Going To Self Fund Pump Or Should I

[Engineer88]

Type 1 and eat at present once a day

Have you tried eating more often with lower carbs? I would go into starvation mode if I tried to eat onvce a day.

I understand not everything works for everyone, just a thought

 

[Bricktop]

Have you tried eating more often with lower carbs? I would go into starvation mode if I tried to eat onvce a day.

I understand not everything works for everyone, just a thought

i have tried it all

 

[NicoleC1971]

Hi b.ricktop, this must be tough for you given your physically demanding job. I am not a builder but I am physically active being a trainer at a gym and jumping up and down quite a bit with a tubed pump (Roche). I have it on a short lead for mine and it has only once escaped its' moorings in 6 years so I would not let that put you off.
I got a pump by having an active life with the help of a sympathetic doctor!
I also notice that if I am active and do not eat my liver pumps out glucose in response to my need.
The sheer amount of insulin you are using to try and get on top of those sugars sounds like insulin resistance given that the standard ratio is 1:1. I don't know what is standard for a guy your size though. Has this been mentioned?
If you were less sensitive to your insulin then it might make sense to reduce your need for insulin by eating less carb but eating more meals of fat and protein so that your body could get used to using this food for energy as well as its own fuel tank so that when your muscles need energy they can get it without your liver's help! Also dare I say it, you may be offered metformin.

 

[Bricktop]

Hi b.ricktop, this must be tough for you given your physically demanding job. I am not a builder but I am physically active being a trainer at a gym and jumping up and down quite a bit with a tubed pump (Roche). I have it on a short lead for mine and it has only once escaped its' moorings in 6 years so I would not let that put you off.
I got a pump by having an active life with the help of a sympathetic doctor!
I also notice that if I am active and do not eat my liver pumps out glucose in response to my need.
The sheer amount of insulin you are using to try and get on top of those sugars sounds like insulin resistance given that the standard ratio is 1:1. I don't know what is standard for a guy your size though. Has this been mentioned?
If you were less sensitive to your insulin then it might make sense to reduce your need for insulin by eating less carb but eating more meals of fat and protein so that your body could get used to using this food for energy as well as its own fuel tank so that when your muscles need energy they can get it without your liver's help! Also dare I say it, you may be offered metformin.

Hi, i used to eat a Atkins type diet and would have bacon and eggs for breakfast etc etc, but i would still need 20 units of novo for that breakfast, so in the end I decided not to have breakfast at all so I did not have to inject any novo, i am of a rugby type player build and not fat and round but yes its blood hard humping around that weight, m thyroid is knackered as well which is as much of the issue as the type 1, they call it hashimotos disease

 

[donnellysdogs]

@Bricktop - are you with Northampton General Hospital? They used to be pretty good with listening whilst Charles Fox was there. He may have retired now though.

Late to conversation though so not sure if you are at that hospital.
You are entitled to choose your hospitals and I lived in Northampton but chose Milton Keynes and got exceptional help from them.

I worry about the amount of insulin you are currently taking and have assumed you are taking the normal u100 strength. There are different strengths that would help when injecting as you wouldn’t need so much...

I was a gardener and always wore my pump on my arm and my tubes under clothes. Never had a problem with the Accuchek pumps that had a remote control that you could action everything with.

 

[Engineer88]

@Bricktop - are you with Northampton General Hospital? They used to be pretty good with listening whilst Charles Fox was there. He may have retired now though.

Late to conversation though so not sure if you are at that hospital.
You are entitled to choose your hospitals and I lived in Northampton but chose Milton Keynes and got exceptional help from them.

I worry about the amount of insulin you are currently taking and have assumed you are taking the normal u100 strength. There are different strengths that would help when injecting as you wouldn’t need so much...

I was a gardener and always wore my pump on my arm and my tubes under clothes. Never had a problem with the Accuchek pumps that had a remote control that you could action everything with.

I found Northampton useless personally - I would refer to a tertiary hospital either the Churchill in oxford or Addenbrooks in Cambridge if I were you @Bricktop

 

[Bricktop]

@Bricktop - are you with Northampton General Hospital? They used to be pretty good with listening whilst Charles Fox was there. He may have retired now though.

Late to conversation though so not sure if you are at that hospital.
You are entitled to choose your hospitals and I lived in Northampton but chose Milton Keynes and got exceptional help from them.

I worry about the amount of insulin you are currently taking and have assumed you are taking the normal u100 strength. There are different strengths that would help when injecting as you wouldn’t need so much...

I was a gardener and always wore my pump on my arm and my tubes under clothes. Never had a problem with the Accuchek pumps that had a remote control that you could action everything with.

Hi I have not seen anyone since the 2 years i moved to the Kettering area, 2 appointments to see the endo at Kettering cancelled for no reason. which goes back to my struggle to get good care, I have not been told about stronger insuln, and to be honest i get all my info from places like this

 

[donnellysdogs]

Hi I have not seen anyone since the 2 years i moved to the Kettering area, 2 appointments to see the endo at Kettering cancelled for no reason. which goes back to my struggle to get good care, I have not been told about stronger insuln, and to be honest i get all my info from places like this

If you can get to Addenbrookes ok then, personally I would ask your GP to refer you to Addenbrookes.

You are entitled to go to any hospital you want...

Addenbrookes is good. I am now there. I had to ask GP to transfer me from Peterborough. The Diabetes Manager from Peterborough actually came to my house and admitted the didn’t have experience enough in their team. At the time I had already asked GP to refer me anyway....

GP is primary care
General hospitals like Northampton and Kettering are Secondary care
Addenbrookes and university hospitals are tertiary care meaning they have the Professors and specialists in more so than secondary care hospitals.

 

[richyb]

I found levimer did not last 24 hrs, more like 20 or 21. By splitting it into 2 doses, one in morning and one at night, they can be adjusted for day or night. My day dose was much higher than night. It worked for me

 

[tim2000s]

Hi @Bricktop - this may help in giving you some idea of the Bertie course: http://bertieonline.org.uk

As @donnellysdogs mentioned, you can get u200 humalog (which is a rapid acting), u200 Tresiba (which is an alternative long acting insulin) and u300 Toujeo (another alternative long acting). Given your dosing requirements, those would potentially be a better option for you.