I have been a member for around 4 years and have posted quite frequently, particularly on T2 forum,since my own diagnosis. I have also mentioned that my grandson, who is just 2 next week, was diagnosed with Coeliac's Disease after becoming very ill when first introduced to gluten products, he has been lactose intolerant (as is his 3 month old sister) since just a few weeks old. My daughter and her husband are educated people and have been on top of his special needs from the start. However, there appears to be another problem with him - he has always liked his drinks, he only has water of his special lactose free milk, he has been offered juices but does not seem to like them. We have kind of made a joke of how much he drinks, which in retrospect sounds negligent. However, even though I am diabetic I did not consider that he could have diabetes, thinking that Type 1 was genetic. I now know this is not so. When he, Caeden, became ill with Coeliac's he changed from a happy, healthy baby who was always laughing to a whiney, sickly looking little boy, it was quite alarming. As Caeden is approaching 2 is becoming a little bit grumpy, we are thinking 'terrible twos', he used to love walking, but recently keeps pointing to his pushchair and saying 'chair', wanting to get in. My daughter says he sleeps well at night, always has, also has big naps of sometimes 3 hours or more a day of late, yet wakes up acting tired. Today, something pinged with her, her husband gives him breakfast on Saturdays and this morning he has marmite on toast, and she walked into the room and he said to her 'Drink', her husband said that he had just had his full pack of milk, usually divided into two drinks, and when we out today, taking him to a steam and old vehicle show, he usually gets so excited for these things, but although showing a little enthusiasm, he just wanted to stay in his pushchair, had another cup of his milk (this is water based by the way) and I gave him the remainder of my bottle of water with a straw. My daughter mentioned the amount he drinks again to me, and how lethargic and irritable he is becoming, and we are both thinking possible diabetes. She then went on to say she has looked it up and that is often linked to Coeliacs and symptoms are similar for diabetes are similar to those of adults. She also pointed out that he did not look well, was starting to get dark circles around his eyes, and when I considered all of this it reminded me of when he started getting sick with Coeliacs. My daughter is going to see her GP on Monday to have this investigated, and hopefully he will not be diabetic. However, neither of us have a good feeling and the consideration has to be faced, best to be armed and ready, if he does not have diabetes all the better. But, I am trying to be brave for my daughter, but inside I feel quite sick for him, the prospect of this dear, sweet and very bright little boy having not just Coeliac's and we have all agreed that he will not be treated in a pitied way (although sometimes I feel so sad for him), he has lots of support and is already being taught that he cannot eat certain foods, but if he has Type 1 diabetes I think my heart will break for him. I know that is no good for him, and maybe I am being a bit previous, but I am sincerely worried - this is more a way of sharing that worry - other than with my daughter - or my husband who is much more practical and, even though fond of him, is his step grandfather, than expecting any answers - especially as he has not even been diagnosed. However, if anyone has any experience of childhood Coeliacs, or that and Diabetes I would love to hear from you.
Coeliac Disease & Diabetes in Children
- Thread starter HpprKM
- Start Date
Re: Coeliac Disease & Ds iabetes in Children
Should have mentioned that Caeden saw his dietian on Thursday, and although tall for his age my daughter was somewhat concerned that he had not gained any height in four months.
Should have mentioned that Caeden saw his dietian on Thursday, and although tall for his age my daughter was somewhat concerned that he had not gained any height in four months.
WhitbyJet
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BUMP
Sorry HpprKM nobody has responded to your post yet. I think weekends tend to be a bit quiet. Won't be quiet for you though You will be very worried about the outcome re your darling grandson.
If you Google coeliac disease and type 1 diabetes you will find plenty of information. It looks as if both conditions go hand in hand. But of course only a doctor can give a diagnosis for sure.
You know it looks like the little one is already coping with dietary limitations following his coeliac diagnosis, you all have done well as a family all round.
My heart goes out to you because I know what it is like when one of our little ones is poorly.
I truly hope and pray that the little man is alright. Please let me know I worry with you.
Comforting hugs from me.
Sorry HpprKM nobody has responded to your post yet. I think weekends tend to be a bit quiet. Won't be quiet for you though You will be very worried about the outcome re your darling grandson.
If you Google coeliac disease and type 1 diabetes you will find plenty of information. It looks as if both conditions go hand in hand. But of course only a doctor can give a diagnosis for sure.
You know it looks like the little one is already coping with dietary limitations following his coeliac diagnosis, you all have done well as a family all round.
My heart goes out to you because I know what it is like when one of our little ones is poorly.
I truly hope and pray that the little man is alright. Please let me know I worry with you.
Comforting hugs from me.
robert72
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- Insulin
Hi HpprKM
I got Type 1 when I was 14 and coeliac when I was 53, so can't give any insight on how it affects children. But they are both auto-immune diseases and I am told there is a link although there's no reason that because you've got one you'll get the other .
Hoping that your grandson doesn't have diabetes.
Robert
I got Type 1 when I was 14 and coeliac when I was 53, so can't give any insight on how it affects children. But they are both auto-immune diseases and I am told there is a link although there's no reason that because you've got one you'll get the other .
Hoping that your grandson doesn't have diabetes.
Robert
HI hpprKM,
I have just read your story and i am really sorry to hear your news. I am a type1 diabetic and was diagnosed at the age of 6 yrs old, but i don't have coeliac disease.
From what you are saying it sounds possible for diabetes, but i hope not for his sake any everyone else.
It sounds as if he has enough to deal with at such a young age already and for your granddaughter to have coeliac disease as well.
I have a cousin of 16 yrs old just been diagnosed type1, so at least i'm not the only one in the family now LOL.
Hope all goes well at the doctors.
Keep in touch to let us know what happens.
Good luck to you all.
Take care
Tracey
I have just read your story and i am really sorry to hear your news. I am a type1 diabetic and was diagnosed at the age of 6 yrs old, but i don't have coeliac disease.
From what you are saying it sounds possible for diabetes, but i hope not for his sake any everyone else.
It sounds as if he has enough to deal with at such a young age already and for your granddaughter to have coeliac disease as well.
I have a cousin of 16 yrs old just been diagnosed type1, so at least i'm not the only one in the family now LOL.
Hope all goes well at the doctors.
Keep in touch to let us know what happens.
Good luck to you all.
Take care
Tracey
Hi hpprKM
I have just read your story too and can empathise with you. My Son James was diagnosed Type 1 just before his 3rd birthday. He had a very bad virus over Christmas 1999 and over the Christmas period, we noticed he wanted to drink and drink all the time. We took him to the GP and they did a urine test and found him to be diabetic and quickly taken to hospital and put on a drip of insulin.
It was only when we looked at photographs taken at Christmas that we noticed he had lost weight and he too had dark circles under his eyes. That was the start, then at the age of 8 he was having a lot of bad stomachs, smelly stools and lethargic and it was then detected that he too had coeliacs disease.
I too have read a lot about both and they do seem to come hand in hand as auto immune diseases.
It is not all doom and gloom, please don't worry there is light at the end of the tunnel and you will cope. My Son is now 15 and you would never know by looking at him now that he has both these conditions. He has come through his schooling from primary and comprehensive (not without moments I know) but all in all he is doing very well academically and I am very very proud of him.
At first diagnosis of Type 1 James was on 2 injections per day. Now we do multiple dose and carbohydrate counting. We are also excited about him going on the Pump and have a diabetic clinic in June to discuss him going on it after his June exams are over.
Hope this has helped you and will try and answer any other questions you may have.
Take Care
Onwards and Upwards
Yvonne
I have just read your story too and can empathise with you. My Son James was diagnosed Type 1 just before his 3rd birthday. He had a very bad virus over Christmas 1999 and over the Christmas period, we noticed he wanted to drink and drink all the time. We took him to the GP and they did a urine test and found him to be diabetic and quickly taken to hospital and put on a drip of insulin.
It was only when we looked at photographs taken at Christmas that we noticed he had lost weight and he too had dark circles under his eyes. That was the start, then at the age of 8 he was having a lot of bad stomachs, smelly stools and lethargic and it was then detected that he too had coeliacs disease.
I too have read a lot about both and they do seem to come hand in hand as auto immune diseases.
It is not all doom and gloom, please don't worry there is light at the end of the tunnel and you will cope. My Son is now 15 and you would never know by looking at him now that he has both these conditions. He has come through his schooling from primary and comprehensive (not without moments I know) but all in all he is doing very well academically and I am very very proud of him.
At first diagnosis of Type 1 James was on 2 injections per day. Now we do multiple dose and carbohydrate counting. We are also excited about him going on the Pump and have a diabetic clinic in June to discuss him going on it after his June exams are over.
Hope this has helped you and will try and answer any other questions you may have.
Take Care
Onwards and Upwards
Yvonne
Sorry all, I did reply yesterday but cannot find my reply here. However, please know I am grateful for all you nice people for taking the time to reply.
My daughter had an appointment with her GP today and mentioned the problem to her, her GP said that she is probably being a little sensitive but that she should book him to see another GP who specialises in Pediatrics, she booked him for Weds week, her GP did admit that there is a strong link between Coeliacs and T1 Diabetes. I have since told my daughter that although we hope and pray he does not have diabetes, I think she should take him to GP sooner as if he does have it then it should be dealt with asap. Particularly, as he has not lost weight yet, and her GP said that is one of the later stage symptoms of the disease.
I believe she is trying to get him in to the GP this week.
With special thanks to all of you, and to James' mother, who has told me her son is both Coeliac and Diabetic and for letting me know it is not all gloom and doom. Caeden has not really been introduced to sugar ie he does not have sweets, for his mother sees no need for these at a such a young age, and there is no way if he has a sugar craving, but his thirst and the change in behaviour and attitude is worrying, plus not eating like he used to, he has always been really good with nearly all vegetables and fruit, he especially loves potatoes (though this could be perceived as an issue if diabetic) and meat. Lately all he seems to want is just that - potatoes and meat, bearly touching his veg, but we thought (and it still could be) his age, where he is seeing himself as a person and making his own choices. As a Coeliac he gets prescription pasta, bread and crispbreads, but I simply cannot what he could eat if diabetic, as these are all carbohydrate based. Guess will have to wait and see before worrying, there must be some foods he would be able to eat.
Thanks again for your kind support.
My daughter had an appointment with her GP today and mentioned the problem to her, her GP said that she is probably being a little sensitive but that she should book him to see another GP who specialises in Pediatrics, she booked him for Weds week, her GP did admit that there is a strong link between Coeliacs and T1 Diabetes. I have since told my daughter that although we hope and pray he does not have diabetes, I think she should take him to GP sooner as if he does have it then it should be dealt with asap. Particularly, as he has not lost weight yet, and her GP said that is one of the later stage symptoms of the disease.
I believe she is trying to get him in to the GP this week.
With special thanks to all of you, and to James' mother, who has told me her son is both Coeliac and Diabetic and for letting me know it is not all gloom and doom. Caeden has not really been introduced to sugar ie he does not have sweets, for his mother sees no need for these at a such a young age, and there is no way if he has a sugar craving, but his thirst and the change in behaviour and attitude is worrying, plus not eating like he used to, he has always been really good with nearly all vegetables and fruit, he especially loves potatoes (though this could be perceived as an issue if diabetic) and meat. Lately all he seems to want is just that - potatoes and meat, bearly touching his veg, but we thought (and it still could be) his age, where he is seeing himself as a person and making his own choices. As a Coeliac he gets prescription pasta, bread and crispbreads, but I simply cannot what he could eat if diabetic, as these are all carbohydrate based. Guess will have to wait and see before worrying, there must be some foods he would be able to eat.
Thanks again for your kind support.
Sorry all, I did reply yesterday but cannot find my reply here. However, please know I am grateful for all you nice people for taking the time to reply.
My daughter had an appointment with her GP today and mentioned the problem to her, her GP said that she is probably being a little sensitive but that she should book him to see another GP who specialises in Pediatrics, she booked him for Weds week, her GP did admit that there is a strong link between Coeliacs and T1 Diabetes. I have since told my daughter that although we hope and pray he does not have diabetes, I think she should take him to GP sooner as if he does have it then it should be dealt with asap. Particularly, as he has not lost weight yet, and her GP said that is one of the later stage symptoms of the disease - and heaven knows we don't want to wait for that to happen. As with James, he got very sick with the Coeliacs and we did not realise just how sick until looking back at photos from that time.
Not sure if is relevant, but autoimmune diseases seem to rife in our family, I and my older brother have T2, my daughter and her brother both have Hashimo's thyroid disease and my daughter has a wheat intolerance, but I can cope with my diabetes if only that would mean Caeden does not have it. Guess that is not an option though :roll:
I believe she is trying to get him in to the GP this week.
With special thanks to all of you, and to James' mother, who has told me her son is both Coeliac and Diabetic and for letting me know it is not all gloom and doom. Caeden has not really been introduced to sugar ie he does not have sweets, for his mother sees no need for these at a such a young age. I have told her that although her two older brothers were introduced to sweets at a comparatively young age, I used to give her fruit instead, hence she never had the sweet toothe that my sons seem to have inherited from me, whether coincidence or not I do not know! There is no way if Caeden has a sugar craving, but his thirst and the change in behaviour and attitude is worrying, plus not eating like he used to, he has always been really good with nearly all vegetables and fruit, he especially loves potatoes (though this could be perceived as an issue if diabetic) and meat. Lately all he seems to want is just that - potatoes and meat, barely touching his veg, but we thought (and it still could be) his age, where he is seeing himself as a person and making his own choices. As a Coeliac he gets prescription pasta, bread and crispbreads, but I simply cannot what he could eat if diabetic, as these are all carbohydrate based. Guess will have to wait and see before worrying, there must be some foods he would be able to eat. Again, today, Caeden goes to nursery on Monday mornings, and after a good night's sleep, my daughter said he did not want to get up - that does not sound right for a two year old. Bless him, such a sweet little boy.
Thanks again for your kind support.
My daughter had an appointment with her GP today and mentioned the problem to her, her GP said that she is probably being a little sensitive but that she should book him to see another GP who specialises in Pediatrics, she booked him for Weds week, her GP did admit that there is a strong link between Coeliacs and T1 Diabetes. I have since told my daughter that although we hope and pray he does not have diabetes, I think she should take him to GP sooner as if he does have it then it should be dealt with asap. Particularly, as he has not lost weight yet, and her GP said that is one of the later stage symptoms of the disease - and heaven knows we don't want to wait for that to happen. As with James, he got very sick with the Coeliacs and we did not realise just how sick until looking back at photos from that time.
Not sure if is relevant, but autoimmune diseases seem to rife in our family, I and my older brother have T2, my daughter and her brother both have Hashimo's thyroid disease and my daughter has a wheat intolerance, but I can cope with my diabetes if only that would mean Caeden does not have it. Guess that is not an option though :roll:
I believe she is trying to get him in to the GP this week.
With special thanks to all of you, and to James' mother, who has told me her son is both Coeliac and Diabetic and for letting me know it is not all gloom and doom. Caeden has not really been introduced to sugar ie he does not have sweets, for his mother sees no need for these at a such a young age. I have told her that although her two older brothers were introduced to sweets at a comparatively young age, I used to give her fruit instead, hence she never had the sweet toothe that my sons seem to have inherited from me, whether coincidence or not I do not know! There is no way if Caeden has a sugar craving, but his thirst and the change in behaviour and attitude is worrying, plus not eating like he used to, he has always been really good with nearly all vegetables and fruit, he especially loves potatoes (though this could be perceived as an issue if diabetic) and meat. Lately all he seems to want is just that - potatoes and meat, barely touching his veg, but we thought (and it still could be) his age, where he is seeing himself as a person and making his own choices. As a Coeliac he gets prescription pasta, bread and crispbreads, but I simply cannot what he could eat if diabetic, as these are all carbohydrate based. Guess will have to wait and see before worrying, there must be some foods he would be able to eat. Again, today, Caeden goes to nursery on Monday mornings, and after a good night's sleep, my daughter said he did not want to get up - that does not sound right for a two year old. Bless him, such a sweet little boy.
Thanks again for your kind support.
Thanks for suggestions phoenix, at the moment we are told he is particularly sensitive to gluten and been advised for him not to have porridge, as it is usually contaminated by gluten, we shall see though.
borofergie
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I don't have coeliac disease, but I opt not to eat any grains (or anything derived from them if possible), partly because of the carb count, but mainly because I'm convinced that gluten is harmful for everyone. Diabetic or not, I think that vegetable starches are far less harmful for everyone than grains.
Hope it all works out...
Stephen
Hope it all works out...
Stephen
I am wondering if there is any reason why you couldn't try a finger prick test to check his sugar levels yourselves? I may well be missing something here, ie maybe that is not allowed on little ones, I have no idea, but just a thought.
Ali
Ali
Dillinger
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Hi,
Infants blood sugars vary quite a lot apparently; I have been told if I'm worried about my sons being diabetic the first test you should do is a urine glucose test (you can get the test strips from any large chemist for about £5 - not ketone testers - glucose testers).
That is because once the 'renal threshold' for glucose has been passed the kidneys will start extracting glucose whereas a simple blood test may give you false positives (I once got a 12 mmol/ml result with my son but that turned out to be a false alarm and I was told off for testing him).
If you do find glucose in the urine then that is a bad sign I'm afraid.
Good luck with this.
Best
Dillinger
Infants blood sugars vary quite a lot apparently; I have been told if I'm worried about my sons being diabetic the first test you should do is a urine glucose test (you can get the test strips from any large chemist for about £5 - not ketone testers - glucose testers).
That is because once the 'renal threshold' for glucose has been passed the kidneys will start extracting glucose whereas a simple blood test may give you false positives (I once got a 12 mmol/ml result with my son but that turned out to be a false alarm and I was told off for testing him).
If you do find glucose in the urine then that is a bad sign I'm afraid.
Good luck with this.
Best
Dillinger
Ah well done Dillinger, knew somebody would have an answer and a suggestion. So if you have a toddler with diagnosed type 1, how do the parents figure out what insulin to give them if the use of a meter is a bit hit and miss? That must be a nightmare!
Ali
Ali
My daughter doesn't have coeliac but she was diagnosed t1 at age 4 and her symptoms were very similar to what you describe - fatigue, wanting to be carried rather than walking, dark circles under the eyes, weight loss, very thirsty, generally feeling miserable. I'm surprised that a doctor has put off an appointment until next week, I would want my child assessed immediately, if it is t1 you don't want to leave it a minute longer than necessary. At the doctors a finger prick test and urine ketone test was done immediately (done by a normal GP not pediatric specialist), based on those readings we were packed straight off to A&E where they did blood tests and put her onto fluids for dehydration and insulin. Waiting a week to see a pediatric doctor to me is madness if t1 is suspected.
Well, Caeden saw GP yesterday, who said he could not see much wrong with him. My daughter tried to explain her reasons for suspecting, and even that in the waiting room he clung to her rather than getting down to play as he normally does. However, he did suggest a urine test, that would be ok but he is not yet potty trained so my daughter is now trying to get him to sit on potty and produce some urine. She had planned to wait until after his second birthday, as he had a new sister just over 3 months ago, whom he adores and kisses and gives toys to, but she did not want to put extra stress of potty training during until he had become used to having baby around. If anyone has any suggestions then they would be much appreciated at this point
Hoping the GP is right, maybe it is all just his age, and he did say it could be something else going on with him, definitely not coeliacs, as even has his own toaster and bread board, knife, spread etc to prevent non contamination. He said he would be a lot sicker if it was diabetes, but I wonder just how sick he needs to be before they would actually diagnose it! I had very few symptoms myself, and only went to GP because of lack of energy, which to be honest i thought could be my age, and a stressful teaching job, also two children have Hashimoto's thyroid disease and thought better be safe than sorry, never in a million years did diabetes come into my mind!
I will keep you updated, all information is read and most welcome, thanks for you time I appreciate how life is busy for many people. One note on contamination, my daughter is of the opinion to keep him as far away from any possible contamination as is possible without taking any risks, so although there is a porridge available, apparently this is expensive, he will have to stay on cornflakes for a while at least. He also likes marmite on toast, and has fruit for breakfast, plus his gluten free snacks. He has been looking very healthy, still does really, but he is starting to take on the same kind of problems that led up to my daughter suspecting Coeliacs, ie whining, tiredness and lethargy. But he is a charmer and smiled nicely at the GP yesterday, giving the impression of being ok! Very misleading. :wink:
Hoping the GP is right, maybe it is all just his age, and he did say it could be something else going on with him, definitely not coeliacs, as even has his own toaster and bread board, knife, spread etc to prevent non contamination. He said he would be a lot sicker if it was diabetes, but I wonder just how sick he needs to be before they would actually diagnose it! I had very few symptoms myself, and only went to GP because of lack of energy, which to be honest i thought could be my age, and a stressful teaching job, also two children have Hashimoto's thyroid disease and thought better be safe than sorry, never in a million years did diabetes come into my mind!
I will keep you updated, all information is read and most welcome, thanks for you time I appreciate how life is busy for many people. One note on contamination, my daughter is of the opinion to keep him as far away from any possible contamination as is possible without taking any risks, so although there is a porridge available, apparently this is expensive, he will have to stay on cornflakes for a while at least. He also likes marmite on toast, and has fruit for breakfast, plus his gluten free snacks. He has been looking very healthy, still does really, but he is starting to take on the same kind of problems that led up to my daughter suspecting Coeliacs, ie whining, tiredness and lethargy. But he is a charmer and smiled nicely at the GP yesterday, giving the impression of being ok! Very misleading. :wink:
So sorry for the late reply.
My daughter was diagnosed woth type 1 november 2010 (aged 4) we pushed for her to be diagnosed she was drinking an awful lot and started wetting the bed something she has never done before, was one minute very hyper the next minute she would be pale and lying down crying.
My mum had just read an article about diabetes and could see some patterns. Looking back now in photos she looks really ill but we just didnt see it.
I went to our G.P and took a urine sample they kept trying to fob me off saying a urnie infection but finally after much talk and myself bascially not moving till they tested for Diabetes. They found glucose in her wee then they tested her B.G she was 19.8 we then got sent to hospital. You know your own child if you think there is something wrong make sure you get them to look into.
Leah was complaining of tummy aches and needing the toilet alot and very windy since January 2011 i knew yet agin something wasnt right with her kept going to her diabetic nurses and consultant i asked about coeliac since they are often linked together they kept dismising it saying its proberly emotional and down to her diabetes december 2011 they finally sent her for bloods which came back high for coealiac and whe had the endosccopy in april. Leah was diagnosed with coeliac disease 20th May 2012 just berfore her 6th birthday.
It has taken along time toget everything sorted and a lot of meetings and me standing my ground with doctors and consulatants thinking im over reacting. even when the blood tests came back high, they still told me they doubt she had coeliac disease.
Leah is coping well and doesnt really mind the coeliac side of things yet!!! we havent ever ate out yet can see that being a problem. Her diabetes we do have tears and tantrums over she wants to know why but we read the books to her and talk about it i think it would help if she had a friend her own age to talk to. it is possible we make a lot of our own things. But she is a happy active 6 year old thats all that matters.
Hope your grandson is ok please pm if you want to chat :thumbup:
My daughter was diagnosed woth type 1 november 2010 (aged 4) we pushed for her to be diagnosed she was drinking an awful lot and started wetting the bed something she has never done before, was one minute very hyper the next minute she would be pale and lying down crying.
My mum had just read an article about diabetes and could see some patterns. Looking back now in photos she looks really ill but we just didnt see it.
I went to our G.P and took a urine sample they kept trying to fob me off saying a urnie infection but finally after much talk and myself bascially not moving till they tested for Diabetes. They found glucose in her wee then they tested her B.G she was 19.8 we then got sent to hospital. You know your own child if you think there is something wrong make sure you get them to look into.
Leah was complaining of tummy aches and needing the toilet alot and very windy since January 2011 i knew yet agin something wasnt right with her kept going to her diabetic nurses and consultant i asked about coeliac since they are often linked together they kept dismising it saying its proberly emotional and down to her diabetes december 2011 they finally sent her for bloods which came back high for coealiac and whe had the endosccopy in april. Leah was diagnosed with coeliac disease 20th May 2012 just berfore her 6th birthday.
It has taken along time toget everything sorted and a lot of meetings and me standing my ground with doctors and consulatants thinking im over reacting. even when the blood tests came back high, they still told me they doubt she had coeliac disease.
Leah is coping well and doesnt really mind the coeliac side of things yet!!! we havent ever ate out yet can see that being a problem. Her diabetes we do have tears and tantrums over she wants to know why but we read the books to her and talk about it i think it would help if she had a friend her own age to talk to. it is possible we make a lot of our own things. But she is a happy active 6 year old thats all that matters.
Hope your grandson is ok please pm if you want to chat :thumbup:
Hi Serankine,
I have only just noticed your reply, so kind of you to write back. My daughter eventually bought strips for Caeden and they managed to test his urine for sugar, difficult since he still wears nappies! Happily, he came up negative - to date, but we understand that his auto immune disease could make him vulnerable to diabetes later in life.
I am sorry to learn of your daughter's condition, but glad to hear it is now being managed. Caeden, like your daughter, does not mind his condition yet as he is too young to understand, also he is dairy intolerant so this makes feeding him just a little harder, especially when out. When we do eat out, my daughter telephones in advance to see if they can cater for a coeliac child, many places are very good with this. One of our favourite places is the Toby Carvery, where they can help themselves to his food which also helps. You may not have been told this, but Caeden is especially sensitive and all his food must be non contaminated, ie he has his own toaster, breadboard etc, the slightest contamination with wheat makes him poorly. This is also something that needs to be addressed if eating out, if they provide gluten free food, is there a risk of contamination? We go to a really nice coffee shop, they do have gluten free bread, so when we have a snack my daughter sometimes orders toast for Caeden, and they cover the grill with foil for him, to avoid contamination.
I am going on holiday on 15 to 28 June, but if you want to chat about your daughter's condition please do pm me. I have been to most of Caeden's paedetrician and dietian meetings, as I care for him two days a week and feel I need to understand what is going on with him. My daughter and her husband had a dreadful time getting the hospital to acknowledge he had coeliac disease, they kept saying he went to nursery and they pick up all sorts of bugs there, when he was hospitalised one time for being so ill, the Consultant said 'It's winter and children get all sorts of bugs in winter', it was late April! But she is intelligent and educated and did tons of research and stuck to her guns, but the most annoying thing to her was that the Hospital keep saying it is difficult to test him for Coeliac's because she took him off wheat herself, but he was so very sick and poorly that they got to the point of sitting him in the bath, he lost so much weight and his whole personality changed from happy to a whiny child, one that was alert and beginning to stand around 9 months, but became so ill his legs could not hold him up, that set back his walking by a few good weeks. What parent would let their child go on like this if they found out what the problem was? Also, the change back was almost over night, as soon as wheat was removed from his diet
Hope to hear back, it is always good to chat with someone else about their experiences, and you and my daughter may be able to share findings. Wishing you and your daughter well.
I have only just noticed your reply, so kind of you to write back. My daughter eventually bought strips for Caeden and they managed to test his urine for sugar, difficult since he still wears nappies! Happily, he came up negative - to date, but we understand that his auto immune disease could make him vulnerable to diabetes later in life.
I am sorry to learn of your daughter's condition, but glad to hear it is now being managed. Caeden, like your daughter, does not mind his condition yet as he is too young to understand, also he is dairy intolerant so this makes feeding him just a little harder, especially when out. When we do eat out, my daughter telephones in advance to see if they can cater for a coeliac child, many places are very good with this. One of our favourite places is the Toby Carvery, where they can help themselves to his food which also helps. You may not have been told this, but Caeden is especially sensitive and all his food must be non contaminated, ie he has his own toaster, breadboard etc, the slightest contamination with wheat makes him poorly. This is also something that needs to be addressed if eating out, if they provide gluten free food, is there a risk of contamination? We go to a really nice coffee shop, they do have gluten free bread, so when we have a snack my daughter sometimes orders toast for Caeden, and they cover the grill with foil for him, to avoid contamination.
I am going on holiday on 15 to 28 June, but if you want to chat about your daughter's condition please do pm me. I have been to most of Caeden's paedetrician and dietian meetings, as I care for him two days a week and feel I need to understand what is going on with him. My daughter and her husband had a dreadful time getting the hospital to acknowledge he had coeliac disease, they kept saying he went to nursery and they pick up all sorts of bugs there, when he was hospitalised one time for being so ill, the Consultant said 'It's winter and children get all sorts of bugs in winter', it was late April! But she is intelligent and educated and did tons of research and stuck to her guns, but the most annoying thing to her was that the Hospital keep saying it is difficult to test him for Coeliac's because she took him off wheat herself, but he was so very sick and poorly that they got to the point of sitting him in the bath, he lost so much weight and his whole personality changed from happy to a whiny child, one that was alert and beginning to stand around 9 months, but became so ill his legs could not hold him up, that set back his walking by a few good weeks. What parent would let their child go on like this if they found out what the problem was? Also, the change back was almost over night, as soon as wheat was removed from his diet
Hope to hear back, it is always good to chat with someone else about their experiences, and you and my daughter may be able to share findings. Wishing you and your daughter well.
