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Fed up of all thing’s diabetic

abigailsheree said:
Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.
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Hi Abigail, I believe every single type 1 diabetic will understand exactly how you feel and what you are going through. In 50 years of dealing with my diabetes, i could write a book about all the stupid comments made to me, from GPs (esp new ones) to friends who should know better! I would suggest that there's 2 ways of dealing with it: either letting it go over your head, telling yourself that they mean well but don't have a clue; this is easier said than done. Or, as in my case, gently challenging those comments. I often mention to anyone suggesting the problems are my fault and lack of care, that there are around 12 factors i can think of that can affect your blood sugar readings (there may well be more), from illness and stress, to the type of food you've eaten and what time of the day you've eaten it. I've found that that approach will have the effect of shutting up many of those people who have casually blamed you for everything! Take care, hold on to the rollercoaster that is type 1 diabetes, and best of wishes in dealing with it. We're all with you.
 
This is dark humour. But I feel is fitting regarding what anyone encounters from the ill informed.

I’ve experienced the “you’re the one with…” regarding diabetes..
They just don’t seem so self aware?

 
abigailsheree said:
Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.
Click to expand...
2 injections a day? Maybe if you weren't eating anything. Doesn't sound feasible at all. I have about 10 plus as I take small corrections to stay in a narrow blood sugar range. Nothing is your fault. Ask for a different consultant next time.
 
bmtest said:
As Tony mentioned at least we are not injecting with Harpoons, never mind storing the harpoon in Industrial Meths & boiling it once a week to clean of the salt water.

Flicking the air out of solid metal needle attached to a Rocket brand Harpoon was a nightmare & living off boiled cabbage, messing around with the chemistry set and urine and holding burning hot test tubes kept you on your toes.

Sweating & trembling like a pig on the pig insulin was a wake up call before lunch at work having a cold and high blood sugars only to have to wait 8 hours till you got home to the harpoon.

Trapped on a double decker full of smokers your stop coming up and the hypo not worn off.


All this kept you busy mentally there was not time to consider other tablets there was simply no time like there is today to think anything but control as it was curtains if you got it wrong.
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I remember those horrible syringes and needles well. Testing your urine for sugar in that little test tube was another delight. I was diagnosed 45 years ago on Christmas eve. The modern tech makes life a lot easier.
 
abigailsheree said:
Hey all,
I’m have been diabetic for nearly 25 years and I have got to a point where I am fed up with dealing with all of it and especially when my diabetes is blamed for everything. I feel like no one actually understands what it’s like to go through it and I asked the same question to the consultant who basically blamed me for my diabetes and how I am on multiple injections. Apparently all my skin infections are also linked to my diabetes and if it was better controlled I would be on 2 injections a day max and my skin infections would not come back. I am also on antidepressants and am sorry about ranting but not really sure who else would understand what it’s like.
Click to expand...
Oh Abigail, I'm so sorry to hear how you are feeling. I was also diagnosed 25 years ago on Christmas eve. I was an adult in my late twenties when I was diagnosed. Your consultant doesn't sound at all helpful, or dare I say knowledgeable. I don't know of any type 1 who is only on 2 injections a day. Before I went onto a pump I was on at least 6, sometimes more. Did I read that you've lost your hypo symptoms? I presume you have a sensor. Loss of hypo symptoms s a reason under the NICE guidelines to be allocated a pump. It is how I got my pump initially and losing them again recently has enabled me to be put on a closed loop system. It is sad that adults have to fight for tech that children are granted automatically. I don't know what the procedure is for changing consultants or being allocated a specialist nurse. Try your local PALS, patient advice and liaison service. Wishing you well in the future.
 
oldtypeone said:
Oh Abigail, I'm so sorry to hear how you are feeling. I was also diagnosed 25 years ago on Christmas eve. I was an adult in my late twenties when I was diagnosed. Your consultant doesn't sound at all helpful, or dare I say knowledgeable. I don't know of any type 1 who is only on 2 injections a day. Before I went onto a pump I was on at least 6, sometimes more. Did I read that you've lost your hypo symptoms? I presume you have a sensor. Loss of hypo symptoms s a reason under the NICE guidelines to be allocated a pump. It is how I got my pump initially and losing them again recently has enabled me to be put on a closed loop system. It is sad that adults have to fight for tech that children are granted automatically. I don't know what the procedure is for changing consultants or being allocated a specialist nurse. Try your local PALS, patient advice and liaison service. Wishing you well in the future.
Click to expand...
 
One thing I will say is your diabetes is not your fault and taking more than 2 injections a day is definetly not the reason for your skin infections, in fact I’ve had diabetes that long I can remember the 2 insulins a day , and that wasn’t a good experience.Like many T1 diabetics have been subject to negativity , I been called a junkie , been told “ you don't look like a diabetic “ can I catch it ? Just like T2 diabetics who I told that the diabetes is due to poor lifestyle choices.All these people and many professionals unfortunately don’t understand and their opinion's count for nothing. This forum, however, is a great place to talk to people who do understand, who have gone through the same thing and the same feelings as yourself. Personally, I think your doctor is someone that rhymes with lick.
 
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