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My new challenge ,

Latest up date had op to try and clear my fistula yesterday (Thursday)) unfortunately it wasn’t successful so they are thinking of putting a temporary line in my neck which is basically a cannula in the main vein in my neck. I think the plan is now to try on last till Tuesday where they have arranged to get a more permanent line in my chest so I’m in hospital till Tuesday.. every cloud has a silver line I managed to get my A cast for my new prothetic today so I’ve been quite busy, as we had physio today as well. Hopefully I should get my new prosthetic in 10 days to a fortnights time. I haven’t had the dialysis since last Saturday all my blood results seem okay and luckily for me I’m still peeing which you might be surprised to know that a lot of people on dialysis don’t pee. Imagine that not having to get up in the middle of the night, LOL so as long as my blood results are okay I should get a more permanent line in my chest on Tuesday. Another good thing I’m back on the kidney transplant list after being off duty to the infection in my foot so not such a bad day I had steak pie for dinner ha ha ha ha ha ha..
 
Ushthetaff said:
Latest up date had op to try and clear my fistula yesterday (Thursday)) unfortunately it wasn’t successful so they are thinking of putting a temporary line in my neck which is basically a cannula in the main vein in my neck. I think the plan is now to try on last till Tuesday where they have arranged to get a more permanent line in my chest so I’m in hospital till Tuesday.. every cloud has a silver line I managed to get my A cast for my new prothetic today so I’ve been quite busy, as we had physio today as well. Hopefully I should get my new prosthetic in 10 days to a fortnights time. I haven’t had the dialysis since last Saturday all my blood results seem okay and luckily for me I’m still peeing which you might be surprised to know that a lot of people on dialysis don’t pee. Imagine that not having to get up in the middle of the night, LOL so as long as my blood results are okay I should get a more permanent line in my chest on Tuesday. Another good thing I’m back on the kidney transplant list after being off duty to the infection in my foot so not such a bad day I had steak pie for dinner ha ha ha ha ha ha.
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I'm crossing my fingers that your new prosthetic leg will be tolerably comfortable, when you get it. Decades ago I used to work with an ex-soldier who lost both his legs at Falklands. Like you, he never complained, but had to be confined to bed from time to time because the prosthetic legs rubbed his stumps sore. But he was otherwise healthy, and did not have to cope with Type1.

I do hope that a kidney transplant will happen, and soon. A line in the neck, even a temporary one, sounds extremely uncomfortable.
If the hospital food is tasty, that will make your stay more comfortable.

Best wishes for your recovery.
 
Ushthetaff said:
Latest up date had op to try and clear my fistula yesterday (Thursday)) unfortunately it wasn’t successful so they are thinking of putting a temporary line in my neck which is basically a cannula in the main vein in my neck. I think the plan is now to try on last till Tuesday where they have arranged to get a more permanent line in my chest so I’m in hospital till Tuesday.. every cloud has a silver line I managed to get my A cast for my new prothetic today so I’ve been quite busy, as we had physio today as well. Hopefully I should get my new prosthetic in 10 days to a fortnights time. I haven’t had the dialysis since last Saturday all my blood results seem okay and luckily for me I’m still peeing which you might be surprised to know that a lot of people on dialysis don’t pee. Imagine that not having to get up in the middle of the night, LOL so as long as my blood results are okay I should get a more permanent line in my chest on Tuesday. Another good thing I’m back on the kidney transplant list after being off duty to the infection in my foot so not such a bad day I had steak pie for dinner ha ha ha ha ha ha..
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You've certainly been keeping the staff busy. Hope all goes well and you get home soon.
 
Have you survived without dialysis until today? Have you had a catheter installed(?)/a new fistula(?) for dialysis?
 
Antje77 said:
So what's the news on your fistula and dialysis, and what are the updates on you new leg and physio progress?
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Fistula is knackered given up the ghost so was in hospital for 10 days getting new line in my chest I went 9 days without dialysis amazing really and I felt ok got a bit tired at the end but blood results were good , physio well that’s once a week but I missed first one due to hospital visit, I’m at home alone as my brother went back home I’m getting use to things but it’s so frustrating , I didn’t realise how much you need your legs everything takes so much longer but I’m handling it swearing a lot but handling it ,think I’ve invented a new language goes something like %&#@% **&&££# &&((**# Jesus &&££##@ lol
Got my leg cast last Friday so hopefully I’ll be doing the old twist and shout sometime soon prob be best doing okie cokie wacking my left leg in and my right leg out and then ending up on my a##e lol
 
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Sounds like you're doing very well despite the setbacks you've had along the way!

I'm sorry to hear that a legless life is more difficult than you anticipated, but being back home and having the energy to be utterly frustrated with not having a leg to stand on sounds like you're way more healthy than you should expected to be after a major operation, missed dialysis, and that little thing after fixing the deck.

Looking forward to hearing about your adventures with the new leg when you finally get it and start to use it in ways no doctor would ever advise or imagine.
In the mean time, good luck with having your patience tested...
 
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