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Please someone help me

J

Jess Shan

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Hello everyone
was wondering if someone could help me.
I am 30 and For the past year I have been suffering from low sugars. I have more around 2-3 hypos per day which are starting to take even longer to come out of .. I was told I had pre diabetes a year ago but yesterday I had a blood test confirming I have type 2 diabetes but my sugars never go higher than 7/8. So I don’t suffer from hypas just hypos I’m still not getting any answers I’m am under an endocrine team who doesn’t know what is wrong so was hoping someone here could shine some light. Thank you
 
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Jess Shan said:
I was told I had pre diabetes a year ago but yesterday I had a blood test confirming I have type 2 diabetes but my sugars never go higher than 7/8.
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How was your T2 diabetes confirmed?
If it was a hba1c test, this test is designed to tell you something about your average blood glucose over the past 3 months. If your sugars never go past 7 or 8, and you have hypos too, something doesn't add up if your hba1c is in the diabetic range.
So either you're missing some highs, or you have something going on skewing your hba1c results.

At what points do you test your blood glucose? Can it be you are missing highs?
And how low are your hypos and how do you treat them?
 
Thank you so much for replying.

Yes it was a hba1c test. All other blood tests came back normal. I could be missing some highs but when I had a libre fitted for the endocrine to see the data. I was having atleast 7 hypos never hypas they where only settled at night time. I always hypo in morning and the afternoon. My hypos go as low as 3 sometimes have hit 2.2.

They started me on acerbose which hasn’t calmed my hypos down. I eat food have an orange juice all the stuff recommend.

When at work yesterday I always hypo by 1030am so I had my breakfast and some sweets and because that didn’t work my manager had to get me a glucose gel and a cup of tea and even then I still had symptoms and lost vision in my right eye
 
Hi. I’m T2. I also suffer from hypos and put it down to not eating enough. If I have a light lunch - v small wholemeal ham salad roll - by the end of my shift at work I hardly have the energy to walk home and need a glucose tablet. I work on my feet, running about almost. I have also suffered from hypos for years (before diabetic). My sis who is not diabetic has had a reading of 2.9 before; as she hadn’t eaten that day.
Good luck and I wish you well. X
 
Test your blood 2 hrs after a meal and see what that reading is. X
 
@catinahat
Yes the doctor believes it is this. But Is this just something I’ll have to live with or is there help for it because it’s just getting worse. Oh the doctor said that’s what I am to have. Do you have any suggestions to what is best to help me come out of a hypo. Also the hypos in the morning before I eat is that normal. I wake up have a coffee with sugar then eat by half 10/11 at work when the hypo has already started but if I eat earlier I hypo more throughout the day
 
@SuNuman

This makes me feel like I’m not alone. That’s exactly the same as me. It’s horrible isn’t it. Do you have the shakes and blurred vision etc too. How do I find out my A1c?
Have you found anything that helps x
 
Jess Shan said:
or is there help for it
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It's all about what you eat, when you eat carbohydrates your pancreas releases too much insulin. So the carbs send your blood sugar high and then the excess insulin sends it too low. You treat the low with orange juice or sweets which makes your pancreas release even more insulin. It's a vicious roller-coaster of highs and lows.
The answer is not to get on the roller-coaster in the first place, avoid carbs and you will avoid the highs and the resulting lows
 
Jess Shan said:
@catinahat
Yes the doctor believes it is this. But Is this just something I’ll have to live with or is there help for it because it’s just getting worse. Oh the doctor said that’s what I am to have. Do you have any suggestions to what is best to help me come out of a hypo. Also the hypos in the morning before I eat is that normal. I wake up have a coffee with sugar then eat by half 10/11 at work when the hypo has already started but if I eat earlier I hypo more throughout the day
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@Lamont D

https://www.diabetes.co.uk/forum/threads/information-for-newbies-and-basic-stuff.87932/
 
Would you be able to give me some ideas for non carb substitutes. Which milk should I swap too and if I cut out sugar in my tea can I have sweeteners? Sorry all this is new to me. Abit overwhelming x


@catinahat
 
Jess Shan said:
Would you be able to give me some ideas for non carb substitutes. Which milk should I swap too and if I cut out sugar in my tea can I have sweeteners? Sorry all this is new to me. Abit overwhelming x


@catinahat
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Not an expert on Reactive-hypoglycemia by any means but I think a low carb diet suitable for T2 would be a good place to start.
Base your meals on meat, fish, eggs, dairy and above ground vegetables and salad. Avoid bread, pasta, rice and starchy veg like potatoes. Sweeteners are OK but it would be better if you could manage without, eventually your tastes will change and you will lose your sweet tooth.
Have a look at the link at the bottom of this post, "the nutritional thingy" it will give you more idea of how to change things
 
Jess Shan said:
Yes the doctor believes it is this.
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Is that doctor an endocrinologist or just your GP?
There are a number of possible reasons for low blood sugars, with different treatments. I believe that you need a referral to an endocrinologist to do the tests to see which one you have...
 
Jess Shan said:
coffee with sugar
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The sugar will probably cause a release of insulin and that could be causing you to go too low.
Try a good glug of double cream instead of sugar, cream will keep your blood sugar stable and is a lot more nutritious than sugar
 
EllieM said:
Is that doctor an endocrinologist or just your GP?
There are a number of possible reasons for low blood sugars, with different treatments. I believe that you need a referral to an endocrinologist to do the tests to see which one you have...
Click to expand...

Hi this is through endocrine team
 
Jess Shan said:
Hi this is through endocrine team
Click to expand...

In which case, if they've definitely diagnosed it as reactive hypoglycemia, I'd concur with @catinahat that low carb is worth a try.

Edited to add: disclaimer, I'm not a doctor and don't have RH. This is not medical advice, but it does seem to be what a lot of the folk on the RH forum do to control their levels.
 
Hi and welcome to our forum.
what I can glean from your posts is you feel as I did when I was going through the hypos prior to diagnosis and finding myself looking for answers and how to stop the hypos, but there was at the time only one place to find the only advice that worked for me. It was the only place advocating going keto.
If it is RH, the problem you have is intolerance to many foods which will trigger the excess insulin you produce that causes the hypos.
Where your doctors are not understanding the science, they are trying to treat the symptoms after the trigger has already happened. It will of stop the hypos of stop the symptoms.
What I realised with help was to stop the trigger. If it is food, that is causing the hylos, then don't eat that food!
I was being told for over a decade that the eat well plate would make me healthy. When in fact, porridge for breakfast, baked spud, baked beans for lunch. Roast dinner for tea and so on. However after tests, experimenting and keeping a good diary, testing every meal, I found that I didn't hypo after going keto. Of course because of how bad I was, it took time to sort it and I did more research, more testing, more aiming to my specialist endocrinologist, who was brilliant in agreeing with the treatment I was using.
I have read posts on here about Acerbose being prescribed for RH, it is not designed to help of treat RH, the theory is to help you absorb the carbs easier, but it doesn't! This is how I know you doctor doesn't understand the science behind RH.
I took part in clinic trials which meant I had several extended oral glucose tolerance tests, we found that the drug I was taking helped with my very weak initial insulin response. Which is a part of RH. This helped lower the spike that triggered the excess insulin. But it didn't prevent the hylo. But as a back up plan if I didn't stay in ketosis, it would limit the symptoms and the hypo didn't cause me problems.
It was sitagliptin that I'm taking, there is a video on YouTube about it and the clinical trials are on the internet.
I hope you have read about RH it won't be easy, it is now over ten years since diagnosis. But for a couple of instances, I have been hypo free and symptoms free. You don't have to live with it, control it, control your blood glucose levels, your body and brain eventually will be in favour of it.
Have a read and decided yourself how to go about controlling this condition.
 
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