MS

[ally1]

Sorry I haven't been around much, though I do take a peak around but stayed quiet.
Was back at the hospital yesterday. Saw the neurologist for the results of MRI and various other tests.
I have MS. To be honest after a few years struggling and many visits to see the neurologist, it's a relief to now know what's wrong. Haven't yet taken it in, though I had often had MS as I have known friends in the past that have this xx

 

[Antje77]

Oh, @ally1 , I was just thinking about you yesterday and wondering how you were.
You've surely been dealt a rough hand of cards in life, love.
Wish I could do something to make things better.
Sending you a tenfold hug!

 

[ally1]

Oh, @ally1 , I was just thinking about you yesterday and wondering how you were.
You've surely been dealt a rough hand of cards in life, love.
Wish I could do something to make things better.
Sending you a tenfold hug!

Thank you. I do think if I had been referred years ago, then at least I would have known.
Xx

 

[Brunneria]

Ally, you have my heartfelt sympathy.
You’ve had a heck of a lot to deal with, and now this.
So sorry.
Hug, hug, hug.
(I'm the meercat on the top left)

 

[ally1]

Ally, you have my heartfelt sympathy.
You’ve had a heck of a lot to deal with, and now this.
So sorry.
Hug, hug, hug.
(I'm the meercat on the top left)

Thank you.
Xxx

 

[DCUKMod]

@ally1 - What a blow for you.

All I will say is my sister-in-law lives with MS, and by-and-large lives a good life, with patches that can be pretty rubbish really, however, in recent times, more fine than bad.

It took her a very, very long time to be diagnosed, because they seem to try to rule out all manner of other stuff, prior to an MS diagnosis. Once she started on some medication, and got that settled, her quality of life improved markedly.

I do hope your experience moving forward mirrors hers.

 

[ally1]

@ally1 - What a blow for you.

All I will say is my sister-in-law lives with MS, and by-and-large lives a good life, with patches that can be pretty rubbish really, however, in recent times, more fine than bad.

It took her a very, very long time to be diagnosed, because they seem to try to rule out all manner of other stuff, prior to an MS diagnosis. Once she started on some medication, and got that settled, her quality of life improved markedly.

I do hope your experience moving forward mirrors hers.

@ally1 - What a blow for you.

All I will say is my sister-in-law lives with MS, and by-and-large lives a good life, with patches that can be pretty rubbish really, however, in recent times, more fine than bad.

It took her a very, very long time to be diagnosed, because they seem to try to rule out all manner of other stuff, prior to an MS diagnosis. Once she started on some medication, and got that settled, her quality of life improved markedly.

I do hope your experience moving forward mirrors hers.

Thinking about it, it must be around 6/7 years that I had started with the odd strange things, getting worse over those years. I realise anything like neurological diagnosis can take many years to diagnose. The more minor things have to be ruled out first.

I used to volunteer many years ago at a MS group, so saw what/how those people managed and had seen some get progressively worse, many that had episodes where they were bad.

I haven't really processed yet with the diagnosis and may all of a sudden, hit me in the face that I really need to look after myself. Also I do feel that my bipolar meds could well help because they stop any emotions. Whether that's bad or good, I just don't know.
Because my mobility had got so much worse over the psat few months, that I got myself a comfy mobility scooter. That will be a huge help getting g to my gp surgery. Though it's too big to enable to get on a bus with it.
I will still use my walker as any bit of exercise will help.

 

[Pipp]

Hi @ally1 . More hugs from me, too. I had been wondering how you were.
Sorry you have this diagnosis to deal with, but hope it will explain the symptoms you have been having for a long time now. Also hope you will get the help and support you need. Perhaps the MS group you used to help at will now be available to help you, too?
Ask for help of local authority therapy teams, too. They can assist with any adaptive equipment you might need to make your home easier to get around.
Keep us informed about how you are. Lots of people here, me included, have great respect for you, and how you deal so well with life’s problems.
Best wishes, and more hugs.

 

[Hiitsme]

So very sorry to hear this. Have been impressed with how well you have coped with so much that was thrown at you. Hugs and wishing you the best.

 

[ally1]

Hi @ally1 . More hugs from me, too. I had been wondering how you were.
Sorry you have this diagnosis to deal with, but hope it will explain the symptoms you have been having for a long time now. Also hope you will get the help and support you need. Perhaps the MS group you used to help at will now be available to help you, too?
Ask for help of local authority therapy teams, too. They can assist with any adaptive equipment you might need to make your home easier to get around.
Keep us informed about how you are. Lots of people here, me included, have great respect for you, and how you deal so well with life’s problems.
Best wishes, and more hugs.

Thank you.
I realise now that all the problems with my arms and legs are due to the MS and now, I know what it is, then I will have deal deal with it.

The group I volunteered with, I have moved miles away from there.

By a huge strike if luck, I have a one bed council bungalow that I got a few years ago. I now realise God was looking down on me
Seriously, I am so great full because I have a wet room and a shower stool that was already here when I moved in.

I already have a walker and a mobility scooter. The scooter cost a lot but will help me so much. The walker was given to me about 2 years ago from the physiotherapist. I can use the walker inside as can get through the doorways easily.
Xx

 

[ally1]

So very sorry to hear this. Have been impressed with how well you have coped with so much that was thrown at you. Hugs and wishing you the best.

Thank you.
If it wasn't for my bipolar meds that stop me having emotions, I reckon I wouldn't cope otherwisex

 

[Rachox]

So sorry to read this @ally1 , I hope you get the support and treatment you deserve. It’s not for want of trying to find what was wrong. I hope a definite diagnosis helps you to manage xx

 

[DCUKMod]

Thank you.
If it wasn't for my bipolar meds that stop me having emotions, I reckon I wouldn't cope otherwisex

Don't put yourself down, Ally. Having watched you over the years, dealing with body blow after body blow, and still coming back for more, I think you are much, much stronger than you imagine.

 

[ally1]

So sorry to read this @ally1 , I hope you get the support and treatment you deserve. It’s not for want of trying to find what was wrong. I hope a definite diagnosis helps you to manage xx

Thank you
At least now I know what's wrong.
Xx

 

[ally1]

Don't put yourself down, Ally. Having watched you over the years, dealing with body blow after body blow, and still coming back for more, I think you are much, much stronger than you imagine.

These past few years, I felt I have been to hell and back.
You know what I think of my GP. I don't feel any different about him. The interesting thing, I wonder how he will treat me now, knowing what's wrong. I don't normally hold a grudge but I would love to look him in the eye and say, well I hope I now get better treatment from you xx

 

[DCUKMod]

These past few years, I felt I have been to hell and back.
You know what I think of my GP. I don't feel any different about him. The interesting thing, I wonder how he will treat me now, knowing what's wrong. I don't normally hold a grudge but I would love to look him in the eye and say, well I hope I now get better treatment from you xx

Ally, you have been to hell and back, but back you came. That can't be ignored or dismissed.

I do understand how you feel about your GP, and it seems justified. I do hope that now you will be under decent specialist care for all your conditions you will receive what you need, and something more like you want.

I know you've had various assessments in the past, in terms of your mobility and safety at home, but don't be afraid to ask for some of those assessments to be repeated. You need to stay safe and do as much as you can to stay confident.

Don't be a stranger Ally. You're a much loved and respected member on here, and you have many friends keen to help where they can..

 

[ally1]

Ally, you have been to hell and back, but back you came. That can't be ignored or dismissed.

I do understand how you feel about your GP, and it seems justified. I do hope that now you will be under decent specialist care for all your conditions you will receive what you need, and something more like you want.

I know you've had various assessments in the past, in terms of your mobility and safety at home, but don't be afraid to ask for some of those assessments to be repeated. You need to stay safe and do as much as you can to stay confident.

Don't be a stranger Ally. You're a much loved and respected member on here, and you have many friends keen to help where they can..

What I do think should now happen, is for the neurologist, rheumatologist and ENT to interact together as to what may be interfering with each illness/disability.
Once I get over the shock of having MS, I will be on here more often, terrorising you and the mods x

 

[ally1]

I dread to think how my diabetes is at the moment, as that has been put onto the side line. As with this virus, have not had a recent hba1c. X

 

[Antje77]

I will be on here more often, terrorising you and the mods x

Looking forward to being terrorized by you, Ally
I don't think you have it in you to terrorize me, you seem too friendly for that, so I'm curious as to how you're going to pull that trick!
Good to see you're ready to get into fighting modus again, but please come here as well when you feel it gets too much, we're ready to listen and offer more hugs when needed.

 

[ally1]

Looking forward to being terrorized by you, Ally
I don't think you have it in you to terrorize me, you seem too friendly for that, so I'm curious as to how you're going to pull that trick!
Good to see you're ready to get into fighting modus again, but please come here as well when you feel it gets too much, we're ready to listen and offer more hugs when needed.

Terrorise as in probrally posting too much
X