Search Results

  1. J

    help urgent advice ambulance or not

    son hi bm, ketones, abdo pain had sleepover last night, home this morning obvious ketones, big correction on novo - i said try 4 units (sick day amount) he gave 14. 2 hours later still hi - ketones gone from 3.6 2 hours ago to 4.6 now. no car husband due home in an hour shall i wait or call an...
  2. J

    dka admission and some other hospital questions

    Thanks for your reply. Some resonates and some - i realise i havent explained myself properly! It isnt an quick thing without having seen signs re the aspergers or whatever it is - he has always been different due to a variety of reasons and school have always had issues with him (right from...
  3. J

    Video games for diabetes?

    i know this is late - but just read in iddt newsletter that disney have partnered drug company eli lilly to collaborate to help families of children with type 1 diabetes receive education and practical advice in a fun friendly way - sounds like a possible video game??
  4. J

    dka admission and some other hospital questions

    Son (14) got admitted on Tuesday morning with dka - not great with eating right, injecting right etc Any way This lunchtime he is off fluids and insulin iv Consultant says she wants him in until at least friday so she can work out what insulin he should be on. Son has other problems which...
  5. J

    any 'sweets' etc without maltitol etc?

    I bought some Sula for son thinking - oh great - sugar free sweets - errr found out later they do have carbs, and after a bit of investigation i realise now the 'sugar alchohols' dont mean 'sugar or carb free' for the purposes of blood sugar spiking etc My question is = what sweet things...
  6. J

    Bad smell

    Do you think it might be gastroparesis (google it ) food not digesting properly etc - can lead to foul smells - apparently more common in diabetics.
  7. J

    moving to mdi quesiton about food and doses

    Thanks for your replies (dont get on the computer at the weekend, so just seen them) Over the weekend things went pretty well ! :P He was I think open about what he had, and tested and i wrote down the time, the bm, the food, the carbs we thought it was (to be checked by nurse in 2 weeks)...
  8. J

    moving to mdi quesiton about food and doses

    by the way - thanks Annete and ams for you helpful replies - didnt spot them initially as i found the other two responses via the rss feed, and yours werent listed for some reason. I will try what the nurse suggested and tweak it. He is so rebellious though :(
  9. J

    moving to mdi quesiton about food and doses

    We have seen the dietician and learnt about carb counting, which we understand the mechanics of - both him and us - although i am sure there will be things we are still to learn as we go on. As far as being very strict - we have tried that and that i think is why we are where we are now. He...
  10. J

    moving to mdi quesiton about food and doses

    thank you both for your replies. I really hope it works too! This morning he woke up feeling ******, and said he didnt want anything to eat. When I asked him about doing his blood test he just said that there was no point because if he wasnt high then he still felt ******. :roll: I left the...
  11. J

    moving to mdi quesiton about food and doses

    Hi - first of all can i ask for no judgy comments just simple advice? About my son, terrible control, but going onto mdi to try and improve things. Just come back from dietician appt re carbs etc but still have a couple of questions. Son age 13 been on 2 injections a day since diagnosed 2...
  12. J

    Direct payments for carer's?

    They are trying to "encourage" everyone onto direct payments You will pay for the care that the council paid for on your behalf, and in theory it shouldnt make any difference to you, except that you have more choice about what services to purchase, and where from. However, I see it as a...
  13. J

    Coping with what other kids say

    Ignore this if you think it is stupid, but - Just a thought - as she is bubbly and outgoing, can she be brash about it and confront them in a jokey but confident way? Or maybe ask them why they are staring at her bum? Or tell them she it's the source of her superpower? etc - something so that...
  14. J

    DLA

    Get the healthcare proffessionals on board - esp DSN Try making a log of situations where she needed help eg hypos out, or night time, any time spent in hospital, etc
  15. J

    help for my 4 yr old with the injections???

    sorry as well to hear about your daughter... Just wanted to let you and any other people know about a bear that helped my little girl when she was around that age: http://www.jdrf.org.uk/page.asp?section ... 0400030001 follow this link (or if it doesnt work google 'rufus and ruby diabetes' on...
  16. J

    Video games for diabetes?

    Is the Magi and the Sleeping star available to buy? I just googled it and only seem to be able to come to articles about it and a demo page which shows a trailer for the game..
  17. J

    when they just won't eat?????

    i would agree not to inject until they have eaten because this thing is all too common! They soon learn that they might get nice sweets etc if they dont eat and go hypo because they have had their injection - sounds harsh but it is true. There is always the glucagon if all else fails - not nice...
  18. J

    DLA

    I would ask the diabetes nurse rather than the CAB because they have more knowledge in this specific area (because we were in a large childrens hospital with a big dept for paediatric diabetes they even had handouts with information about each section and ideas for how to fill it in! which was...
  19. J

    DLA

    I understand what you mean, and yes, it is due to specific circumstances in our case It really isnt a case of milking the system, because you are telling the truth about what you have to do for the person - its just not leaving anything out - telling everything and then they decide Of course...
  20. J

    DLA

    I would appeal if we got refused because the money you get does help compensate for the time off work (in my case unpaid) for clinic visits, in our case also mental health team visits (unpaid for me), the having to go to school to collect because they dont think he is well enough to be there or...