Are there any type 1 diabetics here in remission?

[EllieM]

C- Peptide tested November 2020 1177 pmols/mol (still capable of producing insulin one year after diagnosis) and several HbA1C tests since 2020 from 21.9 mmol/mol down to my last recent one 5.3 mmol/mol October 2022.

Do you mean 1177 pmols/L "
That's quite a high level for a T1, the Edinburgh study of 860 long standing T1s had 13% producing more than 200pmols/L. So while it works for you I'm skeptical as to how many T1s would have levels that high.

The original diet (pre insulin) for diabetics was essentially a ketogenic diet, as I understand it, and gave some people a few extra years, but they still died.

A keto diet reduces but doesn't completely eliminate the need for insulin, so logically it's only going to work for T1s with sufficient insulin.

 

[Billy Barroo]

Do you mean 1177 pmols/L "
That's quite a high level for a T1, the Edinburgh study of 860 long standing T1s had 13% producing more than 200pmols/L. So while it works for you I'm skeptical as to how many T1s would have levels that high.

The original diet (pre insulin) for diabetics was essentially a ketogenic diet, as I understand it, and gave some people a few extra years, but they still died.

A keto diet reduces but doesn't completely eliminate the need for insulin, so logically it's only going to work for T1s with sufficient insulin.

The 1177pmol/mol result is directly copied from the Nottingham Queens Medical Centre Department of Diabetes & Endocrinology. It's got nothing to do with what I mean, It's what it states on the medical document the diabetic department gave me. It also says "He may be going through the honey moon phase." I've already stated I am still producing enough insulin without me having to inject insulin. I could have posted the whole document, but I do not see why I should do that for a few doubters that would rather assume and guess my past medical history.

 

[Billy Barroo]

Fast forward to the 1 hour 16 minute mark and listen to what Dr. Zsófia Clemens, a neurobiologist and clinical researcher specialising in nutrition, nutritional therapy and brain research has to say about putting type 1 diabetes into remission. They're still trying to cover it up.

https://www.youtube.com/watch?v=mh5jvXuzxqY

 

[Billy Barroo]

I'm type 1, not type 2 and I've been in remission since the 26th July 2021. My last HbA1c, October 2022, result was 5.3%. Honeymoon period or not, I'm still in remission

 

[HSSS]

These hba1c results make no sense.
mmol/mol would be from about 30 up to over 100.
% would be between 5 and 13 ish.

A figure of 5.3 or 21 sounds like blood glucose in mmol/L

C- Peptide tested November 2020 1177 pmols/mol (still capable of producing insulin one year after diagnosis) and several HbA1C tests since 2020 from 21.9 mmol/mol down to my last recent one 5.3 mmol/mol October 2022.

 

[HSSS]

Theres a lot you say that plenty of type 2 in here would agree with. From carbs being non essential, fats being the major macro, to lipids and their testing being highly debatable. Also that type 1 can continue to produce some insulin (with the caveat it is accepted this is not enough or for long enough to manage indefinitely without insulin).

The c peptide result you post is significantly higher than most type 1, raising questions about type. Type 1 isn’t regarded as being able to be put into remission the way type 2 is. Longer term type 1 need to inject even if only for protein or gluconeogenesis.

These circumstances are why we wonder if you are either type 1 still honeymooning helped significantly by your diet (quite feasible in adults especially on a diet such as yours) or are a type 2 that had a dka. DKA is more common when sick and I see you had flu when you had the dka. Both have happened to others in these forums. Whether either situation applies to you personally is speculation but it’s not ridiculous to ask and merely restating the drs have told you type 1 doesn’t actually address the points we are trying to raise. People are questioning your diagnosis (ie your drs - not you personally).

And this is why we ask about the additional tests to understand what is likely to be happening. Not all drs do them and some make assumptions. In this case if you haven’t any lower cpeptide tests nor any antibody tests it would seem they might have based the decision you are type 1 on the dka alone. (It’s been heard of being done before despite type 2 sometimes having them).

Occasionally typing assumptions turn out to be wrong in which case diet can continue to work for you (hooray) if you are in fact a type 2. Or the honeymoon will eventually come to an end if you are in fact a type 1. I hope you keep a good eye on your levels so that should this happen you are aware of it before you get another dka.

 

[HSSS]

Hba1c tests do not diagnose type, just levels over the last few months. A single normal’ish c peptide test doesn’t confirm type either. And it’s what other blood tests you’ve had we keep asking for, specifically any antibody tests. Type 1 honeymoon is not the same as remission. Remission is not a term used about type 1, even if your Hba1c are within the normal parameters without drugs. It is a phrase used only in type 2 hence the push back because of the confusion caused about using it for type 1 in here.

We may not be drs but as a group we are well informed about the tests and language and practices extensively used by drs.

Yes you have found an extreme way to manage your situation for right now (regardless of accuracy of diagnosis or terminology used to describe the situation) which is great for you not the same as telling other type 1 they can achieve “remission”, it’s just an extreme form of control for the immediate term.

 

[JohnEGreen]

Are there any other type 1 diabetics on here that are still able to produce their own exogenous insulin and have gone into remission?

It would seem the answer is no as so far no one has replied in the affirmative.

 

[Billy Barroo]

Spontaneous complete remission of type 1 diabetes mellitus in an adult – review and case report

Spontaneous complete remission of T1DM is a rare phenomenon compared to spontaneous partial remission. Complete remission is however more common in adult population compared to paediatric population. As an attempt to increase remission rates and beta cell function in patients with newly diagnosed T1DM, many intervention trials are underway. Currently there is no single promising agent that is universally recommended to improve remission rates.

The paleolithic ketogenic diet improved my remission rate. It took me 4 months to slowly reduce my insulin, first my bolus and then my basal. It wasn't spontaneous.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4612476/​

 

[HSSS]

That article makes no mention of the duration of honeymoon/remission and comments how extremely rare zero insulin use is (even for just a short period of time). Does it last a month, a year, 5 years or a lifetime? An extremely important point we keep coming back to.

 

[Billy Barroo]

That article makes no mention of the duration of honeymoon/remission and comments how extremely rare zero insulin use is (even for just a short period of time). Does it last a month, a year, 5 years or a lifetime? An extremely important point we keep coming back to.

The honeymoon period can vary from person to person. I can last for any number of days, weeks, months and years. Did you not know that? The fact is that she was in remission no matter how long the period of time it took. I've been in remission since 26th July 2021. It totally debunks the myth that type 1 diabetics can not go into remission. Instead of me having to repeat myself over and over again just scroll back and read the posts. The In Response post said "I am convinced my honeymoon lasted at least 8 years."

 

[zand]

The Honeymoon period is not the same as remission.

The honeymoon refers to the initial settling in period for T1s, before their pancreas stops producing insulin altogether, and yes, it can last for years.

Remission is something that T2s can achieve by diet, even after years of being T2.

 

[Billy Barroo]

The Honeymoon period is not the same as remission.

When you are not injecting insulin or without taking any other diabetes medication and are below the 6.5% blood glucose range for at least 3 months you are in remission whether you're type 2 or a type 1. I've been under that range since july last year. My last HbA1c. October 2022 WAS 5.3.

 

[zand]

When you are not injecting insulin or without taking any other diabetes medication and are below the 6.5% blood glucose range for at least 3 months you are in remission whether you're type 2 or a type 1. I've been under that range since july last year. My last HbA1c. October 2022 WAS 5.3.

You are playing with words here.

Your posts appear to say 'Hey, scientists have discovered a way for T1s to get remission, why does no-one know about this?'

Well...they do, and have done for years. It's called the honeymoon period, nothing new there. It's not remission, it's simply getting through the honeymoon on reduced carbs so there's less chance of hypos due to the pancreas waking up every so often and adding insulin to the body when the person has already calculated their bolus. It's a good way to handle the honeymoon period, I've seen posts here about it for at least 10 years. Some posters are glad when it's over as the 'working when I please pancreas' can be a pain in the ****.

One day the honeymoon will be over.

 

[Jaylee]

Spontaneous complete remission of type 1 diabetes mellitus in an adult – review and case report​

​

Spontaneous complete remission of T1DM is a rare phenomenon compared to spontaneous partial remission. Complete remission is however more common in adult population compared to paediatric population. As an attempt to increase remission rates and beta cell function in patients with newly diagnosed T1DM, many intervention trials are underway. Currently there is no single promising agent that is universally recommended to improve remission rates.​

​

The paleolithic ketogenic diet improved my remission rate. It took me 4 months to slowly reduce my insulin, first my bolus and then my basal. It wasn't spontaneous.​

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4612476/​

Hi,

To be fair regarding reduction of insulin needs. There has been a fair bit of documenting from personal experiences with T1s needing to reduce or “basal test” due to the initial prescribed dosage being too high? I was “captain hypo” when first given MDI myself.. (switching from porcine insulin in the 1980s.) lowered my dosage by just under half what says on “paper.”
In fact it was so high, I dare not use the “actrapid” as it was known at the time to bolus.. I was consistently chasing the Glargine with food..

 

[Billy Barroo]

You are playing with words here.

Your posts appear to say 'Hey, scientists have discovered a way for T1s to get remission, why does no-one know about this?'

Well...they do, and have done for years. It's called the honeymoon period, nothing new there. It's not remission, it's simply getting through the honeymoon on reduced carbs so there's less chance of hypos due to the pancreas waking up every so often and adding insulin to the body when the person has already calculated their bolus. It's a good way to handle the honeymoon period, I've seen posts here about it for at least 10 years. Some posters are glad when it's over as the 'working when I please pancreas' can be a pain in the ****.

One day the honeymoon will be over.

Some of us do know about this but we're being silenced and by the way, I'm not playing with words. Scientists HAVE discovered a way for type 1's to get into remission, I've been following their protocol for the past 18 months and that's how I've done it.

Brilliant scientific success! Type 1 diabetes has been overcome. There is only one question left: will Hungarian or French researchers take credit for this groundbreaking discovery?

Before we get started, here is a brief explanation of the title and of its practical implications. Click here, to read this article on our new website! THE CASE The diet which is radically different from the current recommendations of diabetologists can

www.paleomedicina.com

 

[zand]

Well no-one has silenced anyone here.

Your protocol sounds absolutely awful, for me the price would be way too high. A life spent consuming nothing but fatty animal products makes me ill at the thought of it.

Enough with the conspiracy theories, I have things to do.

Enjoy your honeymoon period while it lasts

 

[zand]

I've just looked at the website of those doctors... you have to pay for their advice?

 

[Billy Barroo]

Some of us do know about this but we're being silenced and by the way, I'm not playing with words. Scientists HAVE discovered a way for type 1's to get into remission, I've been following their protocol for the past 18 months and that's how I've done it.

Brilliant scientific success! Type 1 diabetes has been overcome. There is only one question left: will Hungarian or French researchers take credit for this groundbreaking discovery?

Before we get started, here is a brief explanation of the title and of its practical implications. Click here, to read this article on our new website! THE CASE The diet which is radically different from the current recommendations of diabetologists can

www.paleomedicina.com

You are playing with words here.

Your posts appear to say 'Hey, scientists have discovered a way for T1s to get remission, why does no-one know about this?'

Well...they do, and have done for years. It's called the honeymoon period, nothing new there. It's not remission, it's simply getting through the honeymoon on reduced carbs so there's less chance of hypos due to the pancreas waking up every so often and adding insulin to the body when the person has already calculated their bolus. It's a good way to handle the honeymoon period, I've seen posts here about it for at least 10 years. Some posters are glad when it's over as the 'working when I please pancreas' can be a pain in the ****.

One day the honeymoon will be over.

You say it's simply getting through the honeymoon on "REDUCED CARBS"? I don't eat carbs and I don't add any insulin either, so what are you on about? and I haven't had one hypo since the 11th March 2021. Don't knock it if you haven't tried it. Have you ever attempted to go on a high saturated animal fat, moderate protein, zero carbs for 18 months or more without any cheat days?

 

[Billy Barroo]

I've just looked at the website of those doctors... you have to pay for their advice?

I haven't paid for any of their advice. I just joined their PKD group and winged it. I got all the information that I needed from there