Recent Content by steveelles

Hi there I get some pretty steep drops. From what I can tell, I have two primary symptoms (along with the usual hot flushes, headache, nausea and wanting to throw a chair across the room). 1. A whizzing noise in my ears (hissing tinnitus). I think this may also happen as my sugar goes up...

35 years undiagnosed (age 4-5 upwards) Misdiagnosed Type 2 for 8 years and wrongly medicated with bad side-effects. Currently waiting MODY test. Beta cell tests came back negative. Newly on Gliclazide 320mg daily BG's now back into single figures although fastings can still be highish some...

Hi, 8.8 mmol/L when Igot uncomfortable. Started the day on a fasting of 14.1.

I've had a serious issue with stomach cramps for 35 years. The only obvious pattern was that they were always worse whenever I was at my skinniest. Whenever I am screened for Chron's or Celiac it is always negative. I have shown high fecal calprotectin levels during these periods. Diagnosed as...

Day 4 for me. 2 x 40mg. Fasting BG this AM was 14.3. Lowest in ages. My head came clear on the first day. As did my eyes. Still having some rather profound memory issues though. How are you getting on? How did you end up on this medication?

Hi. I hope they get to the bottom of things for you. I feel like we were all born a couple of decades to early and that the knowledge is going to come later. That said, I am feeling pretty grumpy about no one spotting I was diabetic for 35 years but I shall place a positive eye on the furture.

Hi, yes absolutely. Until the night sweats started in my late 20s I never showed any of the usual symptoms. I was never tested for blood sugar until I was 40. I never had any thirst or frequent trips to the loo. However, I did wet the bed until 11 and my Mum pointed out that I was in fact always...

Thank you, I will do that. Not a lot on YouTube either.

Hi there. Maternal grandfather was Type 2. Paternal grandmother was "Type 1" but here's the thing. She was undiagnosed until 56 when she had a diabetic crisis on holiday which brought on a catasrophic stroke. This was 1982 and MODY was identified in the 90s if I have my facts right. She died in...

Appologies. More detail here: My GP had refused to refer me to the Blackburn Diabetes Centre despite me being under the Bolton Diabetes Centre when I registered with him. His reason was because my HBA1Cs were good. However, it was self testing that revealed a fasting of 32.2 which was...

Hi there. I think on a thread with other MODYs would be great but I will still continue to discuss more broadly on other threads. Thanks :-)

After 5 years on Metformin and Sitaglyptin/aloglyptin (vomiting violently 3 or 4 times a week) and constantly telling various GPs that there is a problem I finally gave up on the NHS and paid for a private consultation with an endocrinologist. That was only after I took myself of all my meds and...

Currently refusing medication because it made me too ill to work. Fasting BG this morning was 23.1 and has been up near the twenties for several weeks. Have lost 6 stone. Am no longer overweight. Have increased muscle density in the 5 largest muscke groups. Eating very little. Fasting BGs have...

I'm now at 6 months after stopping the metformin and the aloglyptin (good riddance). Have lost 5 stone (in 5 years). Now at 14.5 stone standing at 6 foot 4 and feel like I am returning to my normal weight. BG's were up at 22 two months ago when I had flu. Currently seem to be hungry all the...

A high pitched whining in my right ear gives me about 90 seconds warning that my stomach is about to start rolling and moving (as my BG drops). If I eat immediately, it doesn't happen and the high pitched noise subsides after about 3 minutes. Nature is an amazing thing. An in-built audio alarm...