Search Results

Hi, This was the age our daughter was diagnosed. After querying with her consultant on an unrelated issue we were told it wouldn't be T1, so we eventually took her to the local urgent care centre who confirmed within ten minutes of testing her urine. As others have said, even if it isn't T1 it...

It always feels a bit strange to welcome someone here as it typically means a newly diagnosed person. It can be challenging at times especially in the early stages where you are learning so much and adapting to different ways of doing things. Hoping you have a good supportive team at the...

Hi, Sorry to hear you are feeling this way. I think a lot of us in the community, be it those with T1, or parents etc have felt this way at times. The last year certainly hasn't made it any easier. The journey can be a roller-coaster, or like a Dexcom graph on a tough day [emoji846]. Take...

Hi, Our daughter was also diagnosed at 2yrs and we straight to pump and CGM as we have quite a volatile presentation, but it sounds like your little one is okay with MDI. I can relate re the sweets, we have a constant supply of sour patch fizzy sweets in stock. The fruit yoyo winders are a...

Hi, It's only on the dana at the moment. Not sure as to availability per each NHS trust as we got ours on a clinical trial via Cambridge initially, with our clinic (UCLH) now providing the cost of the consumables. There are other closed loop based solutions, but this way we were fully...

Morning, We were in a similar position in 2017 when our daughter was just over two years old. We also went straight to a pump and CGM set up and we have literally had many ups and downs with varying levels [emoji846]. We are now on a trial using the CamAPS FX app which has massively improved...

We are on our second school following a nightmare with our first. This was only possible for us by obtaining an EHC via the LA. The new school is a totally different experience with a great Senco and TA. I would suggest you research your rights in relation to educational provision and associated...

Our daughter was diagnosed under similar circumstances at two years old. Spent one month on the ward and didn't leave until we had both the Pump and Dexcom G5, mainly to ensure they didn't try and fob us off without providing them. It is a massive shock, and slowly you come to terms with it and...

Hey, Our daughter was diagnosed just over two years ago and is now four. She wears a G6 and an accu chek insight. We still have multiple issues with sensor errors and compression lows and sometimes we feel like the alerts are never ending. Just treating img a hypo now after a day of hypers...

Hi all, Does anyone know where I could source a replacement silicone case for the Aviva Insight handset. Ours has ripped and Roche don't supply them anymore apparently. Thanks.

Our daughter was diagnosed at age 2 in October 2017. We've always been as open as possible with her about T1. As she grows more aware of the world around her she asks more questions and shares her experiences with family and friends. Sometimes this involves her expressing sadness or anger at...

We took our letter showing the pump as a medical device so our three year old could bypass the scanners. Might be worth getting it in French next time though [emoji4]

Hi all, Has anyone had any experience of getting an NHS funded pump upgraded early? We have about 2 yrs left on our Insight. Our daughter is still struggling with hypos overnight so we were looking at some of the newer devices that can intelligently control the basal delivery based on CGM...

Slightly off topic, but whenever we go to somewhere like this we visit guest services and get a fast pass or equivalent, so that we have less queue waiting, therefore minimising time lost due to Hypo's etc. Usually a copy of a PDSN letter or DLA letter is enough evidence for guest services to...

Thank you everyone

Thanks for the feedback. It's our spares that we want to keep chilled just in case our primary supply fails.

Hi all, We are going on a long car journey soon and need to keep some Insulin chilled. Does anyone have any recommendations for a decent 12v car cool box. Thanks, Andi

Hi, Our daughter was diagnosed at just over 2 years old. We use a standard accu chek finger picker and accu chek insight. It's as accurate for her as it would be an adult. Hope this helps.

Hi, Our daughter is 3, diagnosed last October when just over two. We have an Accu Chek Insight pump - requires an insertion every three days, with a change of Insulin cartridge as part of every other change. This has saved us the need for manual injections and the logic in the pump allows for...

Hi, Our daughter was diagnosed aged 2 last year in October. Some days / weeks have been pure hell and others pure joy. She has a bug at the moment, so we are dealing with elevated bloods and Ketone levels and had an overnight stay on the ward, but last week we celebrated her 3rd birthday and...