Hi my daughter is 11 yrs old and T1 for past 2 years.She also has Coeliac ,Hypothyroidism and vitiligo. So yes a good number of autoimmune conditions... We just got back from vacation and she is having anxiety attacks- feeling unwell, high palpitations, feeling dizzy.I have taken her to A&E,her GP,her diabetes care but everyone says she is fine.her sugars have been in 2 digits 12-17 during the vacation and her HBA1c is 8.3.I have seen that when she is hungry she gets these feelings and she really gets panicky... She also gets up in the middle of the night and describes these feelings. Last night she finally said she is hungry but she has lost her appetite...after much effort we made her eat something and then she slept...I am really worried if something is wrong or is it just an anxiety phase.Also could it be related to her adrenals losing now... I can't have another autoimmune attack on her...pls help if someone has felt like this before
11yr old feeling unwell all the time
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Winnie53
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@anuja I'm a type 2 diabetic and have a number of autoimmune disorders: non-celiac gluten sensitivity (NCGS); subclinical hyperthyroid, which I've been popping in and out of for 13 years; and inflammatory bowel disease (IBD) which has been in remission for most of the last 25 years thanks to the Specific Carbohydrate Diet (SCD).
I also have lived with anxiety my entire life. Here's what I do...
During periods of stress, I drink chamomile tea before bed. Before I began taking nutritional supplements, I sometimes would also take the amino acid tryptophan before bed, but that was rare. Today, I take magnesium in the morning and evening. (I've read that when stressed, magnesium rich Epsom salt baths are also helpful though I've never tried it because I prefer taking showers).
There are a number of high quality - (this is important) - nutritional supplements that I take. These are the ones that I believe address anxiety symptoms...
One of the concerns I have is whether or not your daughter has developed additional food sensitivities that is continuing to activate immune attacks on her body. Tom O'Bryan for the last three years has hosted The Gluten Summit. Might be worth attending, if he hosts one this year. It's free. Or you can purchase last year's summit.... http://theglutensummit.com/ You can also listen to presentations and interviews with him on YouTube... https://www.youtube.com/results?q=tom+o'bryan I learn every time I listen to a presentation by him. His godmother, mother and father all died from complications of gluten-sensitivities. He's a man who has dedicated his life to educating the public about wheat allergy, celiac disease, and non-celiac gluten sensitivity.
The problems your daughter is having may not have anything to do with her type 1 diabetes which would explain why her treatment team is saying she's fine. Clearly, she's not okay. When attacking a health issue, I begin with lab tests if I can afford it, and research which nutritional deficiencies could be causing the symptoms, then begin taking those supplements. This strategy often works. That's where I'd start. Your daughter is fortunate to have such a caring mum (or da).
I also have lived with anxiety my entire life. Here's what I do...
During periods of stress, I drink chamomile tea before bed. Before I began taking nutritional supplements, I sometimes would also take the amino acid tryptophan before bed, but that was rare. Today, I take magnesium in the morning and evening. (I've read that when stressed, magnesium rich Epsom salt baths are also helpful though I've never tried it because I prefer taking showers).
There are a number of high quality - (this is important) - nutritional supplements that I take. These are the ones that I believe address anxiety symptoms...
- B-complex - Perhaps due to the NCGS, I've taken a B-complex on and off my entire adult life. I either need more B vitamins than other people, or I don't absorb them well from food. Not sure which. It would be interesting to have your daughter's B12 level checked by her doctor. When I was diagnosed in 2011 with NCGS, I hadn't taken my nutritional supplements for a year or more and my vitamin B12, D, and iron levels were all very low. Within two weeks of supplementing to address these deficiencies, I felt better and my blood pressure dropped into the normal range. What a relief. My blood pressure had been elevated for some time. Learn more about anxiety and nutritional supplements here... http://www.besthealthmag.ca/best-you/mental-health/8-nutrients-to-help-beat-anxiety/
- vitamin D3 - learn why this mineral is important for those of us who have autoimmune disorders (or explore the website)... https://www.vitamindcouncil.org/blog/vitamin-d-and-autoimmune-disorders-the-latest-research/
- magnesium glycinate - It comes in many forms. This is the form I see most consistently recommended; I take magnesium citrate or citramate only because I eat a low carb diet and this form works best for me to prevent constipation. Learn more here... http://articles.mercola.com/sites/articles/archive/2015/01/19/magnesium-deficiency.aspx
- Prescript-Assist - I chose this pre-biotic and probiotic based on Chris Kresser's recommendation last year when I started reading about the microbiome and the importance of building healthy gut flora for health during a IBD flare that lasted 9 months, now in remission. Go here for more information... http://chriskresser.com/supplements/brain/
One of the concerns I have is whether or not your daughter has developed additional food sensitivities that is continuing to activate immune attacks on her body. Tom O'Bryan for the last three years has hosted The Gluten Summit. Might be worth attending, if he hosts one this year. It's free. Or you can purchase last year's summit.... http://theglutensummit.com/ You can also listen to presentations and interviews with him on YouTube... https://www.youtube.com/results?q=tom+o'bryan I learn every time I listen to a presentation by him. His godmother, mother and father all died from complications of gluten-sensitivities. He's a man who has dedicated his life to educating the public about wheat allergy, celiac disease, and non-celiac gluten sensitivity.
The problems your daughter is having may not have anything to do with her type 1 diabetes which would explain why her treatment team is saying she's fine. Clearly, she's not okay. When attacking a health issue, I begin with lab tests if I can afford it, and research which nutritional deficiencies could be causing the symptoms, then begin taking those supplements. This strategy often works. That's where I'd start. Your daughter is fortunate to have such a caring mum (or da).
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Winnie53
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A couple of questions that I forgot to ask... When was the last time they checked her thyroid? Also, is anxiety a side effect of any of the medications or nutritional supplements she's taking? And most important, what changed, if anything, prior to her having these symptoms?
@Winnie53 thanks so much for the reply and for the valuable information.I know that we were very irresponsible with her thyroid medication while we were on vacation for 2 weeks.I told this to her endocrinologist and he said that even if she missed her medication her symptoms are not of underactive thyroid. I honestly can't think of anything else which has changed but I have to admit that Diabetes has caused so much stress in our lives. But my daughter has handled it si well all this time.I have completely broken down most of the times but she has been OK. Her last tests were done on 6th Jan and all was on.shw is on vitD supplements and has been for a while.
But she is a completely different person now.Always scared of her sugar levels,testing it in the middle of night.Getting up in the night with u well feeli g....we try to tell her it's all on her mind but my mother instinct say something is wrong.she is also planned to go on a 5 day school trip in March and she is preparing for 11+ exams...so there is lots but its just the way she is reacting to all.I will definitely call her doctor on Monday and ask for lab tests
But she is a completely different person now.Always scared of her sugar levels,testing it in the middle of night.Getting up in the night with u well feeli g....we try to tell her it's all on her mind but my mother instinct say something is wrong.she is also planned to go on a 5 day school trip in March and she is preparing for 11+ exams...so there is lots but its just the way she is reacting to all.I will definitely call her doctor on Monday and ask for lab tests
She literally feels scared for her life as if something will happen to her...I feel so sad looking at her like this and not being able to help her
Winnie53
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@anuja I'm leaving the house right now and will likely be gone for a while. Need to think about this. What's a typical day of eating for her? Breakfast, lunch, dinner, and snacks if any? Oh, and you might find this article interesting too. It describes what happens when there's a deficiency vitamin B6 and zinc. Trudy states that up to 40% of the population is affected...
http://www.everywomanover29.com/blog/pyroluria-questionnaire-from-the-antianxiety-food-solution/
A friend, who included information about pyroluria in her book, told me about this years ago. The condition was familiar to me, but I couldn't remember what it was, so I did a Google search on it today. Wondering now if I have a zinc deficiency myself.
http://www.everywomanover29.com/blog/pyroluria-questionnaire-from-the-antianxiety-food-solution/
A friend, who included information about pyroluria in her book, told me about this years ago. The condition was familiar to me, but I couldn't remember what it was, so I did a Google search on it today. Wondering now if I have a zinc deficiency myself.
Winnie53
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Winnie53
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@anuja go here to learn more about nutritional deficiencies due to the vegetarian and vegan diets... http://articles.mercola.com/sites/a...3/vegetarian-vegan-nutrient-deficiencies.aspx [Edit: Those who eat a whole foods, plant-based diet may not appreciate this article because it's not supportive of a strictly vegetarian or vegan diet. Apologies... Perhaps Dr. Michael Gregor's websites would be a better place to get information... http://nutritionfacts.org/ http://www.drgreger.org/]
The important thing to understand is that a long-term deficiency in vitamin B12 will make your daughter very ill once her reserves are depleted.
The important thing to understand is that a long-term deficiency in vitamin B12 will make your daughter very ill once her reserves are depleted.
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No she's just taking VitD supplements... I have just requested my doctor to check her vitamins and zinc apart from her thyroid
Winnie53
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@anuja sounds like a good plan.
Here in the US, Dr. Michael Gregor regularly shares science-based information on diet and nutrition from a whole foods, plant based diet perspective through his website, http://nutritionfacts.org/ Your daughter can go there and learn what foods to eat to get the nutrition she needs. You also can go there to learn with her.
Dr. Gregor takes nutritional supplements himself. When asked what supplements he takes, he responded "I take algae-derived DHA and EPA, vitamin D, eat sea vegetables for iodine and of course make sure I ingest sufficient vitamin B12."
To learn more, go here to listen to lectures by Dr. Gregor... https://www.youtube.com/results?search_query=dr.+michael+greger
Let us know what you find out.
Here in the US, Dr. Michael Gregor regularly shares science-based information on diet and nutrition from a whole foods, plant based diet perspective through his website, http://nutritionfacts.org/ Your daughter can go there and learn what foods to eat to get the nutrition she needs. You also can go there to learn with her.
Dr. Gregor takes nutritional supplements himself. When asked what supplements he takes, he responded "I take algae-derived DHA and EPA, vitamin D, eat sea vegetables for iodine and of course make sure I ingest sufficient vitamin B12."
To learn more, go here to listen to lectures by Dr. Gregor... https://www.youtube.com/results?search_query=dr.+michael+greger
Let us know what you find out.
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