• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

My new challenge ,

Latest up date had op to try and clear my fistula yesterday (Thursday)) unfortunately it wasn’t successful so they are thinking of putting a temporary line in my neck which is basically a cannula in the main vein in my neck. I think the plan is now to try on last till Tuesday where they have arranged to get a more permanent line in my chest so I’m in hospital till Tuesday.. every cloud has a silver line I managed to get my A cast for my new prothetic today so I’ve been quite busy, as we had physio today as well. Hopefully I should get my new prosthetic in 10 days to a fortnights time. I haven’t had the dialysis since last Saturday all my blood results seem okay and luckily for me I’m still peeing which you might be surprised to know that a lot of people on dialysis don’t pee. Imagine that not having to get up in the middle of the night, LOL so as long as my blood results are okay I should get a more permanent line in my chest on Tuesday. Another good thing I’m back on the kidney transplant list after being off duty to the infection in my foot so not such a bad day I had steak pie for dinner ha ha ha ha ha ha..
 
Ushthetaff said:
Latest up date had op to try and clear my fistula yesterday (Thursday)) unfortunately it wasn’t successful so they are thinking of putting a temporary line in my neck which is basically a cannula in the main vein in my neck. I think the plan is now to try on last till Tuesday where they have arranged to get a more permanent line in my chest so I’m in hospital till Tuesday.. every cloud has a silver line I managed to get my A cast for my new prothetic today so I’ve been quite busy, as we had physio today as well. Hopefully I should get my new prosthetic in 10 days to a fortnights time. I haven’t had the dialysis since last Saturday all my blood results seem okay and luckily for me I’m still peeing which you might be surprised to know that a lot of people on dialysis don’t pee. Imagine that not having to get up in the middle of the night, LOL so as long as my blood results are okay I should get a more permanent line in my chest on Tuesday. Another good thing I’m back on the kidney transplant list after being off duty to the infection in my foot so not such a bad day I had steak pie for dinner ha ha ha ha ha ha.
Click to expand...

I'm crossing my fingers that your new prosthetic leg will be tolerably comfortable, when you get it. Decades ago I used to work with an ex-soldier who lost both his legs at Falklands. Like you, he never complained, but had to be confined to bed from time to time because the prosthetic legs rubbed his stumps sore. But he was otherwise healthy, and did not have to cope with Type1.

I do hope that a kidney transplant will happen, and soon. A line in the neck, even a temporary one, sounds extremely uncomfortable.
If the hospital food is tasty, that will make your stay more comfortable.

Best wishes for your recovery.
 
Ushthetaff said:
Latest up date had op to try and clear my fistula yesterday (Thursday)) unfortunately it wasn’t successful so they are thinking of putting a temporary line in my neck which is basically a cannula in the main vein in my neck. I think the plan is now to try on last till Tuesday where they have arranged to get a more permanent line in my chest so I’m in hospital till Tuesday.. every cloud has a silver line I managed to get my A cast for my new prothetic today so I’ve been quite busy, as we had physio today as well. Hopefully I should get my new prosthetic in 10 days to a fortnights time. I haven’t had the dialysis since last Saturday all my blood results seem okay and luckily for me I’m still peeing which you might be surprised to know that a lot of people on dialysis don’t pee. Imagine that not having to get up in the middle of the night, LOL so as long as my blood results are okay I should get a more permanent line in my chest on Tuesday. Another good thing I’m back on the kidney transplant list after being off duty to the infection in my foot so not such a bad day I had steak pie for dinner ha ha ha ha ha ha..
Click to expand...
You've certainly been keeping the staff busy. Hope all goes well and you get home soon.
 
Have you survived without dialysis until today? Have you had a catheter installed(?)/a new fistula(?) for dialysis?
 
Antje77 said:
So what's the news on your fistula and dialysis, and what are the updates on you new leg and physio progress?
Click to expand...
Fistula is knackered given up the ghost so was in hospital for 10 days getting new line in my chest I went 9 days without dialysis amazing really and I felt ok got a bit tired at the end but blood results were good , physio well that’s once a week but I missed first one due to hospital visit, I’m at home alone as my brother went back home I’m getting use to things but it’s so frustrating , I didn’t realise how much you need your legs everything takes so much longer but I’m handling it swearing a lot but handling it ,think I’ve invented a new language goes something like %&#@% **&&££# &&((**# Jesus &&££##@ lol
Got my leg cast last Friday so hopefully I’ll be doing the old twist and shout sometime soon prob be best doing okie cokie wacking my left leg in and my right leg out and then ending up on my a##e lol
 
Last edited:
Sounds like you're doing very well despite the setbacks you've had along the way!

I'm sorry to hear that a legless life is more difficult than you anticipated, but being back home and having the energy to be utterly frustrated with not having a leg to stand on sounds like you're way more healthy than you should expected to be after a major operation, missed dialysis, and that little thing after fixing the deck.

Looking forward to hearing about your adventures with the new leg when you finally get it and start to use it in ways no doctor would ever advise or imagine.
In the mean time, good luck with having your patience tested...
 
Haven’t updated this for a wee while so thought I’d sort it out for those who want to know , been doing physio once a week for last couple of weeks all going well , walking along parallel bars walking with a zimmer and when I say walking I don’t mean with my new leg but with PPAM aid , it’s great practice but me being me it’s just not happening fast enough but that’s just me, and yes I have fallen ( I’ve got no legs it comes with the territory lol ) but no harm done just character building . Good news though I get me new leg fitting on Thursday , so hopefully I’ll be able to bring it home and take it to physio next Tuesday
Now if they think I’m not going to have that leg on til next Tuesday they are having a laugh.it'll be on as soon as I get home lol got to give it a go .im not expecting to be walking straight away but I don’t expect to be sitting on my bum in a wheel chair , if I can get about with crutches for a few hours ( I’m joking ) that’s better than what I have now , everything in a wheel chair is always just out of the way but I am grateful for it , so I’ll let you ken what happens on Thursday never know might even get some pics .
 
Ushthetaff said:
Haven’t updated this for a wee while so thought I’d sort it out for those who want to know , been doing physio once a week for last couple of weeks all going well , walking along parallel bars walking with a zimmer and when I say walking I don’t mean with my new leg but with PPAM aid , it’s great practice but me being me it’s just not happening fast enough but that’s just me, and yes I have fallen ( I’ve got no legs it comes with the territory lol ) but no harm done just character building . Good news though I get me new leg fitting on Thursday , so hopefully I’ll be able to bring it home and take it to physio next Tuesday
Now if they think I’m not going to have that leg on til next Tuesday they are having a laugh.it'll be on as soon as I get home lol got to give it a go .im not expecting to be walking straight away but I don’t expect to be sitting on my bum in a wheel chair , if I can get about with crutches for a few hours ( I’m joking ) that’s better than what I have now , everything in a wheel chair is always just out of the way but I am grateful for it , so I’ll let you ken what happens on Thursday never know might even get some pics .
Click to expand...
Aw that is great to hear from you. So glad your coming along nicely. You've got great attitude after all you've been through. You'll be entering the marathon before we know it. Very best wishes to you.
 
DougDyl said:
Aw that is great to hear from you. So glad your coming along nicely. You've got great attitude after all you've been through. You'll be entering the marathon before we know it. Very best wishes to you.
Click to expand...
Thank you so much
 
Thanks so much for the update. I've been thinking if you and wondering how you were getting on.
And other posters are right. You really are an inspiration.
 
I'm so glad you're okay! Did you get a new fistula for dialysis?
 
Zhnyaka said:
I'm so glad you're okay! Did you get a new fistula for dialysis
Click to expand...
No new fistula as yet just using the line in my chest , it’s ok but I do prefer fistula . They are taking bout a new one and I have an appointment in October with the renal department , I have also been put back on the transplant list which is good , I got a letter today asking if I would accept a Hep C infected donor kidney my initial reaction is no thanks but have to look into it with ask some expert advice I’m surrounded by it in dialysis .
 
There is no Spoon said:
Hi @Ushthetaff , I think Billy Connelly might have beat you to that one in the 80's with get-tu-fu you little bas-ta as a way to get around swearing in front of the kids. ;)

You attitude is inspiring.
:bag:
Click to expand...
Total quality love old billy
 
Back
Top