Thank you for the details EllieM. I do see my physios for treatment for my muscle problems. They are looking into different options for me as well. But like with diabetes I am on my own with no medical support. I will be travelling to see them next week so I hope that they can find something that will help. I will check out the link you sent to me very soon. I do hope there is something there.
In response, I have asked about Libre or CGM and the short answer was no. No reason, no thought, no nothing. The diabetic nurses have never seen me so I guess its a standard reply in this area.