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Is this normal?

Becki84

Becki84

Member
Messages
11
Location
Farnborough, Bromley, United Kingdom
Type of diabetes
Type 1
Treatment type
Insulin
For the last four years I have taken levemir 40 units split dose and generally around 60units of humalin. Since I have been doing Pilates 20minutes per day, I have been unable to use any humalin and have had to cut my dose of levemir to 10 and 10 and am still experiencing hypos all theoughout the day. Has anyone heard of this??
 
20min pilates isn't that much exercise, sounds like your pancreas has woken up? late onset honeymoon? you're T2 and not T1? change of diet?
I would keep dropping your basal if you are still hypo and make an apt with your nurse
 
Hi. Your number of insulin shots has been quite high so perhaps the exercise is helping your weight and enabling the insulin shots to be reduced? For info I take 12 units of Basal per day but we are all different
 
Daibell said:
Hi. Your number of insulin shots has been quite high so perhaps the exercise is helping your weight and enabling the insulin shots to be reduced? For info I take 12 units of Basal per day but we are all different
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Yeah maybe, except my diet has been pretty good, and I'm actually very slim, but have been unfit for 15 years. I have hyperthyroid which has kept me skinny lol. I went through a phase of needing 5 units of FA for every 10g of carbs. All very strange, it's a pity my local diabetes team are so unhelpful. Thanks all for advice.
 
Becki84 said:
For the last four years I have taken levemir 40 units split dose and generally around 60units of humalin. Since I have been doing Pilates 20minutes per day, I have been unable to use any humalin and have had to cut my dose of levemir to 10 and 10 and am still experiencing hypos all theoughout the day. Has anyone heard of this??
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Exercise helps with insulin resistance so this will explain why your insulin needs have decreased since starting to exercise and become fitter, if your having hypo's then just reduce your doses further.
 
Becki84 said:
I am, iv

I am, I've had to save up and pay to see the professor of endocrinology, hoping he will know how to interpret my strange body! My local diabetes team has been beyond useless.
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I understands and agree with your action. I have said before that I'm surprised more here don't go private for an opinion and perhaps initial treatment if urgent and cost efficent.
.are you at a local dr clinic... can't you get a referral to a hospital diabetic clinic? haven't they an endo group there.

As @noblehead said, it may just be the moderate exercise you are doing and insulin resistance. if it is, an 80% reduction of insulin is an excellent improvement. I hope it continues for you
 
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jack412 said:
I understands and agree with your action. I have said before that I'm surprised more here don't go private for an opinion and perhaps initial treatment if urgent and cost efficent.
.are you at a local dr clinic... can't you get a referral to a hospital diabetic clinic? haven't they an endo group there.
Click to expand...
The diabetes centre is based at a local hospital, and I had an endocrinologist at a larger hospital in London. I was told I had a borderline case as I have other endo problems and they needed to do a GST c-peptide etc but I've waited nearly 3 years and still this hasn't been done. It's a poor service, my diabetic nurse said she was sorry but my case was too complicated for her to deal with! It took me nearly 4 months to save enough to go to oxford and see professor Wass who I might add is very professional and thorough. Guess it's hard for many people to find the money on top of all the other expenses of life! It seems to sting more paying for treatment for an illness you don't want! ;-)
 
I'm in Australia, so how patients are moved from a nurse, to a dr, to a specialist, is out of my experience. I would of imagined something too hard for a nurse and you referred to a dr in the team or back to the larger hospital you mentioned..whatever the action, it wouldn't take 3 years.
I would be jumping up and with emails to your MP and everyone else down the line, finishing with copies to the nurse and tea lady.

I was just talking to @Spiker about how T1 and T2 are treated the same here with strips etc. your experience is different to what he was saying about the UK health system. perhaps he might have better advice on how to access it.

Becki84 said:
The diabetes centre is based at a local hospital, and I had an endocrinologist at a larger hospital in London. I was told I had a borderline case as I have other endo problems and they needed to do a GST c-peptide etc but I've waited nearly 3 years and still this hasn't been done. It's a poor service, my diabetic nurse said she was sorry but my case was too complicated for her to deal with! It took me nearly 4 months to save enough to go to oxford and see professor Wass who I might add is very professional and thorough. Guess it's hard for many people to find the money on top of all the other expenses of life! It seems to sting more paying for treatment for an illness you don't want! ;-)
Click to expand...
 
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jack412 said:
I'm in Australia, so how patients are moved from a nurse, to a dr, to a specialist, is out of my experience. I would of imagined something too hard for a nurse and you referred to a dr in the team or back to the larger hospital you mentioned..whatever the action, it wouldn't take 3 years.
I would be jumping up and with emails to your MP and everyone else down the line, finishing with copies to the nurse and tea lady.

I was just talking to @Spiker about how T1 and T2 are treated the same here with strips etc. your experience is different to what he was saying about the UK health system. perhaps he might have better advice on how to access it.
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I have what is called a care coordinator now who has been involved in my care. She has already taken it to the chief exec as a complaint. Trouble is I don't feel well enough to fight them at the moment, so it's kind of on the back burner. Truth is I just want to get better and move forwards, the hospital has let me down majorly but even when they have apologised it doesn't mean much as I just want some semblance of a normal life. Unfortunately because they have left things I've ended up with a whole host of other endocrine issues.
 
let's hope the care coordinator and chief can get it worked out for you, The private specialist would have written to your GP, perhaps he can send a copy to your care coordinator
 
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