- Messages
- 18
- Type of diabetes
- Type 2
- Treatment type
- Insulin
- Dislikes
- Liars, nose pickers and eaters especially in public view, sweaty arm pits, smelly feet, DVT's and PE's they hurt a lot. High Sugars.
I am a type 2 diabetic, who started with 25.0 sugars some 9 years ago, I was put on Metformin which made me vomit then metformin slow release which also made me vomit.
They then switched me to Gliclazide for about 4 years until it became ineffective my biggest problem seems to be
High sugars in the mornings.
After Gliclazide I was put on Humalog short acting insulin and Lantus long acting insulin after requesting that the Diabetes clinic at Kettering Hospital see me because I was simply not getting good management from the Nurse at my GP clinic.
I was put on Lantus and Humalog so that I could have greater control by varying the dosages my self I liked that and it made life a lot easier.
Unfortunately I am an only child and in the last 3 years my 81 year old Father has contracted Cancer and My 80 year old Mother has Dementia, so I struggle to look after them both. My Father vomits regularly because his meds make him sick and the stress of it all has made my sugars difficult to manage I now have high blood pressure and take tablets for that discovered Christmas 2014.
I have a history of recurrent DVT’s 27 in the last 26 years and I have also had 5 PE’s or pulmonary emboli in my lungs, I am not currently working but this helps me with time to help take care of my parents.
About a month ago my Hb1ac’s were a little high again so the GP surgery Nurse tries to adjust my insulin after only one week she contacts me again and my morning highs haven’t come down at all and says that she gives up and will call the Diabetes Specialist. I assumed that it took at least 3 weeks for sugars to start to stabilise this Nurse expects very quick results on one hand and contradicts herself at her convince if things are not working out for her. .
Three weeks pass by and my morning sugars drop to 14.0. This week I go in to see the nurse and the specialist, who just happens to turn out to be the specialist I saw at the diabetes clinic at Kettering hospital 6 years ago only this time she tells me I’m on the wrong insulin, now I really am confused.
My GP at the same surgery has said that they wouldn’t necessarily worry about my sugars being high first thing in the mornings they would be more worried about them being constantly to low.
I have read a lot online about people having high sugars in the mornings mine are usually controlled quite well and significantly lower by mid afternoon i.e. between 5.0 and 7.0. and fgrequently much lower by tea time ie between 5pm and 6pm.
At the specialists appointment last Thursday I was put on Insuman Comb 25 to be taken once in the morning and once before my evening meal.
The specialist gave me a card and said that if I ever ran out of insulin I could take the pass card to a chemist and get some insulin, the Nurse then piped up and said well you’ll still need a prescription for that , so what is the point of a pass card to get some insulin from the chemists in an emergency if the surgery is closed and you have no insulin, the pass card is a pointless piece of plastic.
Ok so I have been taking Insuman Comb 25 for almost 4 days, my sugars in the mornings are reaching 25.0 my vision is getting blurry I had both cataracts surgically replaced last year and this worries me a lot.
With such high sugars on Monday Tuesday and Wednesday of this week I took some short acting Humalog to get my sugars down to a reasonable level and hopefully back in control.
On Thursday today the nurse phones me up to see how things are going on the new insulin which is clearly allowing my sugars to rise affecting my eyesight and the situation was getting worse whilst I was waiting for her to contact me, please remember I have had better control on the old insulin’s over a fairly long period of time.
I am currently under a lot of stress with caring for my parents and I tried to explain this to the nurse but she poo poo’d it and said well you should try working and looking after your parents at the same time.
Maybe she should keep her opinions to herself and consider that some may struggle with the stress of looking after their parents especially someone who has been assessed by Atos healthcare as being incapable of holding down a job.
I don’t like this woman at all and never have. There have been other treatment issues with her in the past where I have had to speak to a doctor about her behaviour and question her attitude and methods in leg ulcer treatment.
I was found to be correct in my assumption that other methods worked better for different patients.
You see I freak out completely becoming very depressed when my legs are wrapped in compression bandages for months on end.
On the phone today with the Nurse who telephoned me with her mobile phone I explained that my sugars were getting higher and higher and there was nothing I could do except take a small amount of fast acting Humalog to get my sugars down to a reasonable level being up every hour of the night to go to the toilet and then being awake enough to manage helping with my parents during the day is a real problem at the moment.
I just got a barrage of abuse for deviating from the set dose of Insuman comb 25 which was allowing my sugars to escalate way above that of my previous readings on the old insulin’s.
I said hang on a minute I am under a lot of stress and I really don’t need this at the moment, so she said she was going to put me on speaker phone so that others could hear the conversation and I hung up.
I can’t even have private conversation about my own private healthcare and I really do not believe that this woman is qualified to be a diabetics nurse as every time I see her she wants to meddle by changing my insulin if she cant get a new dose of insulin right she looses here patience within a week and that is not acceptable at all.
Now I have no diabetes treatment at all and I shall have to go to A & E when my insulin runs out I cannot get a GP appointment for 3 weeks and they wont give me an appointment because they are all booked up so I have to ring again in three weeks time. My new insulin won’t last that long I have maybe 2 weeks supply left if I’m lucky and the dose needs increasing anyway. However I have plenty of Lantus and humalogue left and may have to use that to regulate my sugars in the mean time.
Any suggestions please? I will not go back to this Nurse again. For Diabetes treatment. In fact I don’t want to be treated by her again full stop.
I have never been on any type of course apparently something that was available to people in all the time I have been treated but I never had a referral to go, I would love the opportunity to learn more about my Diabetes.
some guidance as to what I can do next would be very helpful. suggestions that I should go back to the GP surgery Nurse would be a waste of time.
many thanks .
Nigel.
They then switched me to Gliclazide for about 4 years until it became ineffective my biggest problem seems to be
High sugars in the mornings.
After Gliclazide I was put on Humalog short acting insulin and Lantus long acting insulin after requesting that the Diabetes clinic at Kettering Hospital see me because I was simply not getting good management from the Nurse at my GP clinic.
I was put on Lantus and Humalog so that I could have greater control by varying the dosages my self I liked that and it made life a lot easier.
Unfortunately I am an only child and in the last 3 years my 81 year old Father has contracted Cancer and My 80 year old Mother has Dementia, so I struggle to look after them both. My Father vomits regularly because his meds make him sick and the stress of it all has made my sugars difficult to manage I now have high blood pressure and take tablets for that discovered Christmas 2014.
I have a history of recurrent DVT’s 27 in the last 26 years and I have also had 5 PE’s or pulmonary emboli in my lungs, I am not currently working but this helps me with time to help take care of my parents.
About a month ago my Hb1ac’s were a little high again so the GP surgery Nurse tries to adjust my insulin after only one week she contacts me again and my morning highs haven’t come down at all and says that she gives up and will call the Diabetes Specialist. I assumed that it took at least 3 weeks for sugars to start to stabilise this Nurse expects very quick results on one hand and contradicts herself at her convince if things are not working out for her. .
Three weeks pass by and my morning sugars drop to 14.0. This week I go in to see the nurse and the specialist, who just happens to turn out to be the specialist I saw at the diabetes clinic at Kettering hospital 6 years ago only this time she tells me I’m on the wrong insulin, now I really am confused.
My GP at the same surgery has said that they wouldn’t necessarily worry about my sugars being high first thing in the mornings they would be more worried about them being constantly to low.
I have read a lot online about people having high sugars in the mornings mine are usually controlled quite well and significantly lower by mid afternoon i.e. between 5.0 and 7.0. and fgrequently much lower by tea time ie between 5pm and 6pm.
At the specialists appointment last Thursday I was put on Insuman Comb 25 to be taken once in the morning and once before my evening meal.
The specialist gave me a card and said that if I ever ran out of insulin I could take the pass card to a chemist and get some insulin, the Nurse then piped up and said well you’ll still need a prescription for that , so what is the point of a pass card to get some insulin from the chemists in an emergency if the surgery is closed and you have no insulin, the pass card is a pointless piece of plastic.
Ok so I have been taking Insuman Comb 25 for almost 4 days, my sugars in the mornings are reaching 25.0 my vision is getting blurry I had both cataracts surgically replaced last year and this worries me a lot.
With such high sugars on Monday Tuesday and Wednesday of this week I took some short acting Humalog to get my sugars down to a reasonable level and hopefully back in control.
On Thursday today the nurse phones me up to see how things are going on the new insulin which is clearly allowing my sugars to rise affecting my eyesight and the situation was getting worse whilst I was waiting for her to contact me, please remember I have had better control on the old insulin’s over a fairly long period of time.
I am currently under a lot of stress with caring for my parents and I tried to explain this to the nurse but she poo poo’d it and said well you should try working and looking after your parents at the same time.
Maybe she should keep her opinions to herself and consider that some may struggle with the stress of looking after their parents especially someone who has been assessed by Atos healthcare as being incapable of holding down a job.
I don’t like this woman at all and never have. There have been other treatment issues with her in the past where I have had to speak to a doctor about her behaviour and question her attitude and methods in leg ulcer treatment.
I was found to be correct in my assumption that other methods worked better for different patients.
You see I freak out completely becoming very depressed when my legs are wrapped in compression bandages for months on end.
On the phone today with the Nurse who telephoned me with her mobile phone I explained that my sugars were getting higher and higher and there was nothing I could do except take a small amount of fast acting Humalog to get my sugars down to a reasonable level being up every hour of the night to go to the toilet and then being awake enough to manage helping with my parents during the day is a real problem at the moment.
I just got a barrage of abuse for deviating from the set dose of Insuman comb 25 which was allowing my sugars to escalate way above that of my previous readings on the old insulin’s.
I said hang on a minute I am under a lot of stress and I really don’t need this at the moment, so she said she was going to put me on speaker phone so that others could hear the conversation and I hung up.
I can’t even have private conversation about my own private healthcare and I really do not believe that this woman is qualified to be a diabetics nurse as every time I see her she wants to meddle by changing my insulin if she cant get a new dose of insulin right she looses here patience within a week and that is not acceptable at all.
Now I have no diabetes treatment at all and I shall have to go to A & E when my insulin runs out I cannot get a GP appointment for 3 weeks and they wont give me an appointment because they are all booked up so I have to ring again in three weeks time. My new insulin won’t last that long I have maybe 2 weeks supply left if I’m lucky and the dose needs increasing anyway. However I have plenty of Lantus and humalogue left and may have to use that to regulate my sugars in the mean time.
Any suggestions please? I will not go back to this Nurse again. For Diabetes treatment. In fact I don’t want to be treated by her again full stop.
I have never been on any type of course apparently something that was available to people in all the time I have been treated but I never had a referral to go, I would love the opportunity to learn more about my Diabetes.
some guidance as to what I can do next would be very helpful. suggestions that I should go back to the GP surgery Nurse would be a waste of time.
many thanks .
Nigel.