- Messages
- 683
- Type of diabetes
- Prediabetes
- Treatment type
- Diet only
- Dislikes
- Diets!
Oh am so fed up!! Nine...or is it ten, darned weeks I have spent 95% of my time on my bed. I get up and move around every couple of hours or so to keep the old bones moving and use my muscles, to get a bath, make a drink or a snack. I couldn't find my original thread where I explained what's going on with me so forgive me for those who don't know. (I have acid reflux, IBS, fibromyalgia, kidney disease, and a cyclic mystery illness that my docs think might be M.E because they have exhausted other avenues...for those who didn't know this).
I am in the process of being referred to an M.E clinic for diagnosis but there's a stumbling block now. They have told my GP they want to know from my urologist if my kidney problems could be causing the symptoms. I had an appointment on 3rd June so thought I could ask him questions then and pass on the info to GP. Trouble is, I have been having these episodes for about five years. I only had my kidney removed two years ago, and before I did my kidneys were perfectly normal. Only been diagnosed with CKD for two years. So, in my eyes it can't be the case. Told GP this..he agreed but said we have to go through the motions anyway.
Guess what? For the fact I am so very nauseous every single day, my Gp has re-referred me back to a gastroenterologist, ( didn't do any good last time). They sent me an appointment and it fell on the same day and within half an hour of my urology app. So I had to ring up and re arrange the appointment. They put it back to 30th June. Groan! Then a few days later I got a letter from urology telling my my appointment had been cancelled and my app is now in August. So, I hadn't needed to re-arrange the gastro appointment at all!!!
I told my GP and he just tutted. There I am in his surgery, same as once every week, in tears, asking for help to tell me what's wrong with me. He just tuts and doesn't realise that every single day of nausea, fatigue, pain etc etc seems like a week to me. Why couldn't he pick up the phone and state my case to the gastro or the urologist? Don't know.
I rang gastro this morning, told them how poorly I felt, about the re-arranged urology app and hey presto, I will now be seen on 6th June. See? My doc could have done that on the day I was in surgery.
I am fed up of feeling this ill. I am fed up of feeling lower in mood because of it all. I am fed up of laying on my bed, afraid to move too far because I feel so weak and sick.
Apart from low vit D which I am being treated for, this prediabetic thing, and getting very weird spells that I am now told could be low BP, (feel like can't breathe, shake from head to foot, legs go like paper so daren't walk around), I don't feel I am any further on than I was nine weeks ago.
Worst of it is that some days I feel so ill I honestly daren't leave the house and yet I am going to have to make appointments whether I can do it or not. Some days I just feel like curling into a ball and putting two fingers up to the NHS.
I couldn't make a GP app the other week as felt too frail to do it. I rang in and asked if my Gp could visit me. Absolutely no way. Receptionist said you had to be bedridden. I said I am 95% that. I think she meant you have to be dying! No home visit. I had to have a telephone consultation instead.
I needed to ask my GP a question the other day. I rang in and asked if he could phone me. Nope! My Gp doesn't do phone calls! Hang on...when you phone at 1.30 if you haven't managed to get in at the docs in the morning, you get a telephone call from a GP to ask what it's about. But they don't do phone calls? She said she'd pass my question on to my Gp later that day. That was three days ago and heard nothing back.
Sorry for this whinge. If you have actually read it all then I commend you for your patience. I just thought it might do my head some good to share.
I am in the process of being referred to an M.E clinic for diagnosis but there's a stumbling block now. They have told my GP they want to know from my urologist if my kidney problems could be causing the symptoms. I had an appointment on 3rd June so thought I could ask him questions then and pass on the info to GP. Trouble is, I have been having these episodes for about five years. I only had my kidney removed two years ago, and before I did my kidneys were perfectly normal. Only been diagnosed with CKD for two years. So, in my eyes it can't be the case. Told GP this..he agreed but said we have to go through the motions anyway.
Guess what? For the fact I am so very nauseous every single day, my Gp has re-referred me back to a gastroenterologist, ( didn't do any good last time). They sent me an appointment and it fell on the same day and within half an hour of my urology app. So I had to ring up and re arrange the appointment. They put it back to 30th June. Groan! Then a few days later I got a letter from urology telling my my appointment had been cancelled and my app is now in August. So, I hadn't needed to re-arrange the gastro appointment at all!!!
I told my GP and he just tutted. There I am in his surgery, same as once every week, in tears, asking for help to tell me what's wrong with me. He just tuts and doesn't realise that every single day of nausea, fatigue, pain etc etc seems like a week to me. Why couldn't he pick up the phone and state my case to the gastro or the urologist? Don't know.
I rang gastro this morning, told them how poorly I felt, about the re-arranged urology app and hey presto, I will now be seen on 6th June. See? My doc could have done that on the day I was in surgery.
I am fed up of feeling this ill. I am fed up of feeling lower in mood because of it all. I am fed up of laying on my bed, afraid to move too far because I feel so weak and sick.
Apart from low vit D which I am being treated for, this prediabetic thing, and getting very weird spells that I am now told could be low BP, (feel like can't breathe, shake from head to foot, legs go like paper so daren't walk around), I don't feel I am any further on than I was nine weeks ago.
Worst of it is that some days I feel so ill I honestly daren't leave the house and yet I am going to have to make appointments whether I can do it or not. Some days I just feel like curling into a ball and putting two fingers up to the NHS.
I couldn't make a GP app the other week as felt too frail to do it. I rang in and asked if my Gp could visit me. Absolutely no way. Receptionist said you had to be bedridden. I said I am 95% that. I think she meant you have to be dying! No home visit. I had to have a telephone consultation instead.
I needed to ask my GP a question the other day. I rang in and asked if he could phone me. Nope! My Gp doesn't do phone calls! Hang on...when you phone at 1.30 if you haven't managed to get in at the docs in the morning, you get a telephone call from a GP to ask what it's about. But they don't do phone calls? She said she'd pass my question on to my Gp later that day. That was three days ago and heard nothing back.
Sorry for this whinge. If you have actually read it all then I commend you for your patience. I just thought it might do my head some good to share.