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Diabetic Amputee on Dialysis

MartinHaynes

MartinHaynes

Member
Messages
10
Location
Wells, Somerset
Type of diabetes
Type 1
Treatment type
Insulin
A few hours ago, the Police found my brother Stephen Haynes dead in his London flat & said he had probably been dead for a few days.
Stephen had been an Insulin dependent Type 1 Diabetic for some 40 years, in Adulthood developing Sharcuise, leading to the Amputation of his Left Foot, picked up a Hospital Aquired Infection and in recent months he has been on Dialysis and in different A&E Hospitals, I have also been a Type 1, but only for a couple of years.
I am asking for support
 
mate, sorry to hear about your brother but you must be petrified. you have come to the right place for support.
If there is good news, it's that through keeping your BG within range. the diabetic complications your brother had won't be your story
tell us how your general BG readings are and what meds and doses you are on
 
That is awful news Martin and my condolences go to you and your family at this very sad time.
 
May I add my own condolences, a dreadful situation. My sister died of diabetic complications in 2010 so I have some idea of how you are feeling. You've come to the right place.
 
My condolences on your loss.
Please ensure that you stay in control of your own health with medical help and support.




Late onset T1, several auto immune issues.
Humalogmix25 twice a day, Methotrexate 25mg once per week, FolicAcid 5mg once per week, prednisolone 5mg daily, Allopurinol 300mg, Calcichew-D3 800iu, Levothyroxine 50mcg, Atenolol 50mg, Losarten 100mg, Aspirin 75mg, Nicorandil 20mg, Nitrolingual GTN spray, Metformin 2000mg, Allimemazine 10mg, Lanzoprazole 30mg, Atorvastatin 20mg, Co Codamol 8/500mg, Depo Medrone (Methylprednisolone) or double Prednisolone for 7 days in case of RA flare.
 
Sorry for you loss Martin,

I can't imagine your grief, so I won't go there. However as Jack412 said, a little history on your meds & sugar level profile will bring forward some practical advice regarding how to go about your diabetes management & hopefully belay some of the personal concerns you have..

Best wishes.
 
So so sad. My thoughts are with you at this awful time.
 
jack412 said:
mate, sorry to hear about your brother but you must be petrified. you have come to the right place for support.
If there is good news, it's that through keeping your BG within range. the diabetic complications your brother had won't be your story
tell us how your general BG readings are and what meds and doses you are on
Click to expand...

Thank you. Well up until a couple of months ago I was becoming quite ill with BS in the 20s & over 33s. I think brother Stephen called it YoYo Diabetes, I was sticking in lots of insulin. Anyway eventually I Hallucinated and then completely changed my injecting and eating habits, gradually fairly quickly bringing the BS down into singe figures, so over the past 6 weeks theyve been staying between 5.1 and 9.8, generally between 6 & 8.
Stephen's death and having to be the next of kin trip all of a sudden, has flung out the better food regeme and it's tough to force myself back into it at the moment. The Police have tonight phoned to say although still Unexplained (until the Autopsy & Toxicology tests), they don't think it's Suspicious as in no foul play was involved. i'm to phone the Coroner at 07.30 today and have his Benefits stopped. then I am going to London for a few days dealing with the NHS and the other Services.
I am told the Amitriptyline 10mg I'm now on for Diabetic foot pain will soon work properly as long as I keep at them.
and I am very thankful for being 831 days without Alcohol. Stopping the booze saved my life. Diabetes and Alcohol dependency aren't a good mix.
 
noblehead said:
That is awful news Martin and my condolences go to you and your family at this very sad time.
Click to expand...

Thank you, Stephen had awful health to cope bravely with, especially in the past year. I am sure he is happier now he's not suffering any pain.
Stephen was Cornish, so the plan is to Bury him in Cornwall
Amognst Stephen's great works, is that he wrote a descriptive diary journal about the journey into becoming a Diabetic Amputee. so far an unpublished bestseller. Friends are moulding Stephen's Legacy.
Bathwick bellringers rang for 45 minutes this morning in his memory.
Stephen is known and well liked nationally in Campanology, and so a 12 bell Peal somewhere is being organised in his memory.
That's another thing about Stephen's bravery, he'd thrown the stick away almost as soon as he'd been given it by the NHS when he had to learn to walk again after his Below the knee Amputation, He could almost run pretty quickly and last year, climbed over 100 steps into the Ringing Chamber at Wells Cathedral, Rung, and then came down all the steps on his bum one at a time.
Anybody except Stephen Haynes would have just sat and listened from the Green outside.
Stephen was a great adventurer and despite his disabilities lived life to the full and was very well liked & loved
 
Last edited by a moderator:
MartinHaynes said:
Thank you. Well up until a couple of months ago I was becoming quite ill with BS in the 20s & over 33s. I think brother Stephen called it YoYo Diabetes, I was sticking in lots of insulin. Anyway eventually I Hallucinated and then completely changed my injecting and eating habits, gradually fairly quickly bringing the BS down into singe figures, so over the past 6 weeks theyve been staying between 5.1 and 9.8, generally between 6 & 8.
Stephen's death and having to be the next of kin trip all of a sudden, has flung out the better food regeme and it's tough to force myself back into it at the moment. The Police have tonight phoned to say although still Unexplained (until the Autopsy & Toxicology tests), they don't think it's Suspicious as in no foul play was involved. i'm to phone the Coroner at 07.30 today and have his Benefits stopped. then I am going to London for a few days dealing with the NHS and the other Services.
I am told the Amitriptyline 10mg I'm now on for Diabetic foot pain will soon work properly as long as I keep at them.
and I am very thankful for being 831 days without Alcohol. Stopping the booze saved my life. Diabetes and Alcohol dependency aren't a good mix.
Click to expand...

If it's any help to you..? When you register your brothers death, enquior about cancelling things like driving licence & other stuff...
I can't remember to many of the details myself. But my sister & I had to deal with our dad's death last year & they seem to have a " one stop shop" regarding the lose ends of the deceased life.. The funeral director should know the procedure too..

I hope this helps..?
 
Jaylee said:
If it's any help to you..? When you register your brothers death, enquior about cancelling things like driving licence & other stuff...
I can't remember to many of the details myself. But my sister & I had to deal with our dad's death last year & they seem to have a " one stop shop" regarding the lose ends of the deceased life.. The funeral director should know the procedure too..

I hope this helps..?
Click to expand...

Thank you Jaylee, yes extremely helpful . I am trying to pursuade the Coroner to agree to letting Hammersmith Police release Stephen's Filofax. Once I have that, arrangements and help can speed up a bit.
How long should I wait for the Death Certificate ? after the Post Mortum presumably ?
 
MartinHaynes said:
Thank you Jaylee, yes extremely helpful . I am trying to pursuade the Coroner to agree to letting Hammersmith Police release Stephen's Filofax. Once I have that, arrangements and help can speed up a bit.
How long should I wait for the Death Certificate ? after the Post Mortum presumably ?
Click to expand...

From memory you need two doctors.signatures for the death certificate.. Then what was called a "green form"? On registry of death for the funeral service to action apon with regards to burial/cremation.. In my case it's still a bit of a blur, but didn't involve a police coroner.. In my case my dad's GP came back off a break to deal with the paperwork so only a couple of days.. But the funeral director should happily look after your brother & deal with the actual funeral arraignments till the relevant paperwork arrives... Unfortunately it is "red tape", but they can be surprisingly compassionate.


regarding this they can be surprisingly compassionate.
 
Riri said:
So so sad. My thoughts are with you at this awful time.
Click to expand...

Thank you Riri, I must try to think of a way to sleep better during this time. I am tempted to stay in his London flat when I'm there, now that his Body has left the scene. Ah. I've just remembered, The smell of a dead person left in a room undiscovered for days (my Dad) has a way of staying with you and following you around for days.
I am told that soon I will be asked if I want to go and see him before being boxed up ? At the moment the answer would be no.
Madam Tussauds springs to mind. That's not how I remember seeing him the last time i did or the time before.
 
Jaylee said:
From memory you need two doctors.signatures for the death certificate.. Then what was called a "green form"? On registry of death for the funeral service to action apon with regards to burial/cremation.. In my case it's still a bit of a blur, but didn't involve a police coroner.. In my case my dad's GP came back off a break to deal with the paperwork so only a couple of days.. But the funeral director should happily look after your brother & deal with the actual funeral arraignments till the relevant paperwork arrives... Unfortunately it is "red tape", but regarding this they can be surprisingly compassionate.
Click to expand...

Any 2 Doctors at Hammersmith or must they be specifically connected to his care there ? Yes Jaylee, Red Tape of confidentuality had got into knots with recent NHS chinese whispers which the Police took up as well, so I was at first misinformed big time.
I expect the Coroner will go into the misinformation aspect at the Inquest.
99% sure we are going to take Stephen down to his Birth area in Cornwall and bury him there. Not for a few weeks yet by the look of the Red Tape so far.
The Police have been incredibly supportive. I wasn't expecting them to overwhelm me with understanding and kindness. A lot of phonecalls from them and a how are you visit this morning.
Wow ! 5 days of misinformation, then 6 hours passed between first calling the Police and Stephen being found on Saturday night, including breaking down 2 doors at both his possible locations in looking for him
 
Jaylee said:
Sorry for you loss Martin,

I can't imagine your grief, so I won't go there. However as Jack412 said, a little history on your meds & sugar level profile will bring forward some practical advice regarding how to go about your diabetes management & hopefully belay some of the personal concerns you have..

Best wishes.
Click to expand...

When I first got Diabetes, the Dietitian got me on a really nice healthy diet, though writing all the food meal items down wained as I just seemed to be building pages of food names, I am waiting for the first Hospital Consultant appointment, apparently soon according to the Diabetic Nurse
 
Alanp35 said:
My condolences on your loss.
Please ensure that you stay in control of your own health with medical help and support.




Late onset T1, several auto immune issues.
Humalogmix25 twice a day, Methotrexate 25mg once per week, FolicAcid 5mg once per week, prednisolone 5mg daily, Allopurinol 300mg, Calcichew-D3 800iu, Levothyroxine 50mcg, Atenolol 50mg, Losarten 100mg, Aspirin 75mg, Nicorandil 20mg, Nitrolingual GTN spray, Metformin 2000mg, Allimemazine 10mg, Lanzoprazole 30mg, Atorvastatin 20mg, Co Codamol 8/500mg, Depo Medrone (Methylprednisolone) or double Prednisolone for 7 days in case of RA flare.
Click to expand...

Thank you Alan,
Yes, I must do, especially now brother Stephen has gone
 
DunePlodder said:
May I add my own condolences, a dreadful situation. My sister died of diabetic complications in 2010 so I have some idea of how you are feeling. You've come to the right place.
Click to expand...

Thank you,
Stephen wrote a guide/journal in Hospital about becoming a Diabetic Amputee and how that had affected him. I expect to find it amognst his posessions and it won't be lost or gather dust.
I am sorry to read about your Sister
 
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