me diagnosed with hyper insulinism.
Here I am nowadays 3 years later after my diagnose, I take metformin 850 2 times a day , when I have a bad moment my doc puts me on 3 a day.
I can barely practice sports but I have to , max 30 minutes of cardio bout 3 times a week. I suffer lack of energy during my work ( I am a team leader and postmaster ). Sometimes I feel drunk , sometimes I feel great. I suffer about 3 hypos a week , sometimes even after eating some fruit.
I have a few questions for people who suffer the same dissease.
What should I avoid ? , I have noticed that coffee triggers hypos for me , also coke cola light or zero. Sometimes an apple is not enoght or an orange doesn't relieve my hypo. So I eat two at once. This is heavy for me at times.
I lack people who suffer from the same dissease around me , someone to talk to and relieve my stress and anxiety that comes together with the dissease.
Is there anyone ? Please share your pain . I would like to know if the symptoms are the same , how you deal with it , how you changed your life.
I am new to this forum. I decided to start a thread because I feel kinda alone when it comes to my dissease. I think it would be great to get to know other people wherever in the world they might be.
Let's jump into it.
37 years old from Belgium and used to be a heavy weight (bout 120 kg ) when I was 27. Then around the same age I decided to start doing sports and I succeeded to lose 20 and with the help of a dietist I managed to get my weight down till 87. Soon after I achieved that I have started to get a few weird symptoms, for an example, like I don't have a left arm , troubled sight and not able to focus. Cold feeling and tingling in the face accompanied with goosebumps on one side of my body. I didn't know why I had those and for a year or so I thought it might be overwork or stress.
Till one day I was at my sister's house and she told me that I looked pale even I felt well. Bout 15 minutes later I started to feel unwell and I wasn't able to eat something, I laid down in her sofa legs up and she called a doctor. The doctor came and decided to measure my glucose and told me that I was 54 mmoll. Not very sure what that meant he told me it was suffering a hypo and that I needed to eat.
I ate and 2 hours later I felt had again , then I felt into a viscious circle of eating and feeling bad after my meals . Laying in bed after a meal one day I decided to take an appointment with my doctor.
The same day I went the doc measured my glucose after my story and told me I have 70 mmoll. I had to go to a specialist who got me diagnosed with hyper insulinism.
Here I am nowadays 3 years later after my diagnose, I take metformin 850 2 times a day , when I have a bad moment my doc puts me on 3 a day.
I can barely practice sports but I have to , max 30 minutes of cardio bout 3 times a week. I suffer lack of energy during my work ( I am a team leader and postmaster ). Sometimes I feel drunk , sometimes I feel great. I suffer about 3 hypos a week , sometimes even after eating some fruit.
I have a few questions for people who suffer the same dissease.
What should I avoid ? , I have noticed that coffee triggers hypos for me , also coke cola light or zero. Sometimes an apple is not enoght or an orange doesn't relieve my hypo. So I eat two at once. This is heavy for me at times.
I lack people who suffer from the same dissease around me , someone to talk to and relieve my stress and anxiety that comes together with the dissease.
Is there anyone ? Please share your pain . I would like to know if the symptoms are the same , how you deal with it , how you changed your life.