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11 Year Old Daughter Just Diagnosed Type 1

bwilliams1979

Newbie
Messages
1
Type of diabetes
Parent
Treatment type
Insulin
Hey everyone,

My daughter Ella was just diagnosed last week with type 1. So I'm all of a sudden introduced to an entire sub-culture I barely knew existed. It's a whole new world, but one my wife and I are ready to tackle.

We are just getting the supplies, and other items we need to make this manageable. It's good to know we aren't alone!
 
Welcome to the forum.

Plenty of experienced people with Type 1 who will offer help as well as parents whose children have Type1.

Ask about anything and someone will answer. You can even have a rant to get things off your chest.:)
 
Hi It can be hard at first, trying to understand why it happened to YOUR child:(. But in time it will get a little easier with the knowledge and experience . Plus kids are tough cookies and they do seem to just get on with it.
Good luck and all the best, and it is true.......... you're not alone in this journey with your daughter. RRB:). Take care
 
Is your daughter on injections or pump? Some ccg's offer pumps immediately to new diabetics under age of 12.

Its tough for parents. The first thing is to learn how to carb count.. Not just you, but daughter too.

2nd thing, if there are any other siblings, they could react adversely to the attention that your daughter needs, so they would need a clear explanation too.

3rd thing, your daughter needs to know NOW that it is an illness for life, BUT it should never get in the way of her doing anything, and that if she wants to climb Everest she can still do it. (I was told I would have complication and would die early- that is NOT the phrases to use).

For your daughter now, just see how much life assurance would cost. The reason being, that it used to be horrendous for mortgage cover etc....and the younger you get it, the better the premiums!! Sounds awful, but once I was diagnosed years ago life cover was at the time out of the question and my mum and dad always helped me more to get my mortgage paid off early because of my lack of life insurance cover...

It is hard for parents as well as child and thats why you should put in a claim for DLA.. Probably now called PIP. Your medical staff should have told you this.

You will all need to go on a DAFNE course, but take some of the advice reference foods with a pinch of salt.. Lol!! Your daughter does not need to have limitations on food.... She can eat what she likes-providing you all learn how to get the best blood levels by adjusting the doses of insulin. However, many nhs people advise 50-60% carbs with every meal.... This is not actually proven. The less carbs your daughter has, the less insulin, the less errors and fluctuations...

The most important thing though is to not allow diabetes to rule everything!! She is still able to do the majority of things, just that they need to be planned more!!



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