Not sure where to put this...but eye shot question?

[lalaleroux]

I think I put this somewhere else, but the original way it was determined that I had diabetes (type 2) was through an eye exam.

I get them a lot. I see a low vision doctor due to nystagmus (acquired when I was a teen, no relationship to the diabetes) and double vision. We are in the process of trying to work out a distance prescription, so I get all kinds of exams. My vision waivers between 20/40 to 20/70 on any given day...that is the nature of nystagmus-varying visual acuity based on stress, tiredness, how long I have been on a computer, the alignment of the stars (ha ha joke there, but feels that way.)

Anyway, went in for a cataract consult and boom. One thing lead to another and a diabetes diagnosis was made. The signs showed in my eyes happened in less than three months, but went from nothing to OMG you have to have eye shots because of macular edema. (I call them the anti-veggie shots lol)

My question is among those of you who have had this done, how long does it take you to recover from each shot? Because of the other eye issues, it takes me a full 24 hours before my eyes starting working "together" (such as it is because they never do due to the nystagmus.) My eye always hurts for a week-think stationary needle in an eye that constantly woobles. No eye shot doctor has experience with nystagmus so we muddle along, but today I have a giant red spot in my eye from yesterday's shot.

I guess I am just wondering if by some rare, rare, rare, chance there is someone who may have this unusual combination of diabetes eye issues and nystagmus? I ask here because, among other reasons, it seems there is a lot more recognition of nystagmus in the UK. Here, hardly any one knows what it is and I am constantly explaining what is going on.

 

[jjraak]

I think I put this somewhere else, but the original way it was determined that I had diabetes (type 2) was through an eye exam.

I get them a lot. I see a low vision doctor due to nystagmus (acquired when I was a teen, no relationship to the diabetes) and double vision. We are in the process of trying to work out a distance prescription, so I get all kinds of exams. My vision waivers between 20/40 to 20/70 on any given day...that is the nature of nystagmus-varying visual acuity based on stress, tiredness, how long I have been on a computer, the alignment of the stars (ha ha joke there, but feels that way.)

Anyway, went in for a cataract consult and boom. One thing lead to another and a diabetes diagnosis was made. The signs showed in my eyes happened in less than three months, but went from nothing to OMG you have to have eye shots because of macular edema. (I call them the anti-veggie shots lol)

My question is among those of you who have had this done, how long does it take you to recover from each shot? Because of the other eye issues, it takes me a full 24 hours before my eyes starting working "together" (such as it is because they never do due to the nystagmus.) My eye always hurts for a week-think stationary needle in an eye that constantly woobles. No eye shot doctor has experience with nystagmus so we muddle along, but today I have a giant red spot in my eye from yesterday's shot.

I guess I am just wondering if by some rare, rare, rare, chance there is someone who may have this unusual combination of diabetes eye issues and nystagmus? I ask here because, among other reasons, it seems there is a lot more recognition of nystagmus in the UK. Here, hardly any one knows what it is and I am constantly explaining what is going on.

ooh not hard of being Dx like that and never heard of nystagmus, though the after effects of the shots seem unpleasant.

i know two who had eye shots who MAY be able or not to shed some light and offer advice.
@johnpol and @PenguinMum

good luck finding the help/advice you need

 

[Dexterdobe]

I have had 25 shots for a branch occlusion (bleeding) from a vein in my eye. It feels like I have a log in my eye the day I have the shot, then much better the next day. I sometimes get floating spots for a while, but they always go after a day or two. 25 shots is unusual, but nothing else seems to stop the damage to my eye caused by the bleeding. We are all different, but my experience is that any side effects from the shots are short lived and the benefits last for 4-6 weeks. Good luck with yours. ?Not nice, but I'd rather have an injection in my eye than one in my mouth at the dentist.

 

[DCUKMod]

I think I put this somewhere else, but the original way it was determined that I had diabetes (type 2) was through an eye exam.

I get them a lot. I see a low vision doctor due to nystagmus (acquired when I was a teen, no relationship to the diabetes) and double vision. We are in the process of trying to work out a distance prescription, so I get all kinds of exams. My vision waivers between 20/40 to 20/70 on any given day...that is the nature of nystagmus-varying visual acuity based on stress, tiredness, how long I have been on a computer, the alignment of the stars (ha ha joke there, but feels that way.)

Anyway, went in for a cataract consult and boom. One thing lead to another and a diabetes diagnosis was made. The signs showed in my eyes happened in less than three months, but went from nothing to OMG you have to have eye shots because of macular edema. (I call them the anti-veggie shots lol)

My question is among those of you who have had this done, how long does it take you to recover from each shot? Because of the other eye issues, it takes me a full 24 hours before my eyes starting working "together" (such as it is because they never do due to the nystagmus.) My eye always hurts for a week-think stationary needle in an eye that constantly woobles. No eye shot doctor has experience with nystagmus so we muddle along, but today I have a giant red spot in my eye from yesterday's shot.

I guess I am just wondering if by some rare, rare, rare, chance there is someone who may have this unusual combination of diabetes eye issues and nystagmus? I ask here because, among other reasons, it seems there is a lot more recognition of nystagmus in the UK. Here, hardly any one knows what it is and I am constantly explaining what is going on.

Lalaleroux - I'm fortunate enough not to have experience of either of those conditions, never mind them together, however, i do know if I had any kind of unexpected reaction to a treatment on my precious vision, I would be in contact wit her my Doctor immediately.

Here, in UK, when almost any sort of procedure is done, we are given a sheet before going home, with what we might expect and what to do if things don't seem quite right. That's usually involves phone numbers or a place to visit.

Do you receive anything like that? If you did, touch base with whichever urgent means you have.

In UK we also have a service called NHS 111, which allows us to call a sort of medical helpline. So. You have anything like that, if you don't have urgent care contact numbers?

I am not suggesting you have a very urgent thing on your hands. I don't know, but in my world, I would want reassurance, at least, asap. If you have no means of contacting your Doc, the I'd suggest a trip to the ER, or ideally and Eye ER.

Good luck with it all.

 

[kaylz91]

I've had them for diabetic macular oedema (less than a month after Type 1 diagnosis) and I am fine by that evening bar a little discomfort where the injection actually went in

I do chat to another diabetic that has had to undergo them who on last injection was left with blood in the whole eye, not sure if the redness has fully cleared yet as its not all we talk about but it didn't affect her sight and she's got another one this week, I have never heard of your other condition I'm afraid, sorry
xx

 

[Jaylee]

I think I put this somewhere else, but the original way it was determined that I had diabetes (type 2) was through an eye exam.

I get them a lot. I see a low vision doctor due to nystagmus (acquired when I was a teen, no relationship to the diabetes) and double vision. We are in the process of trying to work out a distance prescription, so I get all kinds of exams. My vision waivers between 20/40 to 20/70 on any given day...that is the nature of nystagmus-varying visual acuity based on stress, tiredness, how long I have been on a computer, the alignment of the stars (ha ha joke there, but feels that way.)

Anyway, went in for a cataract consult and boom. One thing lead to another and a diabetes diagnosis was made. The signs showed in my eyes happened in less than three months, but went from nothing to OMG you have to have eye shots because of macular edema. (I call them the anti-veggie shots lol)

My question is among those of you who have had this done, how long does it take you to recover from each shot? Because of the other eye issues, it takes me a full 24 hours before my eyes starting working "together" (such as it is because they never do due to the nystagmus.) My eye always hurts for a week-think stationary needle in an eye that constantly woobles. No eye shot doctor has experience with nystagmus so we muddle along, but today I have a giant red spot in my eye from yesterday's shot.

I guess I am just wondering if by some rare, rare, rare, chance there is someone who may have this unusual combination of diabetes eye issues and nystagmus? I ask here because, among other reasons, it seems there is a lot more recognition of nystagmus in the UK. Here, hardly any one knows what it is and I am constantly explaining what is going on.

Hi,

I've had the ant-VEGF shots to the eyes for macula edema.
Oddly, it was a suspected cataract & a refferal to a hospital ophthalmologist from a high street optician that got me the diagnosis 5 years back?
Personally, I found the Eylea shots dispersed quicker than the prevous Lucentis jabs.

The ("muppet eye." It felt like.) black or dark red spots in the eye after a sort of human bubble lamp experience is for me was normal & should disperse.
At least after a good nights sleep.. Pending on what time the previous day I had the shot?

If you are still experiencing issues after the treatment. Contact the doctor or department treating your condition.

 

[lalaleroux]

Thank you for your answers!

I am not given any kind of paperwork when I leave (this was my fourth shot) but have beenn told verbally on multiple occasions of what to look for. Friday the doctor said that one thing was that I would know if there is a problem because it would hurt more than general soreness. Soreness I have for sure.

Nystagmus is an involuntary eye movement. I happen to have idiopathic acquired (meaning they have no understanding of why I acquired it) that is different in each eye. There is no controlling the movement, it is a neurological thing. I can dampen it with Klonopin so that the movements are slower. Because the eyes do not work in conjunction with each other, my vision is not great, varies all the time, is blurry, and I have double vision.

So the eye shots are stressful, not just because of someone sticking a needle in my eye, but also because my eyes are always moving and the needle doesn't. So the soreness lasts a little while. This time, though, while the soreness is the same, the "bubble" is gone, I have a big red spot with red veins stemming from it.

I don't think it is an urgent thing, because none of the things he said to look for are happening, but that red dot is concerning. I will call first thing in the morning to check and see if that is normal.

 

[lalaleroux]

Not nice, but I'd rather have an injection in my eye than one in my mouth at the dentist.

This made me laugh...partly because I am almost phobic about things near my eyes (depth perception issues, I never really know exactly how far away or close things are) but also because my dad is a dentist and he tells me I act like his pediatric patients if I have to get a shot in my mouth.