Type 1'stars R Us

[LooperCat]

@helensaramay - I’ll trade you for “tubeylessness”

 

[Robinredbreast]

@Robinredbreast we're type ones. Of COURSE we’ve done the maths

Oh rat's

 

[becca59]

I've bought home about 1kg of blackberries, though not quite all are going in the freezer as I've just tested some! Smaller, not as sweet and definitely pippier, but as my taste for sweeter things has diminished significantly in recent years, I really liked the fact they weren't as sweet as other years.

Definitely a pootling about at home day - it's rained. I am not complaining.

I too went blackberrying today though I call it brambling. Just under 2 kilos. They varied in quality, definitely not the best year for them. Anyway all washed and at present in freezer on trays before putting into bags. I use them for my brekkie in rotation with raspberries. 80gms worth with 100gms Greek Yoghurt. Planning quite a few more picking sessions over the next few weeks. Cheap breakfast! But messy hands

 

[smc4761]

I too went blackberrying today though I call it brambling. Just under 2 kilos. They varied in quality, definitely not the best year for them. Anyway all washed and at present in freezer on trays before putting into bags. I use them for my brekkie in rotation with raspberries. 80gms worth with 100gms Greek Yoghurt. Planning quite a few more picking sessions over the next few weeks. Cheap breakfast! But messy hands

I have recently discovered the joy of greek yoghurt and fruit for brekkie. I cheat a bit though and use the frozen fruit . Just keep forgetting to take it out of freezer the night before. Also throw in a spoonful of muesli and a sprinkling of chai seeds

I dont seem to spike quite as much with this

 

[porl69]

@helensaramay - I’ll trade you for “tubeylessness”

Hi Mel. Nothing to do with this post. I am on the app and can't tag you.
Are you on the FB group "pimp my pod"?
I hate exercise BUT love to walk. Can't or will not run/jog don't like bikes. I used to play table tennis in my youth and was pretty good. Don't play much now as it's difficult with 1 eye lol

 

[LooperCat]

Hi Mel. Nothing to do with this post. I am on the app and can't tag you.
Are you on the FB group "pimp my pod"?
I hate exercise BUT love to walk. Can't or will not run/jog don't like bikes. I used to play table tennis in my youth and was pretty good. Don't play much now as it's difficult with 1 eye lol

I’m not but will go for a rummage, thank you! I like this idea...

​

 

[porl69]

I’m not but will go for a rummage, thank you! I like this idea...

View attachment 27968​

Winner

 

[DCUKMod]

I just don’t get the endorphins other people do from physical activity. It just makes me feel tired and really horrible. PE lessons at school were daily torture - my teacher was convinced I am just lazy and because I’m tall I should therefore be super athletic. I am seeing the rheumatologist later in the year (my appointment this month got rearranged) as they are investigating the possibility of fibromyalgia or lupus. I did 7k steps around Cardiff yesterday and can barely get out off the sofa today. I have very hypermobile joints too - if I put any weight through a bent knee, as when running, my kneecaps dislocate; I can just about manage stairs. So it’s very painful for me as well. Tried yoga and dislocated my hip

I can’t recall if I’ve mentioned any of this before, so forgive me if I’m repeating myself! But I do feel T1 adds an extra weight to an already heavy burden - as well as the pain and fatigue aspects, I also have to consider my glucose levels when I do anything active. I get postural hypotension too, so I also have to make sure I’ve had enough salt before going for a walk to the post office

Have you had the testing done yet for Lupus and the general connectivtive tissue disorders, Mel?

You mentioned recently that your thyroid is a bit "off" (can't recall exactly how you described it), but not "off" enough for a dignosis? Have you discussed trialling some meds with either your GP or Endo? I've had some fascinating discussions around the hormonal and autoimmune stuff over that last couple of years.

 

[LooperCat]

Have you had the testing done yet for Lupus and the general connectivtive tissue disorders, Mel?

You mentioned recently that your thyroid is a bit "off" (can't recall exactly how you described it), but not "off" enough for a dignosis? Have you discussed trialling some meds with either your GP or Endo? I've had some fascinating discussions around the hormonal and autoimmune stuff over that last couple of years.

I’ve had a battery of bloods taken, including vitamin B deficiency, as I’m very fatigued. I have a genetic point mutation, where my collagen isn’t coiled tightly enough, so none of my joints are held together properly - combined with femoral-patella dysfunction (the dip my kneecaps sit in isn’t formed properly), so they float off around the back of my leg at the drop of a hat. Thyroid is at the bottom end of the normal range, just a smidge above the NICE treatment threshold. Seeing my Endo in a month so will give him a list of all the issues - my hair is falling out at an alarming rate. It’ll be the purple wig full time at this rate! I now know specific bloods to ask for and why, so will go in armed with the trusty battle handbag!

 

[Knikki]

I always feel with T1D we have to work twice as hard as anyone else to stay healthy, the half hour a day brisk walk is just not enough, those 5 a day fruit and veg just aren't enough, it's very demanding.

Just following the conversation between @Alison54321 , @helensaramay and @Mel dCP and I am still smarting at the "did Yoga and dislocated my hip"

It is an interesting discussion.

I've grown up with diabetes I don't know any different so I guess it is part of me and a part of how I am (and before Mr Angry arrives, yes life would have been easier with out it) but "we have to work twice as hard" I can see where you are coming from but I'm not sure that I try that hard to do anything.

Yes I hated PE at school as well, all rugby, cricket and totally pointless running round a track or cross country runs but I never gave diabetes a second thought.

Those days it was one injection a day (pig derived insulin I think it was), test urine (least 5 hours behind) and a check up once a year with a physician, who sat there like he was a god.

Did all the things kids did in the 70 and 80's, rode skate boards, rode on the back of bikes, went to parties, drunk bottles of Cinzarno, smoked weed, eat aunt's Sherry Trifle at Christmas with enough booze in it to sink a ship, dressed up and outrages clothes and wore make up and while yes I was aware of diabetes and it was in the back of my mind, it did not stop me, note did NOT end up in hospital or coming anything close to it.

I've always had a positive outlook to it although as Mrs Knikki pointed out in her post I do get frustrated with it.

Now I do exercise, I always have on and off, weights, 5 a side footy, squash and some other bits and bobs. Yes I do go to the gym now simply because I want to keep things working as I get older and not because I am a diabetic and need to keep fit.

I do eat nearly anything I want but like all things 'all in moderation' and as I get older I do become more aware of carbs etc but again not necessarily because of the diabetes but because I have a sedately job and sit on my fat gultinus maximus nearly all day. Which is another reason to go the gym.

To me diabetes is a game where, now I have the Etch A Sketch, is to keep the wobble line in the green, which is rather fun to do and does make things easier than they were some 5 or more years ago.

Yes I get it wrong, yes my body sometimes flips the bird and I end up sky high and crash really low and have no idea why.

But it has not stopped me from doing anything, well apart from joining the armed forces either to fly a plane (which I have done) or drive a tank

 

[DCUKMod]

I’ve had a battery of bloods taken, including vitamin B deficiency, as I’m very fatigued. I have a genetic point mutation, where my collagen isn’t coiled tightly enough, so none of my joints are held together properly - combined with femoral-patella dysfunction (the dip my kneecaps sit in isn’t formed properly), so they float off around the back of my leg at the drop of a hat. Thyroid is at the bottom end of the normal range, just a smidge above the NICE treatment threshold. Seeing my Endo in a month so will give him a list of all the issues - my hair is falling out at an alarming rate. It’ll be the purple wig full time at this rate! I now know specific bloods to ask for and why, so will go in armed with the trusty battle handbag!

The NICE treatment threshold is a nonsense. The thyroid boards on Health Unlocked are very interesting and a great source of info should you feel the need to dog a bit deeper.

 

[Alison54321]

Just following the conversation between @Alison54321 , @helensaramay and @Mel dCP and I am still smarting at the "did Yoga and dislocated my hip"

It is an interesting discussion.

I've grown up with diabetes I don't know any different so I guess it is part of me and a part of how I am (and before Mr Angry arrives, yes life would have been easier with out it) but "we have to work twice as hard" I can see where you are coming from but I'm not sure that I try that hard to do anything.

Yes I hated PE at school as well, all rugby, cricket and totally pointless running round a track or cross country runs but I never gave diabetes a second thought.

Those days it was one injection a day (pig derived insulin I think it was), test urine (least 5 hours behind) and a check up once a year with a physician, who sat there like he was a god.

Did all the things kids did in the 70 and 80's, rode skate boards, rode on the back of bikes, went to parties, drunk bottles of Cinzarno, smoked weed, eat aunt's Sherry Trifle at Christmas with enough booze in it to sink a ship, dressed up and outrages clothes and wore make up and while yes I was aware of diabetes and it was in the back of my mind, it did not stop me, note did NOT end up in hospital or coming anything close to it.

I've always had a positive outlook to it although as Mrs Knikki pointed out in her post I do get frustrated with it.

Now I do exercise, I always have on and off, weights, 5 a side footy, squash and some other bits and bobs. Yes I do go to the gym now simply because I want to keep things working as I get older and not because I am a diabetic and need to keep fit.

I do eat nearly anything I want but like all things 'all in moderation' and as I get older I do become more aware of carbs etc but again not necessarily because of the diabetes but because I have a sedately job and sit on my fat gultinus maximus nearly all day. Which is another reason to go the gym.

To me diabetes is a game where, now I have the Etch A Sketch, is to keep the wobble line in the green, which is rather fun to do and does make things easier than they were some 5 or more years ago.

Yes I get it wrong, yes my body sometimes flips the bird and I end up sky high and crash really low and have no idea why.

But it has not stopped me from doing anything, well apart from joining the armed forces either to fly a plane (which I have done) or drive a tank

I find I have to work twice as hard now, not so much when I was younger. Though of course to some degree that is choice. The old lady in the flat downstairs from me is 90, and she's lovely, but she can't go out now, on her own, her sons take her out for litle outings, but she has about three visits a day from carers.

I just have this image in my head of being in that position, and having a nurse come round one day, and misreading the instructions, and injecting 70 units of insulin instead of 7, by accident, of course, and I'd be finished off that way.

So I'd rather die walking..................so that does shape my priorities, to me independence is so very important.

 

[Robinredbreast]

I used to walk loads when I was in my twenties, giving out leaflets for a political party. Wouldn't even vote for them now, but that's another story. But I did it because I liked doing it, not because of my diabetes.

I just like walking, and I like fruit and veg.

However, because I've had it a whole lot longer than you, I was sort of curious as to why I don't seem to have any complications, as when I first had it you couldn't do blood testing strips, so it clearly wasn't good control.

So I asked the doctor if it was because I had walked a lot, and eaten lots of fruit and veg, and she made some vague affirmative noise, so I went off and searched for evidence, and found plenty of it, that these things are beneficial.

The reason why you do it is irrelevant, it is the act of doing it that matters, and I definitely think we have to do it twice as much!!!!!

I love walking too, gardening and diy is good exercise too, so no gym membership for me Hopefully in the Autumn I will be back to doing more exercise, as I love being out and about

 

[kev-w]

Just following the conversation between @Alison54321 , @helensaramay and @Mel dCP and I am still smarting at the "did Yoga and dislocated my hip"

It is an interesting discussion.

I've grown up with diabetes I don't know any different so I guess it is part of me and a part of how I am (and before Mr Angry arrives, yes life would have been easier with out it) but "we have to work twice as hard" I can see where you are coming from but I'm not sure that I try that hard to do anything.

Yes I hated PE at school as well, all rugby, cricket and totally pointless running round a track or cross country runs but I never gave diabetes a second thought.

Those days it was one injection a day (pig derived insulin I think it was), test urine (least 5 hours behind) and a check up once a year with a physician, who sat there like he was a god.

Did all the things kids did in the 70 and 80's, rode skate boards, rode on the back of bikes, went to parties, drunk bottles of Cinzarno, smoked weed, eat aunt's Sherry Trifle at Christmas with enough booze in it to sink a ship, dressed up and outrages clothes and wore make up and while yes I was aware of diabetes and it was in the back of my mind, it did not stop me, note did NOT end up in hospital or coming anything close to it.

I've always had a positive outlook to it although as Mrs Knikki pointed out in her post I do get frustrated with it.

Now I do exercise, I always have on and off, weights, 5 a side footy, squash and some other bits and bobs. Yes I do go to the gym now simply because I want to keep things working as I get older and not because I am a diabetic and need to keep fit.

I do eat nearly anything I want but like all things 'all in moderation' and as I get older I do become more aware of carbs etc but again not necessarily because of the diabetes but because I have a sedately job and sit on my fat gultinus maximus nearly all day. Which is another reason to go the gym.

To me diabetes is a game where, now I have the Etch A Sketch, is to keep the wobble line in the green, which is rather fun to do and does make things easier than they were some 5 or more years ago.

Yes I get it wrong, yes my body sometimes flips the bird and I end up sky high and crash really low and have no idea why.

But it has not stopped me from doing anything, well apart from joining the armed forces either to fly a plane (which I have done) or drive a tank

It is an interesting discussion I knew a lad in the 70's who had diabetes and he was pretty fragile at school due to the meds and testing available at that time and I know of another lad who was sent to a special needs school due to the illness, myself (as a non d) I was able to swim a length aged 4.5 and swam with the city baths club for another 10 years, played football & rugby for the junior & secondary school, local rugby colts (got me out of church on a Sunday morning ) and local football juniors, judo as a kid, boxing club from 15 till I got diagnosed at 17 so I've always messed with sport, I gave it up for a bit after diagnosis and did struggle to get some fitness back with no support from said clubs, learned to binge drink and roll joints at 18 and after a couple of years getting used to my new life and keeping my job, cracked on getting fit again then played football then rugby into my 30s at a decent amateur level, with some swimming, canoeing, windsurfing and surfing thrown for the crack, found myself single parenting my 4 & 5 year olds so settled into weights and swimming, had a bad crash n burn hypo post swim so gave that up and just trained, and I'm still here but swimming again (the 4 year old moved out last year aged 22)

What I feel I get from this is the ability to eat a moderate amount of complex carbs, I eat well, feel ok and stay reasonably positive albeit reasonably poor due to working part time, most of my peers (who I competed with) are better off than me but more stressed and aged, so as I'd have turned out similar (and if it's true weight gain can trigger t2) I maybe dodged a bullet.

End of essay

So I'd say I'm into keep fit as I feel it helps my diabetes

End of essay

 

[Robinredbreast]

I’ve had a battery of bloods taken, including vitamin B deficiency, as I’m very fatigued. I have a genetic point mutation, where my collagen isn’t coiled tightly enough, so none of my joints are held together properly - combined with femoral-patella dysfunction (the dip my kneecaps sit in isn’t formed properly), so they float off around the back of my leg at the drop of a hat. Thyroid is at the bottom end of the normal range, just a smidge above the NICE treatment threshold. Seeing my Endo in a month so will give him a list of all the issues - my hair is falling out at an alarming rate. It’ll be the purple wig full time at this rate! I now know specific bloods to ask for and why, so will go in armed with the trusty battle handbag!

Hi Mel, sad to read of your medical conditions, but you are a tough cookie, who can give as good as you get.
My adult daughter, the one who has had baby Cleo, suffer's from #Ehlersdanlos#edstype3#hypermobility. Years ago her surgery didn't believe her symptoms and said it was all in her head, her daughter, my granddaughter suffers from it too, but not as severe. When my daughter moved to another town about 4 years ago, the new Gp's surgery listened and asked her if her last GP referred her for tests.......the answer was no. New surgery were straight on to it and at last she was believed and treated. I remember years ago when she was at secondary school, she used to complain of shoulder pain, we thought it was down to carrying her heavy bag over her shoulder, as it was a 25 minute walk there and back, so it may of started then !!



#Ehlersdanlos #edstype3 #hypermobility

 

[porl69]

Just following the conversation between @Alison54321 , @helensaramay and @Mel dCP and I am still smarting at the "did Yoga and dislocated my hip"

It is an interesting discussion.

I've grown up with diabetes I don't know any different so I guess it is part of me and a part of how I am (and before Mr Angry arrives, yes life would have been easier with out it) but "we have to work twice as hard" I can see where you are coming from but I'm not sure that I try that hard to do anything.

Yes I hated PE at school as well, all rugby, cricket and totally pointless running round a track or cross country runs but I never gave diabetes a second thought.

Those days it was one injection a day (pig derived insulin I think it was), test urine (least 5 hours behind) and a check up once a year with a physician, who sat there like he was a god.

Did all the things kids did in the 70 and 80's, rode skate boards, rode on the back of bikes, went to parties, drunk bottles of Cinzarno, smoked weed, eat aunt's Sherry Trifle at Christmas with enough booze in it to sink a ship, dressed up and outrages clothes and wore make up and while yes I was aware of diabetes and it was in the back of my mind, it did not stop me, note did NOT end up in hospital or coming anything close to it.

I've always had a positive outlook to it although as Mrs Knikki pointed out in her post I do get frustrated with it.

Now I do exercise, I always have on and off, weights, 5 a side footy, squash and some other bits and bobs. Yes I do go to the gym now simply because I want to keep things working as I get older and not because I am a diabetic and need to keep fit.

I do eat nearly anything I want but like all things 'all in moderation' and as I get older I do become more aware of carbs etc but again not necessarily because of the diabetes but because I have a sedately job and sit on my fat gultinus maximus nearly all day. Which is another reason to go the gym.

To me diabetes is a game where, now I have the Etch A Sketch, is to keep the wobble line in the green, which is rather fun to do and does make things easier than they were some 5 or more years ago.

Yes I get it wrong, yes my body sometimes flips the bird and I end up sky high and crash really low and have no idea why.

But it has not stopped me from doing anything, well apart from joining the armed forces either to fly a plane (which I have done) or drive a tank

Brilliant. Well said mate. I am pretty much the same T1D since I was 6, never known not being diabetic. I just don't exercise as much as i should do. Still eat what I want, when I want BUT I now know how to bolus for it correctly. Diabetes has never been a good friend to me - due to my abuse if it in my twenties - and now paying the price. Will NEVER let it get me down....not my style at all.
Anyway 6.6 now. 14 units of Tresiba and off to bed and see what T1D throws up for me to deal with tomorrow . Gnite all

 

[karen8967]

Goodnight everyone sweet dreams

 

[Robinredbreast]

Off to bed soon, some eye drops to take and a couple of tablets, so going to test now ( I had 1/2 a pizza tonight) or .................

 

[Robinredbreast]

Goodnight everyone sweet dreams

Sleep well Karen, night night zzzzz

 

[karen8967]

Sleep well Karen, night night zzzzz

Goodnight robs x